Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,349 public posts
Filter results
starting W&W
So I recently had two visits at the Mayo Clinic and had genetic testing along with ct scans. I’m “normal” karyotype, unmutated igh, unmutated tp53. I’m being transferred from my hematologist to a Cll specialist and in general…I feel pretty lucky. One thing my doc said though was that I was likely to
So I recently had two visits at the Mayo Clinic and had genetic testing along with ct scans. I’m “normal” karyotype, unmutated igh, unmutated tp53. I’m being transferred from my hematologist to a Cll specialist and in general…I feel pretty lucky. One thing my doc said though was that I was likely to
Snakejaw
in
CLL Support
2 years ago
Relapse of CLL
Has anyone who had relapsed CLL had strong CLL symptoms prior to that diagnosis? I have blood work in a few weeks but my CLL symptoms have been very prevalent for a month now, and was curious if those were signs of having the CLL diagnosis again?
Has anyone who had relapsed CLL had strong CLL symptoms prior to that diagnosis? I have blood work in a few weeks but my CLL symptoms have been very prevalent for a month now, and was curious if those were signs of having the CLL diagnosis again?
Jvander11
in
CLL Support
2 years ago
PIPS and COPD
Hi everyone. Will my PIPS be affected if I still smoke? I’m trying so hard to give up by slowly tapering off and have reduced my smoking by two thirds with the method I came up with after numerous attempts over 20 years to stop. My cravings for nicotine were just as bad every day even after two years
Hi everyone. Will my PIPS be affected if I still smoke? I’m trying so hard to give up by slowly tapering off and have reduced my smoking by two thirds with the method I came up with after numerous attempts over 20 years to stop. My cravings for nicotine were just as bad every day even after two years
eisie72
in
COPD Friends
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hurray, Three Cheers for Venclexta & Rituxan
After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, including 8 rounds of chemo/immunotherapy, I have been found to have no residual cancer cells after a bone marrow biopsy at Dana Farber on July 21, 2022! Three cheers for 6 doses of Rituxan and 24 months of Venclexta!! I have
After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, including 8 rounds of chemo/immunotherapy, I have been found to have no residual cancer cells after a bone marrow biopsy at Dana Farber on July 21, 2022! Three cheers for 6 doses of Rituxan and 24 months of Venclexta!! I have
KevinCLLITP
in
CLL Support
2 years ago
Advanced blood tests at 3 months after diagnosis.
Since the rush at the hematologists at the clinic where I will possibly be treated is sometimes big and now is the vacation season, I could not make an appointment earlier than August 2nd to see my hematologist (then he returns from vacation possibly). So I decided to get ahead of the events and show
Since the rush at the hematologists at the clinic where I will possibly be treated is sometimes big and now is the vacation season, I could not make an appointment earlier than August 2nd to see my hematologist (then he returns from vacation possibly). So I decided to get ahead of the events and show
Yalokin
in
CLL Support
2 years ago
Тhe first study to provide a comprehensive description of the epidemiology and global burden of CLL worldwide
quote CLL-related incidence, death, DALY burden and corresponding change trends CLL-related incidence and its change trends Globally, during the last 30 years, CLL-related incidence cases increased significantly from 40,537 in 1990 to 103,467 in 2019, with age-standardized incidence rate (ASIR) rising
quote CLL-related incidence, death, DALY burden and corresponding change trends CLL-related incidence and its change trends Globally, during the last 30 years, CLL-related incidence cases increased significantly from 40,537 in 1990 to 103,467 in 2019, with age-standardized incidence rate (ASIR) rising
Yalokin
in
CLL Support
2 years ago
