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Nottingham health and well being event
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
4 months ago
Uro visit post bone scan
Hello everyone, having one foot into the club, After PSA 46 and MRI showing contained growth but not 100% sure, today bone scan is confirmed as negative.Uro still suspects APC, whether contained or not, wants a biopsy on Monday 17th. I started a strict vegan diet and extra gym days plus other diet interventions
Hello everyone, having one foot into the club, After PSA 46 and MRI showing contained growth but not 100% sure, today bone scan is confirmed as negative.Uro still suspects APC, whether contained or not, wants a biopsy on Monday 17th. I started a strict vegan diet and extra gym days plus other diet interventions
Hotoneii
in
Advanced Prostate Cancer
4 months ago
Xtandi/Orgovyx Combo & Heart Rate
My MO added Xtandi to my Orgovyx regimen in late January. I am oligometastatic - one lymph node - and PSA is 0.07 with testosterone at 9.63. I am not castrate resistant. I was wondering if anyone else has experienced slowing heart rate (bradycardia) on this combo. (I also take Myrbetriq which may
My MO added Xtandi to my Orgovyx regimen in late January. I am oligometastatic - one lymph node - and PSA is 0.07 with testosterone at 9.63. I am not castrate resistant. I was wondering if anyone else has experienced slowing heart rate (bradycardia) on this combo. (I also take Myrbetriq which may
Explorer08
in
Advanced Prostate Cancer
4 months ago
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Docetaxal chemotherapy
I have had prostate cancer since 2017. First I had radiation and then Lupron for three years. When my PSA started to rise I took abiraterone and Lupron for 3 more years and was undetectable. It started to rise again to 1.78. Then I was put on Xtandi but after a week I developed a full body rash. When
I have had prostate cancer since 2017. First I had radiation and then Lupron for three years. When my PSA started to rise I took abiraterone and Lupron for 3 more years and was undetectable. It started to rise again to 1.78. Then I was put on Xtandi but after a week I developed a full body rash. When
Gern
in
Advanced Prostate Cancer
4 months ago
Younger man with prostate cancer
Hi there, Apparently, there has been an increase in prevalence in men under 50 being diagnosed with prostate cancer. I am a journalist investigating a piece on why this is happening for a national newspaper. I am looking for British clinicians who might want to comment on this, any interesting research
Hi there, Apparently, there has been an increase in prevalence in men under 50 being diagnosed with prostate cancer. I am a journalist investigating a piece on why this is happening for a national newspaper. I am looking for British clinicians who might want to comment on this, any interesting research
Lubel12
in
Prostate Cancer Network
4 months ago
chemotherapy or something better?
hello. so I just had one week of radiation on my pelvic bone. And one day on my shoulder. From the MRI it shows the prostate cancer in the prostate isn’t spreading and actually getting smaller while the prostate cancer in my bones is actively spreading. On the CT scan it showed a new tumor unsure if
hello. so I just had one week of radiation on my pelvic bone. And one day on my shoulder. From the MRI it shows the prostate cancer in the prostate isn’t spreading and actually getting smaller while the prostate cancer in my bones is actively spreading. On the CT scan it showed a new tumor unsure if
BonnieKlyde
in
Advanced Prostate Cancer
22 days ago
PSA Rising
RP 2 years and four months ago. PSA went from <.02 to currently .27, Testosterone at about 600+ Since surgery, there has been no intervention. It looks like it is time to take action. Does the group have any suggestions?
RP 2 years and four months ago. PSA went from <.02 to currently .27, Testosterone at about 600+ Since surgery, there has been no intervention. It looks like it is time to take action. Does the group have any suggestions?
Gulfrider
in
Prostate Cancer Network
4 months ago
where to buy drugs
Ok, thanks boys, now please tell me the daily dosage of Xtandi and docetaxel and if anybody knows where I can buy these two drugs in the US and the cost please. I cannot even get into see a medical oncologist for months here and have already lost six months watching as my psa has skyrocketed~ You
Ok, thanks boys, now please tell me the daily dosage of Xtandi and docetaxel and if anybody knows where I can buy these two drugs in the US and the cost please. I cannot even get into see a medical oncologist for months here and have already lost six months watching as my psa has skyrocketed~ You
billyboy3
in
Advanced Prostate Cancer
4 months ago
CTscan due to high risk Prostate cancer
CTscan for newly found high risk Prostate cancer also came back with a SUV of 21.6 for Paritod gland and 21.8 for Prostate gland. Bones clear. Anyone have a high Paritod SUV on their scan and did it end up being cancer also?
CTscan for newly found high risk Prostate cancer also came back with a SUV of 21.6 for Paritod gland and 21.8 for Prostate gland. Bones clear. Anyone have a high Paritod SUV on their scan and did it end up being cancer also?
