PSA Roller Coaster ride!: Back a... - Advanced Prostate...

Advanced Prostate Cancer

22,348 members28,110 posts

PSA Roller Coaster ride!

JD-guy profile image
14 Replies

Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if they would do a PSA draw. they did. It came back @ <0.01. What do we do, one lab said 2.22 the other undetectable. The Dr said we should still move forward with a PSMA-Pet Scan. So I have it scheduled. Then check the PSA in a month.

Today I received call from my Nurse, she had a call from the Lab that I use and said that they found out that their machine was out of calibration. They had it recalibrated, and when they ran my PSA this time, it came back <0.01. I am praising the Lord for the results, even if it has been emotional.

I am very grateful for the out-come. But what a emotional roller coaster ride. Hopefully I can keep it down yet for a long time.

thanks for listening

Keith, aka JD-Guy

Written by
JD-guy profile image
JD-guy
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Tall_Allen profile image
Tall_Allen

Congratulations that it was just a lab error. Whew!

JD-guy profile image
JD-guy in reply toTall_Allen

Yes, I am very grateful. Thanks

Jmr11820 profile image
Jmr11820

Nice!!

JD-guy profile image
JD-guy in reply toJmr11820

It is very nice. Thanks

Kaliber profile image
Kaliber

blessed news brother … great to know for the holiday season. Good for you.

❤️❤️

JD-guy profile image
JD-guy in reply toKaliber

I told my wife, this is better than any Christmas present she could get me.

Kaliber profile image
Kaliber in reply toJD-guy

I hear you brother.

CAMPSOUPS profile image
CAMPSOUPS

The old saying "Hitting my head with a hammer because it feels good when I stop" comes to mind.

Great to have that cleared up before the Holidays!

JD-guy profile image
JD-guy in reply toCAMPSOUPS

Thanks, Very glad to have it cleared up. Merry Christmas

Keith

zeitgeistxx profile image
zeitgeistxx

Wow, sorry you had to deal with that! On the other hand, grats on the excellent outcome. Happy holidays to you!

j-o-h-n profile image
j-o-h-n

Take $2,000. off your doctor bill..... for emotional stress.........

Have a Good Christmas....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 12/23/2023 3:04 PM EST

MrG68 profile image
MrG68

Out of calibration eh? That's some error. Sounds more like pilot error to me. Who cares though. The result came through in the end. Good for you.

TaylorMill profile image
TaylorMill

Great outcome! Just an FYI for others out there. My Med Oncologist says lab errors are common. I have had PSA at <.006 (undetectable) for over 5 yrs following RP, ADT and 8 weeks of pelvic radiation. However, on two occasions if had readings that were still low but not undetectable. On both occasions my doc said they were probably anomalies and don't be concerned. However, that first one worried me until a retest three months later. The current one is not a "worry" like that first one though I still wish it did not happen. The first one was in 2021; the second one is this month; however, though not "undetectable" per se the current one was still incredibly low at .014. My MO won't test me again until Feb or so next year but I am praying it turns out a lab error.

JD-guy profile image
JD-guy in reply toTaylorMill

Thanks. Interesting. I have a standing order in my portal that I can print off whenever I want to check my PSA, so far I have not got it checked until the Dr wants it. Back earlier in this journey, I would get it checked once a month. That got to be a emotional up and down also. I get it checked every three months right before I get lupron.

Not what you're looking for?

You may also like...

PSA, Total vs PSA, Ultrasensitive

After RP last August, my PSA, Total checks were all <0.01, until a test by my local Urologist ~5...
richlisad profile image

PSA of <0.1 undetectable?

I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a...
pj1121 profile image

Post RP PSA rising?

I was diagnosed 11/18 with Gleason 9 PC. Started 6 month ADT trial at MDA 12/18. Had RP at MDA...
tfly59 profile image

Undetectable PSA

Yesterday I received my 3rd Eligard (3 month) injection. I'm also on Zytiga and finished 44 IMRT 5...
Huzzah1 profile image

Roller Coaster

My husband is 75, has been going to see his urologist every 6 months for 15 years he had put him on...
formula27 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.