very low ferritin with high iron saturation
I’m CLL , on Imbruvica since December 2022. Just received new labs. ferritin 13.00 ng/ml (normal range 24-336) Iron saturation 41% (normal range It appears contradictory to me. Iron level normal Iron binding capacity normal. Any insight is appreciated. Thanks
I’m CLL , on Imbruvica since December 2022. Just received new labs. ferritin 13.00 ng/ml (normal range 24-336) Iron saturation 41% (normal range It appears contradictory to me. Iron level normal Iron binding capacity normal. Any insight is appreciated. Thanks
mr1971
in
CLL Support
2 years ago
Peritoneal Dialysis - Week Four After Surgery
Following up on my first two posts following PD Catheter Surgery: https://healthunlocked.com/nkf-dialysis/posts/148305786/peritoneal-dialysis-week-two-after-surgery https://healthunlocked.com/nkf-dialysis/posts/148337395/peritoneal-dialysis-week-three-after-surgery I received a call late Friday from
Following up on my first two posts following PD Catheter Surgery: https://healthunlocked.com/nkf-dialysis/posts/148305786/peritoneal-dialysis-week-two-after-surgery https://healthunlocked.com/nkf-dialysis/posts/148337395/peritoneal-dialysis-week-three-after-surgery I received a call late Friday from
RonZone
in
Kidney Dialysis
2 years ago
Richter transformation of chronic lymphocytic leukaemia: a British Society for Haematology Good Practice Paper
Richter's - we all dread that word and try not to think about it but if the worst does happen then it's good to be well informed, preferably beforehand. This short paper from the British Society for Haematology was written by the leading CLL/Richter's doctors in the UK and sets out best practice for
Richter's - we all dread that word and try not to think about it but if the worst does happen then it's good to be well informed, preferably beforehand. This short paper from the British Society for Haematology was written by the leading CLL/Richter's doctors in the UK and sets out best practice for
Jm954
Administrator
in
CLL Support
2 years ago
Covid treatments in the UK - clinical guide
Some recent contributors e.g. https://healthunlocked.com/cllsupport/posts/148237718/antivirals-access-in-uk?utm_campaign=cllsupport&utm_medium=email&utm_source=notification&utm_term=new-daily+digest have highlighted ongoing issues with getting early access to treatments after being diagnosed with Covid
Some recent contributors e.g. https://healthunlocked.com/cllsupport/posts/148237718/antivirals-access-in-uk?utm_campaign=cllsupport&utm_medium=email&utm_source=notification&utm_term=new-daily+digest have highlighted ongoing issues with getting early access to treatments after being diagnosed with Covid
bennevisplace
in
CLL Support
2 years ago
New to CLL so confused
Hi! My husband is currently being diagnosed with CLL 55 years old Very healthy Had a routine blood test with WBC at 17,000 And doctor said Probably CLL sent us to Oncologist Oncologist did Flow and called to say positive Waiting on FISH test My husband does not feel one bit sick All other blood
Hi! My husband is currently being diagnosed with CLL 55 years old Very healthy Had a routine blood test with WBC at 17,000 And doctor said Probably CLL sent us to Oncologist Oncologist did Flow and called to say positive Waiting on FISH test My husband does not feel one bit sick All other blood
Puglove55
in
CLL Support
2 years ago
High Alkaline Phosphatase
I had bloodwork recently, for a physician other than my CLL Specialist, who told me today that one of the abnormal readings was Alkaline Phosphatase. He suggested that I see a Gastroenterologist. My reading was 222. I know it is a liver enzyme, and on a recent six month visit with my local CLL doctor
I had bloodwork recently, for a physician other than my CLL Specialist, who told me today that one of the abnormal readings was Alkaline Phosphatase. He suggested that I see a Gastroenterologist. My reading was 222. I know it is a liver enzyme, and on a recent six month visit with my local CLL doctor
wizzard166
in
CLL Support
2 years ago
unsure about diagnosis.
