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Today, I joined CLLSA
I am writing this as a CLL patient with a history of this disease going back to 2008, when I was diagnosed through a 'simple' blood test taken during my yearly check-up. My Internist recommended that I start seeing an Oncologist/Hematologist about a few weeks after he 'discovered' my CLL. This I did.
I am writing this as a CLL patient with a history of this disease going back to 2008, when I was diagnosed through a 'simple' blood test taken during my yearly check-up. My Internist recommended that I start seeing an Oncologist/Hematologist about a few weeks after he 'discovered' my CLL. This I did.
lumdor
in
CLL Support
9 years ago
COPD free
Hi everyone left message yesterday but did not do it right, saw gp do not have COPD or ashma, and its down to anemia and low haemoglobin, told to come off all inhalers, and would you believe my breathing has dramatically improved, i am so annoyed as I have been on these inhalers for 1 year, now waiting
Hi everyone left message yesterday but did not do it right, saw gp do not have COPD or ashma, and its down to anemia and low haemoglobin, told to come off all inhalers, and would you believe my breathing has dramatically improved, i am so annoyed as I have been on these inhalers for 1 year, now waiting
angse
in
Lung Conditions Community Forum
9 years ago
The Future Role of FCR and new data on venetoclax and rituximab
Dear friends, This week on the CLL Society website we bring the second part of our interview with Professor Michael Hallek of Koln, Germany, the director of the German CLL Study Group and a major CLL researcher and thinker. He starts by discussing his “fast boat” adaptive trial strategy (similar in
Dear friends, This week on the CLL Society website we bring the second part of our interview with Professor Michael Hallek of Koln, Germany, the director of the German CLL Study Group and a major CLL researcher and thinker. He starts by discussing his “fast boat” adaptive trial strategy (similar in
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
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Cancer Genetics to provide comprehensive testing for global, multi-year, multi-center Clinical Trial for CLL; est $6M in revenue
No mention of what drug(s) will be trialled. Anyone know? http://www.nasdaq.com/press-release/cancer-genetics-inc-awarded-largest-clinical-trial-in-company-history-will-provide-comprehensive-20150630-00241 I've posted this because it's interesting that companies exist to specifically provide these
No mention of what drug(s) will be trialled. Anyone know? http://www.nasdaq.com/press-release/cancer-genetics-inc-awarded-largest-clinical-trial-in-company-history-will-provide-comprehensive-20150630-00241 I've posted this because it's interesting that companies exist to specifically provide these
AussieNeil
Partner
in
CLL Support
9 years ago
Legs weakness
Good morning to every one. I would like to ask if having emphysema has any thing to do with legs weakness. I have nearly gone over a few time, but this morning they gave up on me. I went like a bag of spuds. I also get red hot feet and ice cold feet, I had my spine fixed in 2000. So I thought me legs
Good morning to every one. I would like to ask if having emphysema has any thing to do with legs weakness. I have nearly gone over a few time, but this morning they gave up on me. I went like a bag of spuds. I also get red hot feet and ice cold feet, I had my spine fixed in 2000. So I thought me legs
Stu0151
in
Lung Conditions Community Forum
9 years ago
Rituximab hailed as a breakthrough for millions with Chronic Fatigue
A couple of days ago Sue (wroxham) mentioned yuppie flu in response to Ducksoup's post 'Fatigue, frustration and Community':https://healthunlocked.com/cllsupport/posts/131979723/fatigue-frustration-and-community So I was very interested to read two New Scientist articles from early this month, commencing
A couple of days ago Sue (wroxham) mentioned yuppie flu in response to Ducksoup's post 'Fatigue, frustration and Community':https://healthunlocked.com/cllsupport/posts/131979723/fatigue-frustration-and-community So I was very interested to read two New Scientist articles from early this month, commencing
AussieNeil
Partner
in
CLL Support
9 years ago
Kathryn's 8.6 mile Fun Run for CLL Support Association
Well done Kathryn for successfully completing the Great Midland Fun Run on the 31st May, in a time of 1hr 46mins over a distance of 8.6miles.
Kathryn has raised £317.00 for Chronic Lymphocytic Leukaemia Support Association (CLLSA) You can continue to support Kathryn via her just giving page
Well done Kathryn for successfully completing the Great Midland Fun Run on the 31st May, in a time of 1hr 46mins over a distance of 8.6miles.
