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I have incurable lung cancer and currently undergoing immunotherapy treatment. Am due a ct staging scan on Monday and see the consultant in about 3 weeks. If the consultant says they are stopping the immunotherapy, what alternative treatments could be offered? Or will they just say that there's nothing
I have incurable lung cancer and currently undergoing immunotherapy treatment. Am due a ct staging scan on Monday and see the consultant in about 3 weeks. If the consultant says they are stopping the immunotherapy, what alternative treatments could be offered? Or will they just say that there's nothing
arthurpops
in
The Roy Castle Lung Cancer Foundation
3 days ago
Exercise right after Zometa infusion?
My husband (diagnosed May 2024) is on Abiraterone and Lupron and receives Zometa infusions monthly. What are people’s experiences with working out right after an infusion? He hasn’t done it to date but he’s scheduled for both one day this week. According to what I find on Google, it is not recommended
My husband (diagnosed May 2024) is on Abiraterone and Lupron and receives Zometa infusions monthly. What are people’s experiences with working out right after an infusion? He hasn’t done it to date but he’s scheduled for both one day this week. According to what I find on Google, it is not recommended
Prelki
in
Advanced Prostate Cancer
4 days ago
PSMA PET Showing No PSMA Avid Metastases Again
Hello Everyone - I have update my profile with my husband's history. I think it is complete - but here is a quick recap: He was originally diagnosed on January 5, 2022 with a PSA of 1041.5 with mets to pelvic lymph node and bone. He underwent successful Triplet Therapy in 2022. He continued with Lupron
Hello Everyone - I have update my profile with my husband's history. I think it is complete - but here is a quick recap: He was originally diagnosed on January 5, 2022 with a PSA of 1041.5 with mets to pelvic lymph node and bone. He underwent successful Triplet Therapy in 2022. He continued with Lupron
FaithOverFear104
in
Advanced Prostate Cancer
4 days ago
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Hello I am posting in the hope that it might help some of you…. I live in the UK and was diagnosed with HGSOC grade 4 in Jan 22. I have never been NED. I received first line chemo + Avastin, interval, suboptimal surgery then commenced Olaparib. Avastin continued for the permitted time and Olaparib
Hello I am posting in the hope that it might help some of you…. I live in the UK and was diagnosed with HGSOC grade 4 in Jan 22. I have never been NED. I received first line chemo + Avastin, interval, suboptimal surgery then commenced Olaparib. Avastin continued for the permitted time and Olaparib
Alfiepop
in
My Ovacome
4 days ago
Abiraterone, Prednisone, Zometa – Without Lupron?
Hi everyone, Is anyone here on Abiraterone and Prednisone with Zometa infusions but without Lupron? My dad's oncologist recently mentioned that he "doesn't need Lupron," which I don’t fully understand. He received his first Lupron shot in July and was scheduled for another in October until his oncologist
Hi everyone, Is anyone here on Abiraterone and Prednisone with Zometa infusions but without Lupron? My dad's oncologist recently mentioned that he "doesn't need Lupron," which I don’t fully understand. He received his first Lupron shot in July and was scheduled for another in October until his oncologist
SKKALH528
in
Advanced Prostate Cancer
6 days ago
Mum passed away from extensive stage SCLC - tormented by what ifs
Hi there, wondered if I could ask for your advice please? My Mum passed away at the beginning of September from extensive stage small cell lung cancer. It all happened so quickly. She went to the GP at the end of June for the first time, and was told she had a chest infection. Had a chest X-Ray done
Hi there, wondered if I could ask for your advice please? My Mum passed away at the beginning of September from extensive stage small cell lung cancer. It all happened so quickly. She went to the GP at the end of June for the first time, and was told she had a chest infection. Had a chest X-Ray done
diond85
in
The Roy Castle Lung Cancer Foundation
6 days ago
If ADT helps tame all Prostate tumours , why is Chemo given as soon as some organ met detected ?
Just trying to educate myself. I have read posts that when any organ met like bladder or lung etc are detected , chemo is immediately begun. Would the hormone therapy not shrink those too just like it does in bones ?
Just trying to educate myself. I have read posts that when any organ met like bladder or lung etc are detected , chemo is immediately begun. Would the hormone therapy not shrink those too just like it does in bones ?
