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Copd and panic breathing.
My hubby has severe copd and has been in hospital with chest infection but his breathlessness is made worse when he starts to panic,the hospital has put him on 1mg of lorazepam to take when he needs to ,has this been any help to other sufferers,he has also started a course of Erdosteine which he takes
My hubby has severe copd and has been in hospital with chest infection but his breathlessness is made worse when he starts to panic,the hospital has put him on 1mg of lorazepam to take when he needs to ,has this been any help to other sufferers,he has also started a course of Erdosteine which he takes
Dazbazbez
in
Lung Conditions Community Forum
5 years ago
MD Anderson/Mayo or Peter MacCallum for treatment?
Hi all, My husband is just diagnosed with CLL with WBC at 49, Platelet at 77, enlarged spleen 20 cm and enlarged liver 17 cm. 70% lymphocytes in bone marrow. The FISH test is not available yet until next week so the treatment plan is also not available. But seem that he’s on Stage IV under RAI classification
Hi all, My husband is just diagnosed with CLL with WBC at 49, Platelet at 77, enlarged spleen 20 cm and enlarged liver 17 cm. 70% lymphocytes in bone marrow. The FISH test is not available yet until next week so the treatment plan is also not available. But seem that he’s on Stage IV under RAI classification
writepa
in
CLL Support
5 years ago
Global blood supply runs low - and that's a worry for those with CLL
A study funded by the National Institutes of Health reports that [i]"Nearly two-thirds of countries worldwide have an insufficient supply of blood for transfusion, according to findings from a recent modeling study including 195 countries and territories.[/i] [i]:[/i] [i]Shortages are attributable to
A study funded by the National Institutes of Health reports that [i]"Nearly two-thirds of countries worldwide have an insufficient supply of blood for transfusion, according to findings from a recent modeling study including 195 countries and territories.[/i] [i]:[/i] [i]Shortages are attributable to
AussieNeil
Partner
in
CLL Support
5 years ago
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What is ERIC and Why Should We Care?
Dr. Stamatopolous is one of its directors and in these short videos he talks about ERIC in general and its first big meeting. He then discusses his research on the “cognitive dissonance” we all know so well when we are diagnosed with an incurable cancer and then told we need no treatment. Next he explains
Dr. Stamatopolous is one of its directors and in these short videos he talks about ERIC in general and its first big meeting. He then discusses his research on the “cognitive dissonance” we all know so well when we are diagnosed with an incurable cancer and then told we need no treatment. Next he explains
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Night sweats ONION SCENT
My wife has noted that my night sweats come with a strong onion scent in the air while I sleep ..I detected it on my clothes if I work and get a lather going I have smelled it also this is a new one on me I shower 2 times a day and am embarrassed by the New aroma I hope
My wife has noted that my night sweats come with a strong onion scent in the air while I sleep ..I detected it on my clothes if I work and get a lather going I have smelled it also this is a new one on me I shower 2 times a day and am embarrassed by the New aroma I hope
lacroixx1
in
CLL Support
5 years ago
Fibro or Chronic Fatigue Syndrome
Doctor said i have suspected Fibromyalgia. Symtoms are general tiredness/fatigue/dizzyness/clumsiness/lack of concentration I don't have muscle aches/ pains/ feeling unable to move. Everyone with fibro seems to have these pain/muscle related symptoms. Can anyone shed any light on this. Is it more likely
Doctor said i have suspected Fibromyalgia. Symtoms are general tiredness/fatigue/dizzyness/clumsiness/lack of concentration I don't have muscle aches/ pains/ feeling unable to move. Everyone with fibro seems to have these pain/muscle related symptoms. Can anyone shed any light on this. Is it more likely
CharmingMan
in
Fibromyalgia Action UK
5 years ago
Patient Advisory Board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA)
Hello, I wanted to give all of you a heads up (and a head start) on an exciting opportunity that Savvy Co-op is going to release on Monday. The co-op has an opportunity to build an advisory board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA). wAIHA can often present
Hello, I wanted to give all of you a heads up (and a head start) on an exciting opportunity that Savvy Co-op is going to release on Monday. The co-op has an opportunity to build an advisory board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA). wAIHA can often present
lankisterguy
Volunteer
in
CLL Support
5 years ago
Prednisalone and levothyroxine
Hi ,I've have post before about the bad time I have on prednisalone, like no sleep at all ,eating for wales ,shaking ,over the top talking ,my brain going as fast as a train ,adrenal glands jumping about ,I can stick this out for five days ,but recently I've been on them for six week that includes the
Hi ,I've have post before about the bad time I have on prednisalone, like no sleep at all ,eating for wales ,shaking ,over the top talking ,my brain going as fast as a train ,adrenal glands jumping about ,I can stick this out for five days ,but recently I've been on them for six week that includes the
Alice70
in
Lung Conditions Community Forum
5 years ago
Jakavi a Janus kinase inhibitor ; does anyone know about this Med for the treatment of CLL
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
LovecuresCLL
in
CLL Support
5 years ago
Recovery after polyp removal and D and C?