Grandpa79
in
Advanced Prostate Cancer
4 months ago
Interpreting blood tests
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
Mike58
in
Advanced Prostate Cancer
4 months ago
LUPRON CASODEX FAILURE NOW WHAT
After 26 years, my combo IHT has finally failed. My psa started to go up while unicycle-a first, in November, pas rose to 8, since then and after a disaster of my cancer set up here, my pas has gone to 20. My testosterone has gone up from around 3 max to over 9 so no idea how or why this happened while
After 26 years, my combo IHT has finally failed. My psa started to go up while unicycle-a first, in November, pas rose to 8, since then and after a disaster of my cancer set up here, my pas has gone to 20. My testosterone has gone up from around 3 max to over 9 so no idea how or why this happened while
billyboy3
in
Advanced Prostate Cancer
4 months ago
HELP NEEDED
First, as one of the longest living men with prostate cancer, I will update you. in 1997, I was disanosted with PC, having a Gleeson 7 later upgraded to an 8 but who cares, my pas was 4.9 at this time. I had my prostate out in 1998, reoccurrence by way of psa went up t o5.5. Surgery was done, all was
First, as one of the longest living men with prostate cancer, I will update you. in 1997, I was disanosted with PC, having a Gleeson 7 later upgraded to an 8 but who cares, my pas was 4.9 at this time. I had my prostate out in 1998, reoccurrence by way of psa went up t o5.5. Surgery was done, all was
billyboy3
in
Advanced Prostate Cancer
4 months ago
Thank you
I stumbled on this forum about 15 to 18 months ago. Just to show you how little I knew and how clueless I was I had no idea there was run of the mill prostrate cancer or an advanced form. I just knew I had prostrate cancer and needed to make a decision - surgery or radiation. I stumbled through this
I stumbled on this forum about 15 to 18 months ago. Just to show you how little I knew and how clueless I was I had no idea there was run of the mill prostrate cancer or an advanced form. I just knew I had prostrate cancer and needed to make a decision - surgery or radiation. I stumbled through this
Mgtd
in
Advanced Prostate Cancer
4 months ago
False positives
All is not cancer that lights up on the scans! In February, a PSMA PET/CT found nothing abnormal, just a minimal PSMA signal from rib 10 right. But the NaF PET/CT: "On the right, rib 10 has abnormal PET uptake (SUVmax 27.3). The same rib uptake can be seen in previous bone scintigraphy and as a minimal
All is not cancer that lights up on the scans! In February, a PSMA PET/CT found nothing abnormal, just a minimal PSMA signal from rib 10 right. But the NaF PET/CT: "On the right, rib 10 has abnormal PET uptake (SUVmax 27.3). The same rib uptake can be seen in previous bone scintigraphy and as a minimal
Purple-Bike
in
Advanced Prostate Cancer
4 months ago
"Deluxe Treatment" Anything else?
Hi all this is my first post. I have just entered my story in my profile. I was diagnosed and treated in 2021 and had immediate recurrence with stage 4 Olig Metastatic in 1 pelvic node and left hip. Had an excellent response to triplet therapy and was very happy with my treatment plan as I new next to
Hi all this is my first post. I have just entered my story in my profile. I was diagnosed and treated in 2021 and had immediate recurrence with stage 4 Olig Metastatic in 1 pelvic node and left hip. Had an excellent response to triplet therapy and was very happy with my treatment plan as I new next to
InqPers
in
Advanced Prostate Cancer
4 months ago
Nubeqa vs Zytiga?
Hi all, got notice last evening that Nubeqa will no longer be covered by my drug provider. Apologies I should have said this in original post: What happened is Nova Scotia just in February approved Nubeqa, this then means that I would have to apply for my insurance to cover it INSTEAD of the compassion
Hi all, got notice last evening that Nubeqa will no longer be covered by my drug provider. Apologies I should have said this in original post: What happened is Nova Scotia just in February approved Nubeqa, this then means that I would have to apply for my insurance to cover it INSTEAD of the compassion
Yzinger
in
Advanced Prostate Cancer
4 months ago
3 year rollercoaster
I just hit 3 years since my diagnosis of breast cancer invasive ductal carcinoma with lymph node involvement (auxiliary), Stage 3 HER2-, HR+. (Age35) Since then I have completed initial chemotherapy (AC &T), bilateral mastectomy, with reconstruction , 25 rounds of radiation to my left breast. Found out
I just hit 3 years since my diagnosis of breast cancer invasive ductal carcinoma with lymph node involvement (auxiliary), Stage 3 HER2-, HR+. (Age35) Since then I have completed initial chemotherapy (AC &T), bilateral mastectomy, with reconstruction , 25 rounds of radiation to my left breast. Found out
Warrio
in
My Breast Cancer Community
4 months ago
ALT and AST levels
Hi all! I'll begin by thanking everyone on this site for the invaluable information I've found here. I'm Gleason 9, very high risk, localized pca. In Jan/Feb I rec'd 5 treatments of SBRT and have been on Lupron and Abiraterone/prednisone for the past 7 months. Just had labs done, and psa is at 0.1. The
Hi all! I'll begin by thanking everyone on this site for the invaluable information I've found here. I'm Gleason 9, very high risk, localized pca. In Jan/Feb I rec'd 5 treatments of SBRT and have been on Lupron and Abiraterone/prednisone for the past 7 months. Just had labs done, and psa is at 0.1. The
Quarky
in
Advanced Prostate Cancer
4 months ago
Recommended Reading
I know this forum is primarily for those with advanced PCA, yet I regularly see posts by those who've only recently discovered the disease and are not in such adavanced stages, being treated only with 1st-generation ADT. Thus, as a nearly 20-year survivor of PCa (first discovered in 2005) and 10-year
I know this forum is primarily for those with advanced PCA, yet I regularly see posts by those who've only recently discovered the disease and are not in such adavanced stages, being treated only with 1st-generation ADT. Thus, as a nearly 20-year survivor of PCa (first discovered in 2005) and 10-year
bluesnjazz
in
Advanced Prostate Cancer
4 months ago
BAT - Current Evidence and Next Steps
"[i]We've been doing a lot of work at Johns Hopkins using high-dose testosterone therapies to treat patients with metastatic prostate cancer, " says Mark C Markowski, MD, PhD.[/i] This comprehensive overview of bipolar androgen therapy (BAT), by Mark Markowski, MD, PhD, associate professor of oncology
"[i]We've been doing a lot of work at Johns Hopkins using high-dose testosterone therapies to treat patients with metastatic prostate cancer, " says Mark C Markowski, MD, PhD.[/i] This comprehensive overview of bipolar androgen therapy (BAT), by Mark Markowski, MD, PhD, associate professor of oncology
marnieg46
in
Fight Prostate Cancer
4 months ago
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