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Collagenous colitis
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Ulcerative proctitis
I have a severe proctitis. The Dr. prescribed me with a Prednisolone suppositories 5mg twice daily plus started oral Mesalazine as Octasa 2.4g/day. I’m on my 3rd week of the medication. But is not working properly. I’m taking Octasa in the morning before breakfast (I tried to take it before dinner
I have a severe proctitis. The Dr. prescribed me with a Prednisolone suppositories 5mg twice daily plus started oral Mesalazine as Octasa 2.4g/day. I’m on my 3rd week of the medication. But is not working properly. I’m taking Octasa in the morning before breakfast (I tried to take it before dinner
MK3L4S
in
Crohn's and Colitis Support
2 months ago
Adalimumab
Hi everyone. This is the first time asking a question on here so forgive me if I ramble a bit. I had my first injection of adalimumab for my R.A on Tuesday and it has really knocked me. I feel so tired and queasy and slept most of yesterday and all last night till 10 this morning. Still not feeling
Hi everyone. This is the first time asking a question on here so forgive me if I ramble a bit. I had my first injection of adalimumab for my R.A on Tuesday and it has really knocked me. I feel so tired and queasy and slept most of yesterday and all last night till 10 this morning. Still not feeling
QuacketyQuack
in
NRAS
2 months ago
Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
2 months ago
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Questran for Bile Acid Malabsorption
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
laurajn087
in
IBS Network
2 months ago
Interesting research
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Readlots
in
British Liver Trust
2 months ago
Tenesmus - Urgency
Anyone out there struggling with tenesmus? Been experiencing urgency for 3 months virtually nonstop. Only a couple of days relief here and there. Also it gets worse whenever I walk or stand, if I sit all day I am usually fine. Also seems to get worse after a shower or after bm. Tried everything from
Anyone out there struggling with tenesmus? Been experiencing urgency for 3 months virtually nonstop. Only a couple of days relief here and there. Also it gets worse whenever I walk or stand, if I sit all day I am usually fine. Also seems to get worse after a shower or after bm. Tried everything from
yakodik
in
IBS Network
3 months ago
Bendamustine
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
dickcll
in
CLL Support
4 months ago
Tapering off Prednisolone 5mg suppositories
Hello all, I'm wondering if anyone here has used Predsol 5mg suppositories for 3 months? My Gastro said it was ok to use them that long . . . I'm wondering if I need to taper off (for eg, use every second day for a few weeks?) The gastro was not happy with me last visit as my bleeding had come back
Hello all, I'm wondering if anyone here has used Predsol 5mg suppositories for 3 months? My Gastro said it was ok to use them that long . . . I'm wondering if I need to taper off (for eg, use every second day for a few weeks?) The gastro was not happy with me last visit as my bleeding had come back
Bunnygirl1
in
Crohn's and Colitis Support
4 months ago
denosumab
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
RosettaClapp
in
CLL Support
4 months ago
belimumab Infusions
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
MaryannM
in
LUPUS UK
4 months ago
Is Bradypnea and Tachypnea normal?
It’s been 16 months since my cryoablation and my FitBit has logged a few incidences of bradypnea and tachypnea. The charts also show pauses like I didn’t take a breath at all overnight. I am still being monitored by an implantable loop monitor but just wondering if anyone is familiar with this and is
It’s been 16 months since my cryoablation and my FitBit has logged a few incidences of bradypnea and tachypnea. The charts also show pauses like I didn’t take a breath at all overnight. I am still being monitored by an implantable loop monitor but just wondering if anyone is familiar with this and is
AussieHeart
in
Atrial Fibrillation Support
6 months ago
Update re RA and associated Colitis
Yep it's colitis following colonoscopy biopsy results. They are of the impression it is microscopic colitis (associated to auto immune diseases) but not 100% sure. So the handle is unspecified colitis which is a common saying. Treatment is steroids. It's been a long journey after being told for years
Yep it's colitis following colonoscopy biopsy results. They are of the impression it is microscopic colitis (associated to auto immune diseases) but not 100% sure. So the handle is unspecified colitis which is a common saying. Treatment is steroids. It's been a long journey after being told for years
Jackie1947
in
NRAS
7 months ago
Getting bombarded with ads for RA treatment Honey bee venom cream?.
