Hi Everyone, I just got my lab results and now my EGFR is down to 18. I will only see my nephrologist in April and unfortunately he is not really helpful in answering my questions. I was wondering if someone out there could shed some light to me. Basically I don’t have any living donor so I would like to know when should I expect to be added to the waiting list, start dialysis, etc. I know every case is different but if you could at least share your experience with me it would be greatly appreciated.
Thank you in advance!! X
You have come to the right place.
There are many people here with, different CKD situations that will be able to help you.
Can you tell us a little about your labs.
How long have you been diagnosed?
What was your GFR level at the time of diagnosis?
Have you had any further testing?
Do you have hypertension or diabetes?
What is your creatine level?
Your BUN level?
Hi Margie5967, thanks for your response.
I was diagnosed with Ckd in Spain when I was 16 years old, nearly 14 years ago. I was never told on what stage I was back then. Back now I am stage 4, in August 2018 My EGFR was 20 and now is down to 18.
My creatine is 274, my BUN was not checked by my doctor.
I do take high blood medication and it keeps it under control. Aside from gout I do not suffer from anything else.
My doctor’s letter says that I have been referred to a low clearance clinic but I am unsure what will happen there exactly.
Thank you for your time x
Do you know the cause of your CKD?
I have been CKD for the last 5 years, however it was not flagged until I changed doctors.
They think the cause of my CKD is the use of NSAIDS.
I had repeated pyelonephritis due to reflux from my ureters since childhood. My left kidney never grew much and I got it removed when I was 18 because it was causing me infections too. My right kidney tried to compensate the left one by growing more but all the infections I had caused it irreparable damage.
I am in similar situation but at moment my egfr rate is 26 my renal clinic has said if it drops to 23 or under I will be called in to discuss next stages treatment etc. It has made me anxious but I am having another blood test next week and hopefully things will look better. I had suffered an infection nso maybe this reflected in last results