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COVID positive 21 days
Hi there, Brief History: I am currently being treated for relapsed CLL. A year into a 2 year course of Venetoclax and already had 6 months of Rituximab. Bloods are all fine and within normal ranges as the CLL responded well and very quickly at the start of treatment and I achieved (treatment
Hi there, Brief History: I am currently being treated for relapsed CLL. A year into a 2 year course of Venetoclax and already had 6 months of Rituximab. Bloods are all fine and within normal ranges as the CLL responded well and very quickly at the start of treatment and I achieved (treatment
Rich316
in
CLL Support
1 year ago
6th Covid jab
Just had my 6th Covid jab this morning, and it was called Vidprevtyn beta. Anyone else had this version?
Just had my 6th Covid jab this morning, and it was called Vidprevtyn beta. Anyone else had this version?
Purplegloss
in
PMRGCAuk
1 year ago
Issue when reverting back to NSR
Hello everyone I had tachycardia / SVT from teenage years. Earliest episodes awful as little info available (groups like this were unimaginable then!). Over the years I had an on / off battle with "an irregular heartbeat" and I think most drugs were tried. But it seemed to become less of a problem as
Hello everyone I had tachycardia / SVT from teenage years. Earliest episodes awful as little info available (groups like this were unimaginable then!). Over the years I had an on / off battle with "an irregular heartbeat" and I think most drugs were tried. But it seemed to become less of a problem as
Garaidh
in
AF Association
1 year ago
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A study record is now available on the Clinical Trials website for the big (N=330) Ambroxol Phase 3 trial (NCT05778617)
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
jeffreyn
in
Cure Parkinson's
1 year ago
Covid Immersion
Not specifically MPN related, but evidence my immune system is still intact. My bucket list post-trauma was to visit my parents at their retirement home. Success, but perfectly timed to their 1st Covid infection. I spent an afternoon in a small poorly ventilated room close and personal. According
Not specifically MPN related, but evidence my immune system is still intact. My bucket list post-trauma was to visit my parents at their retirement home. Success, but perfectly timed to their 1st Covid infection. I spent an afternoon in a small poorly ventilated room close and personal. According
EPguy
in
MPN Voice
1 year ago
Another baby.
Hi all, I have my son who is 3 by ICSI treatment but I’d love another baby, only thing is we haven’t got £10,000 to spend! What do I do?! Also trying so hard to work out if it’s the best for us, what if it doesn’t work? I literally dream of having another baby it’s tearing me up 😞 not sure what I
Hi all, I have my son who is 3 by ICSI treatment but I’d love another baby, only thing is we haven’t got £10,000 to spend! What do I do?! Also trying so hard to work out if it’s the best for us, what if it doesn’t work? I literally dream of having another baby it’s tearing me up 😞 not sure what I
KirstyC90
in
Fertility Network UK
9 months ago
Drug rash
I am three months on Acalabrutinib an take aciclovir (antiviral) Have developed rash on ankles any oneelse experienced this.
I am three months on Acalabrutinib an take aciclovir (antiviral) Have developed rash on ankles any oneelse experienced this.
Simpomo
in
CLL Support
1 year ago
Covid finally got me
I've managed to avoid covid for 3 years, I think due to being extremely careful and having 6 vaccines. Hubby and I have only had some 2 or 3 day breaks to Dumfries, North Yorks, Morpeth and Durham since November 2021.He was away down to mid Wales at a fishing competition last week and came home on Friday
I've managed to avoid covid for 3 years, I think due to being extremely careful and having 6 vaccines. Hubby and I have only had some 2 or 3 day breaks to Dumfries, North Yorks, Morpeth and Durham since November 2021.He was away down to mid Wales at a fishing competition last week and came home on Friday
Circledancer
in
NRAS
1 year ago
Benipali and Covid injection
I can't remember if I stopped my weekly Benipali before I had a previous Covid jab. Senior moment
I can't remember if I stopped my weekly Benipali before I had a previous Covid jab. Senior moment
Jackie1947
in
NRAS
1 year ago
BFN:gutted
Hi all, got my first BFN this morning, devastated. Im 39 and managed to get 5 eggs from 3 follicles, 1 got through to a 5 day blastocyst which resulted in a fresh transfer through ICSI. Hoped so much it worked as I have a blocked fallopian tube and a low AMH/reduced ovarian reserve but it wasn’t to
Hi all, got my first BFN this morning, devastated. Im 39 and managed to get 5 eggs from 3 follicles, 1 got through to a 5 day blastocyst which resulted in a fresh transfer through ICSI. Hoped so much it worked as I have a blocked fallopian tube and a low AMH/reduced ovarian reserve but it wasn’t to
Firsttimegreeny
in
Fertility Network UK
9 months ago
Referred for ICSI due to male factor infertility
Hello, I am new here and this is my first time writing on a forum. Myself and my partner have been referred for ICSI due to extremely low sperm count. We are both struggling with this realisation and I had expected we would be offered some treatment prior to ICSI but due to the severity of my partners
Hello, I am new here and this is my first time writing on a forum. Myself and my partner have been referred for ICSI due to extremely low sperm count. We are both struggling with this realisation and I had expected we would be offered some treatment prior to ICSI but due to the severity of my partners
Summeringreece
in
Fertility Network UK
9 months ago
LDN RT for Medical Professionals