Kathryn has raised £317.00 for Chronic Lymphocytic Leukaemia Support Association (CLLSA) You can continue to support Kathryn via her just giving page
HAIRBEAR_UK
Administrator
in
CLL Support
9 years ago
For Refractory CLL, Venetoclax's (ABT-199's) Complete Response Rate Is Tops
[i]"The combination therapy of the novel anti-BCL-2 drug venetoclax (formerly ABT-199/GDC-0199, AbbVie, Genentech) and rituximab shows encouraging results in the treatment of refractory chronic lymphocytic leukemia (CLL), according to early results from an ongoing clinical trial. The complete response
[i]"The combination therapy of the novel anti-BCL-2 drug venetoclax (formerly ABT-199/GDC-0199, AbbVie, Genentech) and rituximab shows encouraging results in the treatment of refractory chronic lymphocytic leukemia (CLL), according to early results from an ongoing clinical trial. The complete response
AussieNeil
Partner
in
CLL Support
9 years ago
Treanda/ Bendamustine--First treatment for CLL ?
After 4-1/2 years, it looks like I'm ready for treatment. His concern was not with the counts, but the significant and continuing enlargement of lymph nodes in the porta hepatis and surrounding the celiac axis. 10cm x 7cm in size and others. Wants to begin treatment using Treanda ( Bendamustine) twice
After 4-1/2 years, it looks like I'm ready for treatment. His concern was not with the counts, but the significant and continuing enlargement of lymph nodes in the porta hepatis and surrounding the celiac axis. 10cm x 7cm in size and others. Wants to begin treatment using Treanda ( Bendamustine) twice
Soflajoe
in
CLL Support
9 years ago
Biologic or Immune Therapies for CLL
Hi Friends, This week’s update on the CLL Society website http://cllsociety.org is my unscripted recordings on biologic or immunotherapies . I start by reviewing my take on the good and bad of the well known and novel antibodies directed against our B cells by targeting its surface marker CD20. These
Hi Friends, This week’s update on the CLL Society website http://cllsociety.org is my unscripted recordings on biologic or immunotherapies . I start by reviewing my take on the good and bad of the well known and novel antibodies directed against our B cells by targeting its surface marker CD20. These
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Up and down Sugar level
I am taking insulin Human Mixtard 24-0-16, Tablets Zoryl3 1-0-0 and Pioglit15mg 0-0-1. My FBS 90 to 135, But PPBS shoots up to 225-295. but came down after 1 hour to 120-140. Is it OK? my Hba1c is 7.5
I am taking insulin Human Mixtard 24-0-16, Tablets Zoryl3 1-0-0 and Pioglit15mg 0-0-1. My FBS 90 to 135, But PPBS shoots up to 225-295. but came down after 1 hour to 120-140. Is it OK? my Hba1c is 7.5
govindareddy
in
Diabetes India
9 years ago
Copd Symptons
Do any of you ever experience hot flushes. Other than SOB, Im not familiar with symptoms, being newly diagnosed
Do any of you ever experience hot flushes. Other than SOB, Im not familiar with symptoms, being newly diagnosed
beeperoni
in
Lung Conditions Community Forum
9 years ago
IBS - pain under left rib coming and going - misery!
