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Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Thal
in
Cure Parkinson's
5 months ago
Thoughts and Help
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hidden
in
LUPUS UK
7 months ago
Mike H
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
Georgeorwell1959
in
Atrial Fibrillation Support
4 months ago
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Retacrit Shots
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
Bippers
in
MPN Voice
5 months ago
taking Urso
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Latest Private Test
Hi there, I'm still waiting on a telephone app with my GP, but my new private antibody test results have come back. I get these done myself as we know GP's and the Endo situation is pretty poor for most of us, as our symptoms often get dismissed. The last endo appt said I may be at risk of developing
Hi there, I'm still waiting on a telephone app with my GP, but my new private antibody test results have come back. I get these done myself as we know GP's and the Endo situation is pretty poor for most of us, as our symptoms often get dismissed. The last endo appt said I may be at risk of developing
Ciri
in
Thyroid UK
5 months ago
transplant and rheumatoid arthritis
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
Rshc
in
British Liver Trust
7 months ago
Outdoor working
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
ApusApus
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
5 months ago
Mitral Valve Regurgitation?
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
nikonBlue
in
Atrial Fibrillation Support
4 months ago
kidney blood test questions
I just had a routine blood test. I won’t be able to see the doctor for answers until Friday and I’m worried and scared. My eGFR numbers dropped from 95 to 44 in one year. My Creatinine numbers are high and my cholesterol numbers also shot way up. I have no symptoms. Has anyone else had such a change
I just had a routine blood test. I won’t be able to see the doctor for answers until Friday and I’m worried and scared. My eGFR numbers dropped from 95 to 44 in one year. My Creatinine numbers are high and my cholesterol numbers also shot way up. I have no symptoms. Has anyone else had such a change
Firemoon
in
Early CKD Support
5 months ago
Travel insurance
Hello everybody, my first post I joined approximately about six months ago after my husband was diagnosed with cirrhosis, early May 2023 He is now doing very well 🙏I have certainly learned so much from everybody’s contributions and I am very appreciative of that so thank you to everybody. I did
Hello everybody, my first post I joined approximately about six months ago after my husband was diagnosed with cirrhosis, early May 2023 He is now doing very well 🙏I have certainly learned so much from everybody’s contributions and I am very appreciative of that so thank you to everybody. I did
Miraclesdohappen1958
in
British Liver Trust
5 months ago
Imperial College Help please
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Daisyboodle
in
Vasculitis UK
5 months ago
cortisol test
hi, I have had a thyroid test done by blue horizon, the morning cortisol has come back at 310. I have read that they investigate anything lower than 450, is this the case? What should I do? It was finger prick, I have not done a 4 point Saliva test thanks matty
hi, I have had a thyroid test done by blue horizon, the morning cortisol has come back at 310. I have read that they investigate anything lower than 450, is this the case? What should I do? It was finger prick, I have not done a 4 point Saliva test thanks matty
Mattydonald
in
PMRGCAuk
5 months ago
PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
5 months ago
Stabbing pains
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
I’m in the middle of all my tests - looks like I have (perhaps) fibrosis F2/F3 and severe fatty liver. And some mild portal gastropathy. However it’s a pain in the upper abdomen that’s confusing me. It’s mostly a stabbing sharp pain and sometimes it actually makes me itch - not like on the skin, but
Jaxxy8
in
British Liver Trust
5 months ago
Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
5 months ago
Humorous/informative videos on prostate cancer
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
Caldonia
in
Advanced Prostate Cancer
5 months ago
Symptoms of advanced liver disease
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
Hi Everyone, after long waiting period, I have finally got my first hepatologist appointment after 8 months from now. After this appointment he will refer me for a fibro scan. I am afraid if I have advanced liver disease it will be worst. I do have itchy palms and feet. dull ache in abdomen and I am
SShally
in
British Liver Trust
5 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
5 months ago
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