Hi everyone, just looking for some advice please. I had a hysteroscopy last Friday and D and C where they removed a polyp also under GA. A kyleena coil was inserted also. This was agreed in advance to help with very heavy and painful periods with a lot of midcycle pelvic pain. I was expecting a diagnosis
Hi everyone, just looking for some advice please. I had a hysteroscopy last Friday and D and C where they removed a polyp also under GA. A kyleena coil was inserted also. This was agreed in advance to help with very heavy and painful periods with a lot of midcycle pelvic pain. I was expecting a diagnosis
Hidden
in
Healthy Happy Woman
5 years ago
Bi clonal CLL
When diagnosed with CLL in May 2018, the FISH test reported I have 2 different B cells that are multiplying, making my CLL bi clonal instead of mono clonal. I wish I could get feedback on others results of their bi clonal CLL. The test results said that my time to treatment may be shorter, but nothing
When diagnosed with CLL in May 2018, the FISH test reported I have 2 different B cells that are multiplying, making my CLL bi clonal instead of mono clonal. I wish I could get feedback on others results of their bi clonal CLL. The test results said that my time to treatment may be shorter, but nothing
wcm242
in
CLL Support
5 years ago
Critical Molecular Pathways in CLL Therapy
This is an overview of where we are in CLL treatment and where the research may be most needed at this point in time. Lengthy, with good illus. and delineates targets of current treatments. https://molmed.biomedcentral.com/articles/10.1186/s10020-018-0001-1 Sorry, if this is a duplicate. Conclusion
This is an overview of where we are in CLL treatment and where the research may be most needed at this point in time. Lengthy, with good illus. and delineates targets of current treatments. https://molmed.biomedcentral.com/articles/10.1186/s10020-018-0001-1 Sorry, if this is a duplicate. Conclusion
cllady01
Volunteer
in
CLL Support
5 years ago
One Day at a Time
Hi CLL People, It's been a while since I posted (4 years while to be more precise) and in that time I've been doing exactly as above - taking it 1 day at a time. I have little to report - my bloods have remained pretty constant and my hospital doctor (I have no Consultant) said at our last meeting that
Hi CLL People, It's been a while since I posted (4 years while to be more precise) and in that time I've been doing exactly as above - taking it 1 day at a time. I have little to report - my bloods have remained pretty constant and my hospital doctor (I have no Consultant) said at our last meeting that
mister_Ian_NE
in
CLL Support
5 years ago
“CLL & Heartburn” ??
