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A BIG THANKYOU To All
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
primrose71
in
Lung Conditions Community Forum
6 months ago
Prostrate Removed, PSA increasing
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
BlessedParchy
in
Advanced Prostate Cancer
6 months ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
4 months ago
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SBRT process just starting
Hello and THANK YOU to all you brave and extremely knowledgeable folks for posting your priceless experiences and expertise here and to the brave spouses and partners as well. This Network has helped keep me sane since I was diagnosed with PC in 2023 and I could not decide on which way to deal with
Hello and THANK YOU to all you brave and extremely knowledgeable folks for posting your priceless experiences and expertise here and to the brave spouses and partners as well. This Network has helped keep me sane since I was diagnosed with PC in 2023 and I could not decide on which way to deal with
Info_Search_JMA
in
Prostate Cancer Network
6 months ago
Second Line Hormonal
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
Cabazitaxel Questions
I have switched from Docetaxel to Cabazitaxel. Should I still take the Grastofil injections?
I have switched from Docetaxel to Cabazitaxel. Should I still take the Grastofil injections?
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
Spot Radiation before Pluvicto?
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
6 months ago
Curious about Prednisone dosage.
Warriors If you do not mind telling me, I am curious about how many of you on Zytiga/Abiraterone take a 5 mg dosage of Prednisone , and how many take some other dosage level. I know most of your also getting Lupron injections and some are taking other medications along with the Zytiga/Abiraterone
Warriors If you do not mind telling me, I am curious about how many of you on Zytiga/Abiraterone take a 5 mg dosage of Prednisone , and how many take some other dosage level. I know most of your also getting Lupron injections and some are taking other medications along with the Zytiga/Abiraterone
85236442968
in
Advanced Prostate Cancer
6 months ago
Elevated Diastolic Blood Pressure & Thyroid?
I’ve read that thyroid issues can increase diastolic blood pressure while systolic remains normal. I’ve been seeing a slight increase / trend with this. Has anyone else seen this and it meant levothyroxine increase needed?
I’ve read that thyroid issues can increase diastolic blood pressure while systolic remains normal. I’ve been seeing a slight increase / trend with this. Has anyone else seen this and it meant levothyroxine increase needed?
THoa2022
in
Thyroid UK
6 months ago
Feeling like Chemo is too Hard
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
delia2
in
My Ovacome
6 months ago
My Cancer Journey Repost
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
6 months ago
men’s freedom condom catheter
since requiring a catheter about a year ago due to total incontinence ten years after RP and SRT, I’ve been unable to stop leakage around Foley catheter. This has necessitated using multiple depend briefs and guards daily. so I’m about to try Men’s Freedom condom catheter and wonder if any warriors
since requiring a catheter about a year ago due to total incontinence ten years after RP and SRT, I’ve been unable to stop leakage around Foley catheter. This has necessitated using multiple depend briefs and guards daily. so I’m about to try Men’s Freedom condom catheter and wonder if any warriors
Break60
in
Advanced Prostate Cancer
6 months ago
after EBRT …monitoring?
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
Jpburns
in
Advanced Prostate Cancer
6 months ago
Myo-inositol increasing TSH?
Hello, wondering if anyone has experience of taking myo-inositol and any impact on their TSH please? I’ve been taking it for 4 months for PCOS, TSH was 1.1 just before I started and is now 4.8 (T3 and T4 within range). I read up on it before I started and the (limited) research indicated it could be
Hello, wondering if anyone has experience of taking myo-inositol and any impact on their TSH please? I’ve been taking it for 4 months for PCOS, TSH was 1.1 just before I started and is now 4.8 (T3 and T4 within range). I read up on it before I started and the (limited) research indicated it could be
mountaingoat83
in
Thyroid UK
6 months ago
Caffeic acid phenethyl ester (CAPE) is an ingredient in bee propolis. See below for invitro and mice evidence for inhibition AR-V7 by CAPE
Human studies needed. Caffeic acid phenethyl ester suppresses the expression of androgen receptor variant 7 via inhibition of CDK1 and AKT Ying-Yu Kuo, Chieh Huo, Chia-Yang Li & Chih-Pin Chuu Cancer Gene Therapy (2024) doi: 10.1038/s41417-024-00753-z Abstract Androgen receptor (AR) splice variant
Human studies needed. Caffeic acid phenethyl ester suppresses the expression of androgen receptor variant 7 via inhibition of CDK1 and AKT Ying-Yu Kuo, Chieh Huo, Chia-Yang Li & Chih-Pin Chuu Cancer Gene Therapy (2024) doi: 10.1038/s41417-024-00753-z Abstract Androgen receptor (AR) splice variant
Graham49
in
Advanced Prostate Cancer
6 months ago
Three month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
ToolBeltZia
in
Prostate Cancer Network
6 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
6 months ago
BLA for Subcutaneous Nivolumab Accepted by the FDA for Advanced/Metastatic Solid Tumors
A biologics license application (BLA) has been accepted by the FDA seeking approval of nivolumab (Opdivo) co-formulated with Halozyme’s proprietary recombinant human hyaluronidase (rHuPH20; subcutaneous nivolumab) for adult patients with solid tumors eligible for previously approved nivolumab indications
A biologics license application (BLA) has been accepted by the FDA seeking approval of nivolumab (Opdivo) co-formulated with Halozyme’s proprietary recombinant human hyaluronidase (rHuPH20; subcutaneous nivolumab) for adult patients with solid tumors eligible for previously approved nivolumab indications
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Uh... Oh... New Phase Awaits?
Dx 12/09, G4+3 Surgery 01/10 – Failed SRT 2nd quarter 2011 – Failed. Avodart worked for awhile. Eventually HT (Lupron + Casodex) in mid 2013. Worked great. Since then lengthy HT vacations 12/19/22-6/22/23 ---Orgovyx. Worked well so was able to stop...BUT NOW Starting to look like castrate resistance
Dx 12/09, G4+3 Surgery 01/10 – Failed SRT 2nd quarter 2011 – Failed. Avodart worked for awhile. Eventually HT (Lupron + Casodex) in mid 2013. Worked great. Since then lengthy HT vacations 12/19/22-6/22/23 ---Orgovyx. Worked well so was able to stop...BUT NOW Starting to look like castrate resistance
compiler
in
Advanced Prostate Cancer
6 months ago
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