25% off with the code news34. Patients message me for discounted places. Dr Darin Ingels will be recording a presentation for the LDN 2023 Conference on: Low Dose Naltrexone (LDN) and Lyme Disease. In-person Tickets, Livestream, all give free access to the Livestream recordings. www.ldn2023.com #ldn
25% off with the code news34. Patients message me for discounted places. Dr Darin Ingels will be recording a presentation for the LDN 2023 Conference on: Low Dose Naltrexone (LDN) and Lyme Disease. In-person Tickets, Livestream, all give free access to the Livestream recordings. www.ldn2023.com #ldn
Shewulf
Administrator
in
LDN Research Trust
1 year ago
New to this site
hope I'm in right place. Couple hours ago posted but it wound up in pmr/gca site!After Covid had declining gfr into 40s...now trending back up to 60. Have proteinuria for which I take losartan 50 mg. Renal ultrasound and biopsy did not reveal cause or damage. Nephrologist says I'm bit of a puzzlement
hope I'm in right place. Couple hours ago posted but it wound up in pmr/gca site!After Covid had declining gfr into 40s...now trending back up to 60. Have proteinuria for which I take losartan 50 mg. Renal ultrasound and biopsy did not reveal cause or damage. Nephrologist says I'm bit of a puzzlement
Cobalt2sister
in
Kidney Disease
1 year ago
covid vaccination
I have Hemiplegic Migraine with very severe aura symptoms and hypersensitivities including to perfume and chemicals that have stopped me so far from daring to have the vaccination. I paralyse frequently. This leads to complete isolation. I need an operation and so am thinking about having the vaccination
I have Hemiplegic Migraine with very severe aura symptoms and hypersensitivities including to perfume and chemicals that have stopped me so far from daring to have the vaccination. I paralyse frequently. This leads to complete isolation. I need an operation and so am thinking about having the vaccination
marigoldtea
in
National Migraine Centre
1 year ago
Total Failed Fertilisation
hi all, just wondering if anyone can give me some hope of have been through what I have? i am 23, tried both Ivf and icsi and all cycles received failed fertilisation. willing to keep trying but just need some positivity
hi all, just wondering if anyone can give me some hope of have been through what I have? i am 23, tried both Ivf and icsi and all cycles received failed fertilisation. willing to keep trying but just need some positivity
Bass987
in
Fertility Network UK
10 months ago
Costochronditis and Fibromyalgia
Does anyone suffer from the above? I had a stroke in Nov 2020 and despite some complications from this, recovery has been slow. In 2021 I started experencing severe and sharp chest pain and pain under my breast and radiating through to my shoulder blades. Having attended A&E on advice of the NHS doctor's
Does anyone suffer from the above? I had a stroke in Nov 2020 and despite some complications from this, recovery has been slow. In 2021 I started experencing severe and sharp chest pain and pain under my breast and radiating through to my shoulder blades. Having attended A&E on advice of the NHS doctor's
Hidden
in
Fibromyalgia Action UK
1 year ago
AFib and cold showers
Hello amazing community, My PAFs usually begin in the early evening or at night in bed. I am wondering if my cold shower regime really helps end them or might just be random. The last few times when I get up in AFib in the morning, I shower/douse myself with freezing water to get the "gasp effect
Hello amazing community, My PAFs usually begin in the early evening or at night in bed. I am wondering if my cold shower regime really helps end them or might just be random. The last few times when I get up in AFib in the morning, I shower/douse myself with freezing water to get the "gasp effect
agnostic1
in
AF Association
1 year ago
covid and return to benepali
morning all Following my last post of chest infection for over 3 weeks I then contracted covid, my first time, last Saturday. I hadn’t taken my benepali last week as I felt unwell with the chest infection and I was taking 5 days of antibiotics….so I then had to take paxlovid which I took Monday to Friday
morning all Following my last post of chest infection for over 3 weeks I then contracted covid, my first time, last Saturday. I hadn’t taken my benepali last week as I felt unwell with the chest infection and I was taking 5 days of antibiotics….so I then had to take paxlovid which I took Monday to Friday
Piglet007
in
NRAS
1 year ago
cervical polyps/ecroption
Hello, has anyone had any experience with multiple cervical polyps or ecroption? I have an appointment with my GP and am very nervous. I had bleeding after intercourse once and then some blood tinged discharge the week before my period. Any insight is appreciated. Thank you.
Hello, has anyone had any experience with multiple cervical polyps or ecroption? I have an appointment with my GP and am very nervous. I had bleeding after intercourse once and then some blood tinged discharge the week before my period. Any insight is appreciated. Thank you.
Lmj2132
in
Gynae Cancer Support
1 year ago
GCA morphing into PMR?
Hello dear friends: I’ve been on the GCA journey almost 3 years now and I am down to 1 mg prednisone. I’ve been under terrible stress especially the past week but continuing for a couple months. And suddenly now and I am almost off of prednisone for GCA, I have fear that PMR is kicking in. Bad neck
Hello dear friends: I’ve been on the GCA journey almost 3 years now and I am down to 1 mg prednisone. I’ve been under terrible stress especially the past week but continuing for a couple months. And suddenly now and I am almost off of prednisone for GCA, I have fear that PMR is kicking in. Bad neck
Snerd
in
PMRGCAuk
1 year ago
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