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Continuous Ambulatory Peritoneal Dialysis
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Cramp during dialysis
New starter to HD. I'm concerned about getting cramp during dialysis. How will this be managed when I'm hooked up and cant jump about? I normally end up rolling around on the floor in agony. Any one else suffer and if so, what do you do?
New starter to HD. I'm concerned about getting cramp during dialysis. How will this be managed when I'm hooked up and cant jump about? I normally end up rolling around on the floor in agony. Any one else suffer and if so, what do you do?
Juliepkd
in
Kidney Dialysis
4 years ago
I am new to this forum, and would like to ask some questions on my fathers behalf.
My farther has been on self dialysis now for 3 years and has recently been very messed up with not sleeping at all for over a month even thought he has been prescribed temazepam and other sleep aiding drugs but have not taken effect. He got himself to a stage that he was ready to give it all up and come
My farther has been on self dialysis now for 3 years and has recently been very messed up with not sleeping at all for over a month even thought he has been prescribed temazepam and other sleep aiding drugs but have not taken effect. He got himself to a stage that he was ready to give it all up and come
Dad2020
in
Kidney Dialysis
4 years ago
Just wondering...
So a few weeks ago I was diagnosed with sleep apnea. Never thought much about it b4 just thought that was for people that snored. Well, I have learned its much serious than that. It's actually when u stop breathing n ur sleep. I was told I stopped breathing 23 times every hour. I of course have been
So a few weeks ago I was diagnosed with sleep apnea. Never thought much about it b4 just thought that was for people that snored. Well, I have learned its much serious than that. It's actually when u stop breathing n ur sleep. I was told I stopped breathing 23 times every hour. I of course have been
Bluetj
in
Anxiety and Depression Support
4 years ago
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Sleep apnea newbie
Hi all: I just found out I have obstructive sleep apnea to go with the restless legs syndrome and Parkinson’s. The CPAP machine and service costs a lot more - almost double - than ordering the machine itself. Do you find the service worth it, especially for first timers? My somnologist sent me to the
Hi all: I just found out I have obstructive sleep apnea to go with the restless legs syndrome and Parkinson’s. The CPAP machine and service costs a lot more - almost double - than ordering the machine itself. Do you find the service worth it, especially for first timers? My somnologist sent me to the
ScribblerCLT
in
Sleep Matters
4 years ago
2 months in; still fighting but her doctors want to stop treatment
I hope everyone has been doing okay these last couple of weeks. In my last post, I described how my mom’s blood pressure was low and her doctors wanted to stop dialysis. It was later revealed to us that her blood pressure was low due to septicemia related to bacterial pneumonia and that her doctors had
I hope everyone has been doing okay these last couple of weeks. In my last post, I described how my mom’s blood pressure was low and her doctors wanted to stop dialysis. It was later revealed to us that her blood pressure was low due to septicemia related to bacterial pneumonia and that her doctors had
ChrissyJames
in
ICUsteps
4 years ago
New to this
Hello. I've taken care of my father with disabilities since high school. He just started dialysis at home this week and is really struggling emotionally. I'm encouraging him to get on one of these groups, talk to others and thought I'd lead by example. Him struggling is hard to see and hard to live with
Hello. I've taken care of my father with disabilities since high school. He just started dialysis at home this week and is really struggling emotionally. I'm encouraging him to get on one of these groups, talk to others and thought I'd lead by example. Him struggling is hard to see and hard to live with
JSStories
in
Care Community
4 years ago
New to Stage 4 CKD
I am 47 years old and have stage 4 ckd and congestive heart failure. My EGR is at 22 and ejection fraction is at 23% My kidney doc told me to look to family members for a donation for transplant, but to no avail there is no one. If that's the case, shouldn't they be looking towards dialysis? Also
I am 47 years old and have stage 4 ckd and congestive heart failure. My EGR is at 22 and ejection fraction is at 23% My kidney doc told me to look to family members for a donation for transplant, but to no avail there is no one. If that's the case, shouldn't they be looking towards dialysis? Also
thomascald
in
Kidney Disease
4 years ago
Anxiety and vent weaning? Also a novel of my moms icu experience
Long story but I will try to make this as short as I can. My mom has been on the ventilator for 3 months. She ended up in the hospital having trouble breathing and she had a low heart rate. She had to to get put on the ventilator. She was getting better, got off of the ventilator and out of the ICU but
Long story but I will try to make this as short as I can. My mom has been on the ventilator for 3 months. She ended up in the hospital having trouble breathing and she had a low heart rate. She had to to get put on the ventilator. She was getting better, got off of the ventilator and out of the ICU but
Alexa319
in
ICUsteps
4 years ago
Gabapentin a nightmare drug!
