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End of Resus Trial
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
LolaBow
in
British Liver Trust
7 months ago
`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
7 months ago
Lopressor
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
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⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
2 months ago
Another experience proving we are all different
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
Peacefulneedshelp
in
Atrial Fibrillation Support
2 months ago
I Too Have Persistent Afib
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
theluckyone
in
Atrial Fibrillation Support
2 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
7 months ago
Benefit of coherent breathing
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
PhilFreeToAsk
in
PMRGCAuk
2 months ago
HF ongoing issues
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Nomis21
in
Atrial Fibrillation Support
2 months ago
Testosterone increase after injection
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
Shadoz
in
Advanced Prostate Cancer
7 months ago
Thrombocytopenia
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
nunbrook
in
PBC Foundation
9 months ago
Almost there
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Pumukkale
in
PMRGCAuk
7 months ago
PSA Roller Coaster ride!
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
JD-guy
in
Advanced Prostate Cancer
7 months ago
Warning, ugly face
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
Lozza812
in
LUPUS UK
9 months ago
The Strongest Neurotransmitter in the World is NOT Dopamine or Serotonin - Dr. Scott Sherr MD
This is very interesting. Explains interaction of glutamate, GABA, B6, magnesium anxiety, depression https://youtu.be/twNwe5WOOdI?si=dSIKRr3aPvgtuOyE
This is very interesting. Explains interaction of glutamate, GABA, B6, magnesium anxiety, depression https://youtu.be/twNwe5WOOdI?si=dSIKRr3aPvgtuOyE
LAJ12345
in
Cure Parkinson's
7 months ago
Low BP
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
Fishie1
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Covid vaccines and Lupus Flare - up
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
seabreezegirl
in
LUpus Patients Understanding and Support
9 months ago
NAFLD 1 year on
What I am doing wrong. Diagnosed with NAFLD a year ago. Changed my diet, lost weight and eat healthier. Had scan last week and still have mild fatty liver. My doctor is of no help and support to me. I’m getting upset and anxious.
What I am doing wrong. Diagnosed with NAFLD a year ago. Changed my diet, lost weight and eat healthier. Had scan last week and still have mild fatty liver. My doctor is of no help and support to me. I’m getting upset and anxious.
PepsiDoodles
in
British Liver Trust
7 months ago
Change in PSA
My PSA has been <.064 for a couple years. This time it was <.05. The test is always done by the same lab. Does this mean anything?
My PSA has been <.064 for a couple years. This time it was <.05. The test is always done by the same lab. Does this mean anything?
epfj3333
in
Advanced Prostate Cancer
7 months ago
spinal haematoma
hi there lovely people , was just wondering has anyone had bleeding on the spinal cord ? I am paralysed at the moment as I had a sharp pain in my back & everything then went numb from my chest down . I am wondered if this is caused by the lupus . They are saying if the clot reduces then I may get some
hi there lovely people , was just wondering has anyone had bleeding on the spinal cord ? I am paralysed at the moment as I had a sharp pain in my back & everything then went numb from my chest down . I am wondered if this is caused by the lupus . They are saying if the clot reduces then I may get some
tremarel
in
LUPUS UK
7 months ago
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