I am 77 and just had spirometry test and been diagnosed with severe COPD. Chest X-ray normal, sputum normal, oxygen 99%., no crackles or wheezing. No breathlessness just morning and evening chesty cough a few times which sometimes means expelling clear phlegm but not always. I have not been prescribed
I am 77 and just had spirometry test and been diagnosed with severe COPD. Chest X-ray normal, sputum normal, oxygen 99%., no crackles or wheezing. No breathlessness just morning and evening chesty cough a few times which sometimes means expelling clear phlegm but not always. I have not been prescribed
Cruise1
in
Lung Conditions Community Forum
2 years ago
2 months on Calquence
Did it take longer than 2 months on Calquence for any of you to start seeing your ALC decline and your RBC increase (after that initial spike and fall)? I'm 60 days into this and after the initial ALC spike and RBC drop, they really haven't budged since (not increasing anymore but just staying high)
Did it take longer than 2 months on Calquence for any of you to start seeing your ALC decline and your RBC increase (after that initial spike and fall)? I'm 60 days into this and after the initial ALC spike and RBC drop, they really haven't budged since (not increasing anymore but just staying high)
lpac
in
CLL Support
2 years ago
My daughter has chronic fatigue syndrome
My daughter has chronic fatigue syndrome. It seems to have developed folowing Glandular fever 9 months to her first symptoms. However after 3.5 years, the syndrome suddenly became very severe and caused disability of her arms and legs ( 7 months ago) . anybody else suffering with this?
My daughter has chronic fatigue syndrome. It seems to have developed folowing Glandular fever 9 months to her first symptoms. However after 3.5 years, the syndrome suddenly became very severe and caused disability of her arms and legs ( 7 months ago) . anybody else suffering with this?
Bonnie123456
in
Pain Concern
2 years ago
Richter's syndrome - Update- Lecture by pathologist Elias Campo
Hello everyone Yesterday I had the pleasure of attending a conference given by the pathologist PR Elias Campo at the Oncopole hospital in Toulouse. The topic was to talk about LLC and above all the main topic was the Richter Transformation. It was the first time that this transformation was discussed
Hello everyone Yesterday I had the pleasure of attending a conference given by the pathologist PR Elias Campo at the Oncopole hospital in Toulouse. The topic was to talk about LLC and above all the main topic was the Richter Transformation. It was the first time that this transformation was discussed
Priss69
in
CLL Support
2 years ago
what provoked my CLL?
Educating myself about CLL, I read that prolonged stimulation of the immune system in combination with genetic mutations and / or predisposition leads to CLL. I see myself as the ideal candidate for this disease. In a study about 10 years ago, it was found that one of the little proven risk factors
Educating myself about CLL, I read that prolonged stimulation of the immune system in combination with genetic mutations and / or predisposition leads to CLL. I see myself as the ideal candidate for this disease. In a study about 10 years ago, it was found that one of the little proven risk factors
Yalokin
in
CLL Support
2 years ago
CoQ10 and NADH for chronic fatigue
I've been doing a little reading on these two supplements as treatments for Chronic Fatigue. Just a few articles I found through a google search. Seems like this might be promising approach but I also don't know anyone that's tried it. I'm hoping someone here could chime in... In addition to chronic
I've been doing a little reading on these two supplements as treatments for Chronic Fatigue. Just a few articles I found through a google search. Seems like this might be promising approach but I also don't know anyone that's tried it. I'm hoping someone here could chime in... In addition to chronic
Fleur29
in
Foggy's "Invisible Illness" Support
2 years ago
lungs having hissy fit
Anybody else finding themselves really, really tight and short of breath in last week or two???? I'm assuming pollen & mould spores are to blame( my usual triggers), but breathing is a constant daily battle. My Relvar 184/22 doesn't seem to be doing much, am taking Fexofenadine 180 daytime and montelukast
Anybody else finding themselves really, really tight and short of breath in last week or two???? I'm assuming pollen & mould spores are to blame( my usual triggers), but breathing is a constant daily battle. My Relvar 184/22 doesn't seem to be doing much, am taking Fexofenadine 180 daytime and montelukast
Hidden
in
Lung Conditions Community Forum
2 years ago
Forgot to take prograf
I took my prograf 930am Thursday night but forgot to take them Friday morning didn't realise until 8oclock Friday night then took morning dose back to normal time 2day have i done much harm forgetting and has this happened to anyone else worried it might have harmed my liver
I took my prograf 930am Thursday night but forgot to take them Friday morning didn't realise until 8oclock Friday night then took morning dose back to normal time 2day have i done much harm forgetting and has this happened to anyone else worried it might have harmed my liver
Shaunwood
in
British Liver Trust
2 years ago
1
...
14
15
16
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1439 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest