HELP NEEDED

[billyboy3]

First, as one of the longest living men with prostate cancer, I will update you. in 1997, I was disanosted with PC, having a Gleeson 7 later upgraded to an 8 but who cares, my pas was 4.9 at this time. I had my prostate out in 1998, reoccurrence by way of psa went up t o5.5. Surgery was done, all was supposed to be good but six moths later, rising psa.

Since then, I have been on IHT, compose of lupron injections-monthly as we KNOW that the effectiveness of Lupron over time, decreases-as common sense would preclude, the further from the date of injection, the more other factors can diminish its effectiveness, ie physical weights age, etc. all play a part in how much is left to actually do the job. The drug maker also refused to release any studies showing us to be wrong so I stand by going 30 days at a time.

I also took either casodex or Fluetimide pills, along with Dutastreride for maximum effect. I started casodex 4 or so days before each start up with lupron, then stay on all 3 throughout each cycle.

I would go on a 3 to 4 month cycle, starting at pas of 6 maximum and stopping when close to nadir of .1/.2 , or later up to 1. This cycle repeated itself, with the off cycles getting shorter and oncycles getting longer.

I have had 43 rounds thus far-yes that many and still here, so know well the side effects, big breasts, etc. but the fact it is, this drug combo has kept me alive for 26 years until last November, when a break thru happened and my psa continues to go up even while on cycle.

The only additive was my love of milk and I drink about a 2/3 to 1 quart a day. I drink skim milk due to fat contact.

I have been phycially active my entire life, never smoked, drank until hit 35, then cut back to almost zero. I eat regular food, have way too much stress in my life, but do live large, having had 3 lives stuck into one already. I just came back from a trip alone to France and Spain-a little tough at times when I got tired-damn drugs, but I made it intact and getting my feet into the mediterrean sea was on my bucket list so getting close to doing it all.

More to follow, but I got lucky, did ALL of my drugs, kept living and refused to let go, quit, or become a victim to my cancer. My plan is to end my life killing it before it gets me-if I get that much. more time, which is not doubtful.

Ok, ask me questions of any kind and sorry it has taken me so long to respond. It has not been easy at times to carry my dead pals on my back as they died and I kept living, with the same scores etc.

I owed it to them and all other man before and after, to keep at it as long as I can, so my next post, you can see where I need help at the next level.

Thanks to all and I hope this give you guys reason to keep at it, life is short, we never know when, but we do know how we can maximize the life we have, so LIVE LARGE MEN!!!

billy

[Ahk1]

interesting post for sure and very helpful to others. Any Mets? If yes, when in the journey and where are locations. How often you did imaging scans and did it ever redirect your treatments? Lots of luck.

[j-o-h-n]

So Bill, how old are you?

Good Luck, Good Health and Good Humor.

j-o-h-n

[SeosamhM]

Keep on keepin' on, Billyboy! A great tale....and I understand the survivor's guilt. All we can do is keep living for those guys that didn't. - Joe M.

[billyboy3]

exactly! I lost two of my best pals, etc so my battle is to keep st it for them and the other Guys who get diagnosed too late jr had the cursed 9/10 Gleason.

Hopefully I can knock a few more years yet but lost so much this last six months waiting for our system to wake up.

LIVE LARGE IS MY logo. I just got back from 12 days in France and Spain by myself no tour guide, so there is still some fight left!!! Barcelona was beyond great!!!