Weird question but ... the original way I was diagnosed with CLL was because I was having some very strange “heart burn” type of symptoms. And my doctor did a range of test - thyroid, barium swallow & a CBC - everything came back ok except a small amount of acid reflux in the barium swallow & my WCC
Weird question but ... the original way I was diagnosed with CLL was because I was having some very strange “heart burn” type of symptoms. And my doctor did a range of test - thyroid, barium swallow & a CBC - everything came back ok except a small amount of acid reflux in the barium swallow & my WCC
Meamiaam10
in
CLL Support
5 years ago
Test result meaning
Just a question on of my results. The last two land shows a lot of things out of whack. But one is anion gap with a reading of 2 and LL which is critical (panic). I was diagnosed with CLL in February 2018. Started Gayza in September thru December. Was about 16 treatments. Labs did not improve. I have
Just a question on of my results. The last two land shows a lot of things out of whack. But one is anion gap with a reading of 2 and LL which is critical (panic). I was diagnosed with CLL in February 2018. Started Gayza in September thru December. Was about 16 treatments. Labs did not improve. I have
Mamawof25
in
CLL Support
5 years ago
A Conversation with Dr Tam about Zanubrutinib: A Novel BTK Inhibitor
How does zanubrutinib differ from ibrutinib in pharmacokinetics and target occupancy? Zanubrutinib has a more-specific target binding profile than ibrutinib. It binds to BTK at least as potently as ibrutinib. Zanubrutinib has fewer off-target effects on related enzymes, including the epidermal growth
How does zanubrutinib differ from ibrutinib in pharmacokinetics and target occupancy? Zanubrutinib has a more-specific target binding profile than ibrutinib. It binds to BTK at least as potently as ibrutinib. Zanubrutinib has fewer off-target effects on related enzymes, including the epidermal growth
Jm954
Administrator
in
CLL Support
5 years ago
Adding Venetoclax to Obinutuzumab Prolongs Progression-Free Survival in Previously Untreated CLL
[i]Dated 1st September 2019[/i] In a phase III trial of patients with previously untreated CLL a
nd co-existing comorbidities, a fixed-duration regimen
of obinutuzumab plus venetoclax reduced the risk of disease progression and death by 65%, compared with obinutuzumab plus chlorambucil. The findings
[i]Dated 1st September 2019[/i] In a phase III trial of patients with previously untreated CLL a
nd co-existing comorbidities, a fixed-duration regimen
of obinutuzumab plus venetoclax reduced the risk of disease progression and death by 65%, compared with obinutuzumab plus chlorambucil. The findings
Jm954
Administrator
in
CLL Support
5 years ago
Using nanopore sequencing to look at the diagnostic CLL genome.
This is a bit sciencie but might be of interest to some and looks promising technology, allowing several things to be tested for at the same time. [i]Nanopore sequencing is a third generation approach used in the sequencing of biopolymers in the form of DNA or RNA. Using nanopore sequencing, a single
This is a bit sciencie but might be of interest to some and looks promising technology, allowing several things to be tested for at the same time. [i]Nanopore sequencing is a third generation approach used in the sequencing of biopolymers in the form of DNA or RNA. Using nanopore sequencing, a single
Jm954
Administrator
in
CLL Support
5 years ago
Seeking to talk to others with IBS FLARE UPS.
Started again with IBS pain. I have suffered from IBS FOR THE PAST 20 YEARS on and off and it is always triggered by stress. I had a severe episode in February and after a week it calmed down. Now as I am fifty years old, the stress of finding work experience in order to qualify as a Wills and Probate
Started again with IBS pain. I have suffered from IBS FOR THE PAST 20 YEARS on and off and it is always triggered by stress. I had a severe episode in February and after a week it calmed down. Now as I am fifty years old, the stress of finding work experience in order to qualify as a Wills and Probate
Roukaya
in
IBS Network
5 years ago
Oncoplex Cancer Gene Panel test
I just got the results of 2 new tests back. One is called an Oncoplex Cancer Gene Panel and the results said : “The sample tested is positive for copy loss of portions of chromosome 5 (includes CD74 and RPS14) and a low level variant in ASLX1 “ I trie to look this up, but was confused by the article
I just got the results of 2 new tests back. One is called an Oncoplex Cancer Gene Panel and the results said : “The sample tested is positive for copy loss of portions of chromosome 5 (includes CD74 and RPS14) and a low level variant in ASLX1 “ I trie to look this up, but was confused by the article
t2aa
in
CLL Support
5 years ago
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