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Please send me some positivity.
I have just had the results of my CT scan and I have been told I have a recurrance in one para-aortic lymph node. I will either need surgery (if they can), chemo or radiotherapy. I'm so scared as this is my first recurrence from Stage 4 ovarian cancer and I'm only 56 and have two teenagers. I can't
I have just had the results of my CT scan and I have been told I have a recurrance in one para-aortic lymph node. I will either need surgery (if they can), chemo or radiotherapy. I'm so scared as this is my first recurrence from Stage 4 ovarian cancer and I'm only 56 and have two teenagers. I can't
Nectirlawone
in
My Ovacome
5 months ago
normal poop?
I have only had this Diverticular Disease/IBS for the last 3/4 years and as loads of people on this site has had it way longer than me!!! So I don't feel I have the right 2 moan about it YET!!! I have been given loads of tablets ETC from The Doc's and diet sheets also I simply would just like to have
I have only had this Diverticular Disease/IBS for the last 3/4 years and as loads of people on this site has had it way longer than me!!! So I don't feel I have the right 2 moan about it YET!!! I have been given loads of tablets ETC from The Doc's and diet sheets also I simply would just like to have
bungi1961
in
Bowel Disease Support
5 months ago
Wow ! Newly Diagnosed Prostate Cancer. Greatly appreciate some Guidance with all this new Technology. Tampa Bay Area.
72yo – Gleason 7 – (4+3)- Group 3 - PSA 6.456 – PHI 91.7 – Free 12.86% - Localized in Left Lobe – Clean PSMA- 8mm Lesion – 15 cores taken – 5 unfavorable – 36cc PH - Hi All, Recently diagnosed with PC. Had the MRI, Biopsy and Pet PSMA done. Urologist suggested ERT + HT ( 6 mths). Started to research
72yo – Gleason 7 – (4+3)- Group 3 - PSA 6.456 – PHI 91.7 – Free 12.86% - Localized in Left Lobe – Clean PSMA- 8mm Lesion – 15 cores taken – 5 unfavorable – 36cc PH - Hi All, Recently diagnosed with PC. Had the MRI, Biopsy and Pet PSMA done. Urologist suggested ERT + HT ( 6 mths). Started to research
mijona
in
Prostate Cancer Network
5 months ago
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Randomised clinical trial - prophylactic radiation therapy to asymptomatic bone metastases improved survival
Prophylactic Radiation Therapy Versus Standard of Care for Patients With High-Risk Asymptomatic Bone Metastases: A Multicenter, Randomized Phase II Clinical Trial Authors: Erin F. Gillespie, MD, MPH https://orcid.org/0000-0002-1386-1542 gillespe@mskcc.org, Joanna C. Yang, MD, MPH, Noah J. Mathis, BA
Prophylactic Radiation Therapy Versus Standard of Care for Patients With High-Risk Asymptomatic Bone Metastases: A Multicenter, Randomized Phase II Clinical Trial Authors: Erin F. Gillespie, MD, MPH https://orcid.org/0000-0002-1386-1542 gillespe@mskcc.org, Joanna C. Yang, MD, MPH, Noah J. Mathis, BA
Graham49
in
Advanced Prostate Cancer
5 months ago
weaning off Fentanyl patches
I am on 25mcg Fentanyl patches for pain caused by a compression fracture on my T10 vertebrae due to radiation treatment for metastatic prostate cancer. I have been on painkillers for about 12 months now, beginning with morphine etc which caused intense constipation. I began about 9 months ago on 12 mcg
I am on 25mcg Fentanyl patches for pain caused by a compression fracture on my T10 vertebrae due to radiation treatment for metastatic prostate cancer. I have been on painkillers for about 12 months now, beginning with morphine etc which caused intense constipation. I began about 9 months ago on 12 mcg
Brightman
in
Pain Concern
5 months ago
Long time PRD sufferer.
Hi all. Let me introduce myself. My names Terry, I live in larne, Northern Ireland. 47 year old long time sufferer from the late affects of Pelvic radiation. Back in 1979 I had a rare cancer in my bladder, as a result I had chemotherapy and radiation therapy and had my bladder removed. As a result I've
Hi all. Let me introduce myself. My names Terry, I live in larne, Northern Ireland. 47 year old long time sufferer from the late affects of Pelvic radiation. Back in 1979 I had a rare cancer in my bladder, as a result I had chemotherapy and radiation therapy and had my bladder removed. As a result I've
Tel76
in
Pelvic Radiation Disease Association
5 months ago
Should Perineural Invasion (PNI) change my Radiation Treatment Plan
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Seminole0412
in
Advanced Prostate Cancer
5 months ago
Dexamethasone
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
Broseley
in
PMRGCAuk
5 months ago
Back in permanent AF and warfarin dose decrease
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
MarkS
in
AF Association
5 months ago
Radiation Sessions
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
AVOCADOtastes
in
SHARE Breast Cancer Support
5 months ago
itch after rafiotherapy
hi I had treatment for DCIS 4 months ago . Had breast conserving surgery then radiotherapy , i had a very bad radiation burn under my breast which eventually healed. Now I have intense ibtching and discolouration of skin under my breast . I do have large breasts and this doesn’t help . Does anyone
hi I had treatment for DCIS 4 months ago . Had breast conserving surgery then radiotherapy , i had a very bad radiation burn under my breast which eventually healed. Now I have intense ibtching and discolouration of skin under my breast . I do have large breasts and this doesn’t help . Does anyone
Caradomben
in
SHARE Breast Cancer Support
5 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
5 months ago
ASCO 2023: AI-Derived Digital Pathology Biomarker Predicts Benefit of Long-Term ADT with Radiotherapy in Localized High-Risk Prostate Cancer
https://www.urotoday.com/conference-highlights/asco-2023/asco-2023-prostate-cancer/144902-asco-2023-development-and-validation-of-an-ai-derived-digital-pathology-based-biomarker-to-predict-benefit-of-long-term-androgen-deprivation-therapy-with-radiotherapy-in-men-with-localized-high-risk-prostate-cancer-across-multiple-phase-iii-nrg-rtog-trials.html
https://www.urotoday.com/conference-highlights/asco-2023/asco-2023-prostate-cancer/144902-asco-2023-development-and-validation-of-an-ai-derived-digital-pathology-based-biomarker-to-predict-benefit-of-long-term-androgen-deprivation-therapy-with-radiotherapy-in-men-with-localized-high-risk-prostate-cancer-across-multiple-phase-iii-nrg-rtog-trials.html
zeitgeistxx
in
Advanced Prostate Cancer
5 months ago
Mini maze update.
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
waveylines
in
Atrial Fibrillation Support
5 months ago
PSA 6 months after RT
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
janebob99
in
Prostate Cancer Network
5 months ago
Lupron Injection denied by Medicare Advantage PPO plan
My husband will need Lupron injections monthly x4. Two before starting radiation, and 2 during radiation treatment. The insurance, Medicare Advantage PPO, denied it. Anyone successfully appealed the denial? Any suggestions from the group? I checked and Medicare part D covers Lupron for the treatment
My husband will need Lupron injections monthly x4. Two before starting radiation, and 2 during radiation treatment. The insurance, Medicare Advantage PPO, denied it. Anyone successfully appealed the denial? Any suggestions from the group? I checked and Medicare part D covers Lupron for the treatment
Inquisitive_one
in
Advanced Prostate Cancer
5 months ago
Discontinue all antioxidant supplements on early signs of biochemical recurrence?
The latest literature appears to indicate a PSA as low as 0.03, regardless of the multi-result dynamics is a reliable very early confirmation of biochemical recurrence. Maybe it's arguable some rare cases may "slip through" and stabilize without further treatment but data from the latest studies is
The latest literature appears to indicate a PSA as low as 0.03, regardless of the multi-result dynamics is a reliable very early confirmation of biochemical recurrence. Maybe it's arguable some rare cases may "slip through" and stabilize without further treatment but data from the latest studies is
jazj
in
Advanced Prostate Cancer
6 months ago
Are Lymph nodes a filter?
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Aldo62
in
Advanced Prostate Cancer
6 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
6 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
6 months ago
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