At the recommendation of one our members I called UPENN and asked to speak with a covering hematologist. I received a call fairly quickly, explained the situation and the physician was able to get into my patient portal, read the report and compare it to my 2011node biopsy. He does not think it’s Richters because I am negative for bcl-6, but does agree that I picked up an aggressive marker. He said the FISH and molecular testing will provide more info especially in regard to treatment. He agrees I need to see Dr. Nasta sooner than my June 3rd appointment but felt it won’t be before the results are back. Relieved it’s not RS, but still worried, cause I still have no idea what I’m dealing with.
I want to thank everyone for all the educational links and great recommendations. I have taken today view video, read articles and I feel better equipped to tackle this next round because I have a game plan now. I still plan to seek a second opinion with a lymphoma specialist and have received a number of physician recommendations here. I will keep you posted!
Pushing on, fighting the good fight and so grateful for the support from this group!