Tinkudi
in
Advanced Prostate Cancer
6 days ago
No cancer found from TURP tissue ???
My husband had TURP a week ago because of years of issues with peeing . He was supposed to get this done last year but was diagnosed with stage 4 cancer , you may read my profile for his treatment and current PSA . The urologist said they would test all the tissue they take out . We were called by our
My husband had TURP a week ago because of years of issues with peeing . He was supposed to get this done last year but was diagnosed with stage 4 cancer , you may read my profile for his treatment and current PSA . The urologist said they would test all the tissue they take out . We were called by our
positive-thinking
in
Advanced Prostate Cancer
7 days ago
Cancer that doesn't express PSMA
Hello everyone - thanks in advance for any thoughts or opinions! Here's the abbreviated version of my story: My father was diagnosed at 51 and died at 52 of metastatic prostate cancer (think his PSA at time of diagnosis was in the 40s, but cannot remember for sure). I've been diligent with PSA and
Hello everyone - thanks in advance for any thoughts or opinions! Here's the abbreviated version of my story: My father was diagnosed at 51 and died at 52 of metastatic prostate cancer (think his PSA at time of diagnosis was in the 40s, but cannot remember for sure). I've been diligent with PSA and
Trasmc
in
Advanced Prostate Cancer
7 days ago
Not impressed with Oncologist
After Prof. Peter Hoskin team consultant visit today Sep 20. 24, Leuprolide injection and bicalutamide were recommended for 6 months before 20 IMRT sessions somewhere in Jan 25, continuing with ADT for up to 2-3 years, but needs monitoring and adjusted accordinglyAfter that, brachy boost was recommended
After Prof. Peter Hoskin team consultant visit today Sep 20. 24, Leuprolide injection and bicalutamide were recommended for 6 months before 20 IMRT sessions somewhere in Jan 25, continuing with ADT for up to 2-3 years, but needs monitoring and adjusted accordinglyAfter that, brachy boost was recommended
Hotoneii
in
Advanced Prostate Cancer
7 days ago
Can we try Enzalutamide when Abiraterone failed , Just before chemotherapy
Hello all , MY father has failed Abiraterone and planned to have PSMA PET scan(on 25th Sept), after that chemotherapy will start in few days . Now he is experiencing constant back and leg pain which relieves only after taking pain killer. So, can we take Enzalutamide for this period before chemotherapy
Hello all , MY father has failed Abiraterone and planned to have PSMA PET scan(on 25th Sept), after that chemotherapy will start in few days . Now he is experiencing constant back and leg pain which relieves only after taking pain killer. So, can we take Enzalutamide for this period before chemotherapy
jeetu_g27
in
Advanced Prostate Cancer
8 days ago
Metastatic Prostate Cancer Resisting to Treatments
My dad (55) is diagnosed with metastatic prostate cancer that spread to his bones (mainly pelvic and ribs). He was put on Lupron, Docetaxel and Nubeqa. He made improvements in the first 4 months. PSA dropped to almost 0. However, once he started radiation and completed that, his conditions were getting
My dad (55) is diagnosed with metastatic prostate cancer that spread to his bones (mainly pelvic and ribs). He was put on Lupron, Docetaxel and Nubeqa. He made improvements in the first 4 months. PSA dropped to almost 0. However, once he started radiation and completed that, his conditions were getting
Aliannado
in
Advanced Prostate Cancer
8 days ago
PSMA pet scan results
Just had my scan on 9/17/24, prior to my scan my PSA was 0.80. I'll be speaking with my MO on 9/23. Any feedback would be helpful. Thanks EXAM DESCRIPTION: 18F-piflufolastat (PYLARIFY) PSMA targeted PET/CT COMPARISON: PET PSMA dated November 7, 2023 INDICATION: History of prostate cancer status
Just had my scan on 9/17/24, prior to my scan my PSA was 0.80. I'll be speaking with my MO on 9/23. Any feedback would be helpful. Thanks EXAM DESCRIPTION: 18F-piflufolastat (PYLARIFY) PSMA targeted PET/CT COMPARISON: PET PSMA dated November 7, 2023 INDICATION: History of prostate cancer status
Rfs1975
in
Advanced Prostate Cancer
9 days ago
PSA acting very weird
Recurrent prostate cancer after RP in 2018...though seemingly not metastatic...yet. Haven't done treatment. My story is in the profile and bio. Anyway, PSA got as high as the 9's earlier this year...then fell to 7.7 in July...and now in September registers 3.4. No idea what's happening or why.