Hi all, I have only just recently been diagnosed with IBS - though I think I have probably had it for a long time…! Right now - its causing me misery…… And yes - its much worse in the evenings. I tend to get relief from it overnight. I am also a real stickler for not taking too many meds, I don't
Hi all, I have only just recently been diagnosed with IBS - though I think I have probably had it for a long time…! Right now - its causing me misery…… And yes - its much worse in the evenings. I tend to get relief from it overnight. I am also a real stickler for not taking too many meds, I don't
Hevatreva
in
IBS Network
9 years ago
Yoga and Diabetes
Hi Everyone, I am new to this forum. I have been a diabetic for the past 13 years (I am 38) and recently started my journey in the natural way. Let me explain by natural: Yoga: I started doing yoga regularly and I also completed 108 Surya Namaskara yesterday! I follow SVYASA yoga and a mix of meditation
Hi Everyone, I am new to this forum. I have been a diabetic for the past 13 years (I am 38) and recently started my journey in the natural way. Let me explain by natural: Yoga: I started doing yoga regularly and I also completed 108 Surya Namaskara yesterday! I follow SVYASA yoga and a mix of meditation
iamverysweet
in
Diabetes India
9 years ago
When your genome costs less than your iPhone: The beautiful, terrifying future of DNA sequencing
Jo Best has written an excellent article for TechRepublic on how we managed to reduce the cost of DNA sequencing from $100 million in 2001 to under $10,000 now and how companies like 23andMe can offer tests that provide information on a range of traits for $99. Well worth reading, even if you skip the
Jo Best has written an excellent article for TechRepublic on how we managed to reduce the cost of DNA sequencing from $100 million in 2001 to under $10,000 now and how companies like 23andMe can offer tests that provide information on a range of traits for $99. Well worth reading, even if you skip the
AussieNeil
Partner
in
CLL Support
9 years ago
25 and COPD
This is my first post. I notice that this says British Lung Foundation, however I am American so hopefully Ill be welcomed. Well heres my story... After I turned 25 last December my father had a heart attack and was diagnosed with severe COPD. As of right now he is okay. Some days are worse than others
This is my first post. I notice that this says British Lung Foundation, however I am American so hopefully Ill be welcomed. Well heres my story... After I turned 25 last December my father had a heart attack and was diagnosed with severe COPD. As of right now he is okay. Some days are worse than others
Hpocket89
in
Lung Conditions Community Forum
9 years ago
Killer T Cell: The Cancer Assassin (Video!)
Ever wondered how our T lymphocytes hunt down and kill cancer cells? This Cambridge University video shows how our cytotoxic T cells (the ones with a CD8 marker and hence called CD8+ T cells ), check whether a cell in the blood is cancerous or infected and if so destroys it. Unfortunately for us, our
Ever wondered how our T lymphocytes hunt down and kill cancer cells? This Cambridge University video shows how our cytotoxic T cells (the ones with a CD8 marker and hence called CD8+ T cells ), check whether a cell in the blood is cancerous or infected and if so destroys it. Unfortunately for us, our
AussieNeil
Partner
in
CLL Support
9 years ago
Renal Bone Disease after Kidney Transplant
Has anyone got renal Bone Disease after Kidney Transplant. I have terrible pain in my right hip when I am sitting and walking. My walking is very slow to what it was before. I have an appointment in july to see a doctor at the renal Bone disease clinic. Has anyone had any experience of having the
Has anyone got renal Bone Disease after Kidney Transplant. I have terrible pain in my right hip when I am sitting and walking. My walking is very slow to what it was before. I have an appointment in july to see a doctor at the renal Bone disease clinic. Has anyone had any experience of having the
sandwiches
in
LUPUS UK
9 years ago
Chronic Fatigue Patients Suffer 3 Major Brain Abnormalities; Findings May Lead To Clearer Diagnosis
Hello As well as Fibromyalgia and peripheral neuropathy I also suffer from Chronic Fatigue Syndrome [CFS]. I found the article below which explains that CFS sufferers have different brains to 'normals'. http://www.medicaldaily.com/chronic-fatigue-patients-suffer-3-major-brain-abnormalities-findings-may-lead-clearer
Hello As well as Fibromyalgia and peripheral neuropathy I also suffer from Chronic Fatigue Syndrome [CFS]. I found the article below which explains that CFS sufferers have different brains to 'normals'. http://www.medicaldaily.com/chronic-fatigue-patients-suffer-3-major-brain-abnormalities-findings-may-lead-clearer
Sandy247
in
Fibromyalgia Action UK
9 years ago
Vitamin A debate 😊
Hi everyone Looking in my local pharmacy, I didn't see vitamin A. I'm wondering how many of you are taking it. Also how much are you taking? Do you have to order it? I Know your not supposed to take over 10,000 safety. I was thinking cod liver oil. Anyone use that? Do you feel it's helping you
Hi everyone Looking in my local pharmacy, I didn't see vitamin A. I'm wondering how many of you are taking it. Also how much are you taking? Do you have to order it? I Know your not supposed to take over 10,000 safety. I was thinking cod liver oil. Anyone use that? Do you feel it's helping you
rubyred777
in
Lung Conditions Community Forum
9 years ago
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