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Sustaining friendships in the 21st century
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
jeeves19
in
Cure Parkinson's
3 months ago
AASLD organization
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Coping
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
Rawai
in
British Liver Trust
3 months ago
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Levodopa effect on AF?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
fleckynyde
in
Atrial Fibrillation Support
3 months ago
Update
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
very
in
CLL Support
6 months ago
Could chronic urticaria be related to underactive thyroid?
I've had under active thyroid for 5/6 years and have been on a dose of 50mcg of Levothyroxine for all of this time. This year I developed chronic urticaria and then a different kind of dermatitis/eczema and I want to rip my skin off it's so itchy. This week I did an Advanced Thyroid Function Blood Test
I've had under active thyroid for 5/6 years and have been on a dose of 50mcg of Levothyroxine for all of this time. This year I developed chronic urticaria and then a different kind of dermatitis/eczema and I want to rip my skin off it's so itchy. This week I did an Advanced Thyroid Function Blood Test
Chestercheese
in
Thyroid UK
6 months ago
Some good news at last.
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
AmandaLouise77
in
Atrial Fibrillation Support
2 months ago
LUPUS 100 Answers to the most important questions about lupus, verified by world renowned lupus doctors
LUPUS 100
Answers to the most important questions about lupus, verified by world renowned lupus doctors in Europe.
LUPUS CHALLENGES
LUPUS MANIFESTATION
LUPUS MANAGEMENT
LIVING WITH LUPUS
LUPUS EUROPE is the European umbrella organisation that brings together
LUPUS 100
Answers to the most important questions about lupus, verified by world renowned lupus doctors in Europe.
LUPUS CHALLENGES
LUPUS MANIFESTATION
LUPUS MANAGEMENT
LIVING WITH LUPUS
LUPUS EUROPE is the European umbrella organisation that brings together
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Car-T cell therapy might cure Systemic Autoimmune Diseases
Hi my dear lupies, I hope you are well. Another promising article about car-T cell therapy 😍🙏💚💜: https://www.medscape.com/viewarticle/car-t-cell-therapy-cure-systemic-autoimmune-diseases-2023a1000usm?src=WNL_conf_ash_231220_MSCPEDIT&uac=342465EY&impID=6175634
Hi my dear lupies, I hope you are well. Another promising article about car-T cell therapy 😍🙏💚💜: https://www.medscape.com/viewarticle/car-t-cell-therapy-cure-systemic-autoimmune-diseases-2023a1000usm?src=WNL_conf_ash_231220_MSCPEDIT&uac=342465EY&impID=6175634
Naladog
in
LUPUS UK
6 months ago
Has methotrexate caused liver damage
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
Beanyynwa
in
NRAS
3 months ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
3 months ago
highest liver - don’t know why think it’s thyroid
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Chouchou1234
in
Thyroid UK
3 months ago
PSA rise
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
Howard53545
in
Advanced Prostate Cancer
3 months ago
PSA rise due to physical activity
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
Ian99
in
Advanced Prostate Cancer
3 months ago
Concern about having more radiation to prostate after 43 external beam treatments 15 years ago
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
Pickleball38
in
Advanced Prostate Cancer
3 months ago
Fibroscan results
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Wednesday's 'Word'
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Meeting with our oncologist for castrate resistance metastatic prostate cancer
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
lgutman
in
Advanced Prostate Cancer
3 months ago
Hemorrhagic Cyst
hi everyone, i have hemorrhagic cysts, diagnosed by internal ultrasounds by the gp. Are these what endometriomas are? Any information would be appreciated 😊
hi everyone, i have hemorrhagic cysts, diagnosed by internal ultrasounds by the gp. Are these what endometriomas are? Any information would be appreciated 😊
Bk27
in
Endometriosis UK
3 months ago
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