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Barry
Hi fellow warriors, diagnosed with advanced prostate cancer 15 months ago have been on adt 6 month injections plus xtandi both have stoped working had radio therapy on my back last month for leg pain, now have numb chin pain have refused radio thetapy on head and chemo therapy, my gleeson score is 8
Hi fellow warriors, diagnosed with advanced prostate cancer 15 months ago have been on adt 6 month injections plus xtandi both have stoped working had radio therapy on my back last month for leg pain, now have numb chin pain have refused radio thetapy on head and chemo therapy, my gleeson score is 8
littlemount
in
Advanced Prostate Cancer
2 months ago
Dad’s 6 weekly psa shows a little rise compared to the one at 3 weeks - grateful for any thoughts.
Dad , 83 , was diagnosed in May with PSA 18 and bone mets as per PSMA scan. Initially the plan was to do lupron and he was started on bicalutamide 100 mg daily , which he took for 3 weeks uptil 7th June. But then we decided to go with relugolix and not lupron and the bicalutamide was stopped.
Dad , 83 , was diagnosed in May with PSA 18 and bone mets as per PSMA scan. Initially the plan was to do lupron and he was started on bicalutamide 100 mg daily , which he took for 3 weeks uptil 7th June. But then we decided to go with relugolix and not lupron and the bicalutamide was stopped.
Tinkudi
in
Advanced Prostate Cancer
2 months ago
Does taking chemo upfront reduce chances of the cancer morphing into more aggressive variants in the future ?
My PSA at diagnosis was relatively low at 21 and scans showed multiple bone mets. My oncologist said that puts me at a greater risk of the cancer morphing Into a more aggressive one in the future compared to someone who had come with a psa of 400-500. Is this correct ? Would doing chemotherapy
My PSA at diagnosis was relatively low at 21 and scans showed multiple bone mets. My oncologist said that puts me at a greater risk of the cancer morphing Into a more aggressive one in the future compared to someone who had come with a psa of 400-500. Is this correct ? Would doing chemotherapy
Simpson80
in
Advanced Prostate Cancer
2 months ago
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Was told if my prostate cancer hadn't metastasized, a lot could be done or cured. Otherwise, he had nothing that he could do. Two weeks later; Dr. Head told me that it is mediatizing. So we started to leave; he stopped us to say that there are drugs to slow the progression down. That my portion would
Was told if my prostate cancer hadn't metastasized, a lot could be done or cured. Otherwise, he had nothing that he could do. Two weeks later; Dr. Head told me that it is mediatizing. So we started to leave; he stopped us to say that there are drugs to slow the progression down. That my portion would
reloader
in
Advanced Prostate Cancer
2 months ago
new member
Hello, I am here because my husband just got diagnosed with prostate cancer with metastasis to lymph nodes. Gleason 9, PSA 56, he is 54 years old. We are both in shock still and real scared. Did not expect to hear stage 4. Trying to get as much info as possible how to deal with this new reality. He was
Hello, I am here because my husband just got diagnosed with prostate cancer with metastasis to lymph nodes. Gleason 9, PSA 56, he is 54 years old. We are both in shock still and real scared. Did not expect to hear stage 4. Trying to get as much info as possible how to deal with this new reality. He was
Orange95
in
Advanced Prostate Cancer
2 months ago
ADT reduced Zytiga and PCa variants
Been on Zytiga over a year, taken with Xgeva and Lupron. During the two pill test period of Zytiga, no food - 2hrs and + 1hr, my T and PSA became undetectable. Convinced the powers to continue with 2 pills to possibly reduce side effects and prolong effectiveness. T and PSA undetectable after a year