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
welsh12
in
NRAS
7 months ago
Colpein and buscopan
Hi there, can anyone tell me if it's ok to take colpermin and buscopan together? I am already taking colpermin which I think is helping a bit, but still getting cramps and bloating although maybe not as often as I was Thankyou for any helpful ifo.
Hi there, can anyone tell me if it's ok to take colpermin and buscopan together? I am already taking colpermin which I think is helping a bit, but still getting cramps and bloating although maybe not as often as I was Thankyou for any helpful ifo.
Lubbleyjubbley
in
IBS Network
8 months ago
Salazopyrin
Hi advice on Salazopyrin I've been taking Salazopyrin for some months with regular blood tests. Inflammatory arthritis and colitis. All was going well until I received a phone call to say stop taking them because my last blood test showed a problem with red blood count. I've googled excessively until
Hi advice on Salazopyrin I've been taking Salazopyrin for some months with regular blood tests. Inflammatory arthritis and colitis. All was going well until I received a phone call to say stop taking them because my last blood test showed a problem with red blood count. I've googled excessively until
Stephanie_munden1
in
Crohn's and Colitis Support
8 months ago
Golimumab v. Rituximab? What is others' experience?
After being advised of liver and lung problems attributed to long term use of methotrexate (10mg weekly subcut), it has been suggested I move from a combination of Golimumab/methotrexate to Rituximab alone. From a layman's point of view, apart from a persistent cough) my RA was under perfect control
After being advised of liver and lung problems attributed to long term use of methotrexate (10mg weekly subcut), it has been suggested I move from a combination of Golimumab/methotrexate to Rituximab alone. From a layman's point of view, apart from a persistent cough) my RA was under perfect control
Lifesforliving
in
NRAS
8 months ago
Calprotectin level
Hi everyone I've recently been diagnosed with ulcerative colitis (sept) I have been taking mesalazine tablets since June and now I have seen a gastroenterologist (mid Nov) he has added new medication which is a pentasa enama and a prednisolone enama which I am 3 weeks into I have been asked to do another
Hi everyone I've recently been diagnosed with ulcerative colitis (sept) I have been taking mesalazine tablets since June and now I have seen a gastroenterologist (mid Nov) he has added new medication which is a pentasa enama and a prednisolone enama which I am 3 weeks into I have been asked to do another
GRIMMEY1
in
Crohn's and Colitis Support
8 months ago
Prothrombin time
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Sheliabee
in
British Liver Trust
9 months ago
Ulcerative colitis
Does anyone have experience of this, please? I have had SLE/Lupus for 38 years (I am now 74) and am waiting for an urgent referral for a possible colonoscopy. I am wondering if I could have ulcerative colitis and would like to hear from anyone who has knowledge of it. Thank you.☺️
Does anyone have experience of this, please? I have had SLE/Lupus for 38 years (I am now 74) and am waiting for an urgent referral for a possible colonoscopy. I am wondering if I could have ulcerative colitis and would like to hear from anyone who has knowledge of it. Thank you.☺️
Larks0ng
in
LUPUS UK
9 months ago
Had enough, constant pain
have woken up in such pain today, and been in bed most Of the day. I’ve taken 2 lots of codeine, paracetamol and hot water bottle. I’ve never felt bed bound with this I can usually at least watch tv. I’m on day 4 since having my first Zoladex injection. I’m so fed up of this. Sorry a pointless message
have woken up in such pain today, and been in bed most Of the day. I’ve taken 2 lots of codeine, paracetamol and hot water bottle. I’ve never felt bed bound with this I can usually at least watch tv. I’m on day 4 since having my first Zoladex injection. I’m so fed up of this. Sorry a pointless message
Sunflower738882
in
Endometriosis UK
10 months ago
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