I am a renal patient with only 8% kidney function who went onto PD Dialysis in April 2020 but it was a disaster!. Apart from peritonitis I also developed nephropathy in my feet for which I was prescribed the drug gabapentin (only 100 mg per day) for the pain. This immediately made me feel dizzy. I was
I am a renal patient with only 8% kidney function who went onto PD Dialysis in April 2020 but it was a disaster!. Apart from peritonitis I also developed nephropathy in my feet for which I was prescribed the drug gabapentin (only 100 mg per day) for the pain. This immediately made me feel dizzy. I was
OVERPAR
in
Kidney Disease
4 years ago
Struggling with depression
Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019
Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019
Kat_21
in
Anxiety and Depression Support
4 years ago
Dialysis question - advice please
Good morning! As some of you know my brother was in ICU for many weeks due to COVID. He is now in a specialist renal hospital as his kidneys are still not working. He is doing well apart from this. I have seen him a couple of times on the ward - he is very ‘skinny’ but seems to be perky enough in
Good morning! As some of you know my brother was in ICU for many weeks due to COVID. He is now in a specialist renal hospital as his kidneys are still not working. He is doing well apart from this. I have seen him a couple of times on the ward - he is very ‘skinny’ but seems to be perky enough in
RiaJam
in
ICUsteps
4 years ago
Just wondering
I meant to say I am not on dialysis yet. Is there a diabetic out there who is on dialysis ? And how do you cope?
I meant to say I am not on dialysis yet. Is there a diabetic out there who is on dialysis ? And how do you cope?
Quita55
in
Kidney Dialysis
4 years ago
Just wondering
I am currently on dialysis yet. My question is there a dialysis patient who also has diabetes? I how do you cope having to do dialysis and manage your diabetes on a daily basis. Do you have any tips you can share with me so when I start dialysis I will have a some information I maybe able to use
I am currently on dialysis yet. My question is there a dialysis patient who also has diabetes? I how do you cope having to do dialysis and manage your diabetes on a daily basis. Do you have any tips you can share with me so when I start dialysis I will have a some information I maybe able to use
Quita55
in
Kidney Dialysis
4 years ago
Blood pressure issues
Anyone else have problems with low blood pressure at the end of your dialysis run?
Anyone else have problems with low blood pressure at the end of your dialysis run?
Rabbit34
in
Kidney Disease
4 years ago
Low carb works -slowly but it’s a new way to eat -not a diet it’s a way of life
Hello I’m 9 years post transplant and have gained about 40 pounds after the rejection and second transplant. I’ve lost about twenty after understanding what function the kidney plays un bloating and weight gain. Read up on it to get a new prospective, if your kidney is only sub-working I’m still at stage
Hello I’m 9 years post transplant and have gained about 40 pounds after the rejection and second transplant. I’ve lost about twenty after understanding what function the kidney plays un bloating and weight gain. Read up on it to get a new prospective, if your kidney is only sub-working I’m still at stage
mtwskk
in
Kidney Transplant
4 years ago
Peritoneal vs Incenter Nocturnal Dialysis
If I do not get a transplant first, I may have to choose a method of dialysis. My doctor recommends peritoneal but I'm attracted to incenter nocturnal dialysis. Does anyone have information on how each compares in regards to how the recipient feels generally from each?
If I do not get a transplant first, I may have to choose a method of dialysis. My doctor recommends peritoneal but I'm attracted to incenter nocturnal dialysis. Does anyone have information on how each compares in regards to how the recipient feels generally from each?
Leroy1
in
Kidney Disease
4 years ago
Low blood pressure...they want to stop dialysis...please any advice is needed
My mom’s doctors are now saying that her blood pressure is very low, likely due to all the infections she has been fighting off. She has been on dialysis since her kidneys haven't been functioning properly because of an autoimmune disease. They can’t treat the disease due to her infections...and it seems
My mom’s doctors are now saying that her blood pressure is very low, likely due to all the infections she has been fighting off. She has been on dialysis since her kidneys haven't been functioning properly because of an autoimmune disease. They can’t treat the disease due to her infections...and it seems
ChrissyJames
in
ICUsteps
4 years ago
Of-Presidents-Policies-and-Patients
One year ago the administration signed an EO on Advancing American Kidney Health. This letter from two key members of AAKP was in my mail today and I thought I'd share it with everyone in the community. July 10, 2020 Paul T. Conway and Edward V. Hickey III As two kidney patients who have lived at
One year ago the administration signed an EO on Advancing American Kidney Health. This letter from two key members of AAKP was in my mail today and I thought I'd share it with everyone in the community. July 10, 2020 Paul T. Conway and Edward V. Hickey III As two kidney patients who have lived at
Hidden
in
Kidney Disease
4 years ago
Hows every doing 💪🙏😛
Me Hello my fellow warriors 🙏my name is Dave i first joined this group i guess about 2 years ago whenw i was blessed with a kidney transplant🙏Ivecome a long way since my health now is better than when i first became sick 10 years ago my last laB results put me at a gfr of 74% i had to have a double
Me Hello my fellow warriors 🙏my name is Dave i first joined this group i guess about 2 years ago whenw i was blessed with a kidney transplant🙏Ivecome a long way since my health now is better than when i first became sick 10 years ago my last laB results put me at a gfr of 74% i had to have a double
Gotthecall_123
in
Kidney Transplant
4 years ago
Some feedback would help Pelvic / Fibroids
Hi all, New to this Site ,, thank you for this link, Right don’t know really where to start...so here goes,...I’m 50 end of August ... Firstly currently on haemodialysis for almost 30 years , this November .. Had two failed transplants, one came out other still in situ left side , Had severe periods
Hi all, New to this Site ,, thank you for this link, Right don’t know really where to start...so here goes,...I’m 50 end of August ... Firstly currently on haemodialysis for almost 30 years , this November .. Had two failed transplants, one came out other still in situ left side , Had severe periods
WarriorprincessJen
in
Pelvic Pain Support Network
4 years ago
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