Been on Zytiga over a year, taken with Xgeva and Lupron. During the two pill test period of Zytiga, no food - 2hrs and + 1hr, my T and PSA became undetectable. Convinced the powers to continue with 2 pills to possibly reduce side effects and prolong effectiveness. T and PSA undetectable after a year
Wgly
in
Advanced Prostate Cancer
2 months ago
stabbing pain inProstate
Good morning to all I have been on Erleada and Degarelix for 15 months without much side effects ( except for hot flashes and tiredness) My PSA last month was 0.13 and my Test was 1.0 Gleason 4+3 Metastatic with diffused bone metastases. For the last few days I feel some stabbing pain in my prostate
Good morning to all I have been on Erleada and Degarelix for 15 months without much side effects ( except for hot flashes and tiredness) My PSA last month was 0.13 and my Test was 1.0 Gleason 4+3 Metastatic with diffused bone metastases. For the last few days I feel some stabbing pain in my prostate
Raminagrobis
in
Advanced Prostate Cancer
2 months ago
4 month ADT holiday
I’ve been given 4 months ADT holiday with no treatment Then more blood tests to see how things are going. I was finding it hard to concentrate when reading as I was so tired. I’m already feeling more awake after 2 days of stopping Abiraterone and my balance seems to be improving. Doing some gym work
I’ve been given 4 months ADT holiday with no treatment Then more blood tests to see how things are going. I was finding it hard to concentrate when reading as I was so tired. I’m already feeling more awake after 2 days of stopping Abiraterone and my balance seems to be improving. Doing some gym work
Rob11111
in
Advanced Prostate Cancer
2 months ago
To PET or not to PET
I have been on nubeqa and orgovyx for over six months now. Blood draw this week shows my PSA level at <.10 beginning 30 days of starting those two drugs. My MO suggested I have a regular PET scan. No need for a PSMA scan because my PSA is basically undetectable. I am having trouble rationalizing the
I have been on nubeqa and orgovyx for over six months now. Blood draw this week shows my PSA level at <.10 beginning 30 days of starting those two drugs. My MO suggested I have a regular PET scan. No need for a PSMA scan because my PSA is basically undetectable. I am having trouble rationalizing the
Jvaughan0
in
Advanced Prostate Cancer
2 months ago
PSA 1.175 Down from 21, 6 weeks ago. Is this good ?
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
Simpson80
in
Advanced Prostate Cancer
2 months ago
Walk with Us - don't forget to sign up!
📢 Get ready for an unforgettable day out! Join Ovacome at Cannon Hill Park in Birmingham, on 28 September 2024 to “Walk With Us” 🚶🏻♀️✨ This free community walk is the grand finale to our Gynaecological Cancer Awareness Month campaign and will be an excellent opportunity to meet up with others affected
📢 Get ready for an unforgettable day out! Join Ovacome at Cannon Hill Park in Birmingham, on 28 September 2024 to “Walk With Us” 🚶🏻♀️✨ This free community walk is the grand finale to our Gynaecological Cancer Awareness Month campaign and will be an excellent opportunity to meet up with others affected
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
New guidelines to prevent skeletal events in metastatic prostate cancer
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
Maxone73
in
Advanced Prostate Cancer
2 months ago
Surgery or not Surgery
I have stage 3 lung cancer, I have no symptoms and have no issues. I have 100% lung capacity. I have had 3 infusions of immunotherapy and chemotherapy. The tumour has shrunk 60/70% I have a choice. Radiotherapy and chemotherapy for 30 days. Removal of left lung. Both have risks.
I have stage 3 lung cancer, I have no symptoms and have no issues. I have 100% lung capacity. I have had 3 infusions of immunotherapy and chemotherapy. The tumour has shrunk 60/70% I have a choice. Radiotherapy and chemotherapy for 30 days. Removal of left lung. Both have risks.