Recurrent prostate cancer after RP in 2018...though seemingly not metastatic...yet. Haven't done treatment. My story is in the profile and bio. Anyway, PSA got as high as the 9's earlier this year...then fell to 7.7 in July...and now in September registers 3.4. No idea what's happening or why.
Nittany
in
Advanced Prostate Cancer
9 days ago
Any advice stage 4 lung cancer
Hi, looking for any advice or suggestions or positive stories to help us. My dad, who is 72 years old, has been on a roller coaster journey in the last couple of months. Was seen beginning of July as he was coughing up blood, they started doing some tests that were going through quite quickly but it
Hi, looking for any advice or suggestions or positive stories to help us. My dad, who is 72 years old, has been on a roller coaster journey in the last couple of months. Was seen beginning of July as he was coughing up blood, they started doing some tests that were going through quite quickly but it
Dadsecretary
in
The Roy Castle Lung Cancer Foundation
9 days ago
Step 2 - mpMRI done, results not good, I'm scared now
Hi all, I've been enjoying following many of your stories and it has helped me prepare for this journey. Thanks to everyone who graciously shares and responds here. My original post and bio tell my story, but I have to add this new information from my mpMRI this morning. Here it is: IMPRESSION:
Hi all, I've been enjoying following many of your stories and it has helped me prepare for this journey. Thanks to everyone who graciously shares and responds here. My original post and bio tell my story, but I have to add this new information from my mpMRI this morning. Here it is: IMPRESSION:
RazorSaw
in
Advanced Prostate Cancer
10 days ago
3 months post ADT ending checkup
Just completed my checkup after ending ADT in May. My doctor was looking to schedule a PSMA scan to build a baseline. Since I was diagnosed Gleason 9 there is a chance that cancer could reoccur without expressing PSA. ---- well my oncologist talked directly with the insurance advisors (I consulted a
Just completed my checkup after ending ADT in May. My doctor was looking to schedule a PSMA scan to build a baseline. Since I was diagnosed Gleason 9 there is a chance that cancer could reoccur without expressing PSA. ---- well my oncologist talked directly with the insurance advisors (I consulted a
chefjlu
in
Advanced Prostate Cancer
10 days ago
"Pros and Cons of Various Forms of Radiation Therapy vs Radical Prostatectomy for Men in Their 50s"
I have been diagnosed with intermediate non-favorable risk prostate cancer. Currently, we are conducting Decipher testing along with PSMA PET and genetic testing. My father is a prostate cancer survivor; he had brachytherapy 12 years ago, then experienced a recurrence at 78 and underwent intensity-modulated
I have been diagnosed with intermediate non-favorable risk prostate cancer. Currently, we are conducting Decipher testing along with PSMA PET and genetic testing. My father is a prostate cancer survivor; he had brachytherapy 12 years ago, then experienced a recurrence at 78 and underwent intensity-modulated
Seat15c
in
Prostate Cancer Network
10 days ago
Apricot seeds/B17 and Prostate Cancer
Yesterday my Optometrist buddy said he found that apricot seeds prevent prostate cancer but I do not see anything substantial on it- anyone else?
Yesterday my Optometrist buddy said he found that apricot seeds prevent prostate cancer but I do not see anything substantial on it- anyone else?
jackwfrench
in
Advanced Prostate Cancer
10 days ago
Nonmetastatic castrate resistant prostate cancer
I have been on hormone therapy for 10 years with stage 3 non-metastatic prostate cancer. Now I am very close to doubling the PSA < 10 months. Question. What kind of therapy should I expect when I reach a non-metastatic castrate-resistant form?
I have been on hormone therapy for 10 years with stage 3 non-metastatic prostate cancer. Now I am very close to doubling the PSA < 10 months. Question. What kind of therapy should I expect when I reach a non-metastatic castrate-resistant form?
Varsin
in
Advanced Prostate Cancer
11 days ago
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