SCUBA1965
in
The Roy Castle Lung Cancer Foundation
2 months ago
new trial for mCRPCa: ²²⁵Ac-rhPSMA-10.1 actinium
"The trial will enrol male patients with metastatic castrate-resistant prostate cancer who have responded to prior lutetium 177 (¹⁷⁷Lu)-PSMA therapy." https://www.clinicaltrialsarena.com/news/blue-earth-prostate-cancer-trial/ it's phase 1/2 but actinium is very interesting especially against micro
"The trial will enrol male patients with metastatic castrate-resistant prostate cancer who have responded to prior lutetium 177 (¹⁷⁷Lu)-PSMA therapy." https://www.clinicaltrialsarena.com/news/blue-earth-prostate-cancer-trial/ it's phase 1/2 but actinium is very interesting especially against micro
Maxone73
in
Advanced Prostate Cancer
2 months ago
Xtandi advice
I have just been prescribed Xtandi as my APCa has progressed into a couple of lymph nodes and multiple skeletal areas. I am seeking advice about this drug such as when should I take it and things to be aware of. I am back on Eligard and just finished 4 weeks of biclutimide. Any advice or experience you
I have just been prescribed Xtandi as my APCa has progressed into a couple of lymph nodes and multiple skeletal areas. I am seeking advice about this drug such as when should I take it and things to be aware of. I am back on Eligard and just finished 4 weeks of biclutimide. Any advice or experience you
Doseydoe
in
Advanced Prostate Cancer
2 months ago
Success with PSMA-lutamide
Hi Everyone, I might get long winded in this, so the brief summary is: rechallenged with Pluvicto after a 4-year break while enhancing PSMA expression with darolutamide. PSA dropped from 44 to 3 after two treaments. I have lymph-node metastatic disease with neuroendocrine differentiation. I was on
Hi Everyone, I might get long winded in this, so the brief summary is: rechallenged with Pluvicto after a 4-year break while enhancing PSMA expression with darolutamide. PSA dropped from 44 to 3 after two treaments. I have lymph-node metastatic disease with neuroendocrine differentiation. I was on
TeleGuy
in
Advanced Prostate Cancer
2 months ago
First ADT holiday
25 July 2024. First ADT (hormone therapy) holiday since Dec22 ADT started 5Dec 2022 Leg weakness Started lifting weights etc Abiraterone started Aug 2023 + noticeable cognitive impairment
25 July 2024. First ADT (hormone therapy) holiday since Dec22 ADT started 5Dec 2022 Leg weakness Started lifting weights etc Abiraterone started Aug 2023 + noticeable cognitive impairment
Rob11111
in
Advanced Prostate Cancer
2 months ago
prostate cancer that does not produce psa
Hi everyone. My dad’s PSA has always been low, so when he was diagnosed, we were very shocked. His team checks his PSA, although PSMA have been more telling for him. His PSA today is the highest it has ever been at 17. His last PSMA was better than the one before. Is it possible for prostate cancer
Hi everyone. My dad’s PSA has always been low, so when he was diagnosed, we were very shocked. His team checks his PSA, although PSMA have been more telling for him. His PSA today is the highest it has ever been at 17. His last PSMA was better than the one before. Is it possible for prostate cancer
Concerneddaughter123
in
Advanced Prostate Cancer
2 months ago
biopsy
Is there any advantage to a prostate biopsy after initial radiation and 3/4 year of ADT…..? Salvage high dose brachytherapy is being considered and a third prostate biopsy has just been done. What might they be looking for…..placement,grade,Gleason?
Is there any advantage to a prostate biopsy after initial radiation and 3/4 year of ADT…..? Salvage high dose brachytherapy is being considered and a third prostate biopsy has just been done. What might they be looking for…..placement,grade,Gleason?
Tommyj2
in
Advanced Prostate Cancer
2 months ago
Recently diagnosed lower left lobe cancer
I don't know the type of cancer yet. I had a bronchoscopy, but they were unable to get a tissue sample. I then I had a positive pet scan. I've seen my surgeon and am scheduled for late August ti to have a lower left lung lobectomy. I don't know the cancer type or stage at this point. I've been told
I don't know the type of cancer yet. I had a bronchoscopy, but they were unable to get a tissue sample. I then I had a positive pet scan. I've seen my surgeon and am scheduled for late August ti to have a lower left lung lobectomy. I don't know the cancer type or stage at this point. I've been told
Began713
in
Lung Cancer Support
2 months ago
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