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Cogan's syndrome
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A retired GP!
I too am a retired GP, and knew very little about RLS until I had it and began to read about it. It started very mildly in My 30s and gradually became very severe. My son, who is a consultant neurologist in Oxford, suggested I start on Premipexine, which was the accepted treatment at that time, and it
I too am a retired GP, and knew very little about RLS until I had it and began to read about it. It started very mildly in My 30s and gradually became very severe. My son, who is a consultant neurologist in Oxford, suggested I start on Premipexine, which was the accepted treatment at that time, and it
Hazelbutler
in
Restless Legs Syndrome
6 years ago
Transcutaneous electrical stimulation unit
Has anybody had a chance to use a TENS unit? Transcutaneous electrical stimulation does something to the muscles which is supposed to help with pain of all kinds. I've got one on right now and it definitely does something to the restless, horrible, creepy feeling but I'm not sure if I'll be able to
Has anybody had a chance to use a TENS unit? Transcutaneous electrical stimulation does something to the muscles which is supposed to help with pain of all kinds. I've got one on right now and it definitely does something to the restless, horrible, creepy feeling but I'm not sure if I'll be able to
jimmcar
in
Restless Legs Syndrome
6 years ago
TAPERING - CAUGHT BETWEEN THE 'DEVIL' AND THE 'DEEP BLUE SEA'
Greetings Everyone I realise I am raising again possibly 'THE' (most) perennial' question we tackle here on the forum - that of the speed at which to taper. My particular problem - which I have mentioned here recently is that i have developed a rather insidious side effect of pred which I was not really
Greetings Everyone I realise I am raising again possibly 'THE' (most) perennial' question we tackle here on the forum - that of the speed at which to taper. My particular problem - which I have mentioned here recently is that i have developed a rather insidious side effect of pred which I was not really
Rimmy
in
PMRGCAuk
6 years ago
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Letrozole for ovulation induction
Hi, Has anyone used letrozole instead of clomid for ovulation induction with any success? I’m due to start on my next cycle. Thanks xx
Hi, Has anyone used letrozole instead of clomid for ovulation induction with any success? I’m due to start on my next cycle. Thanks xx
Steadman80
in
Fertility Network UK
6 years ago
How do you keep busy mentally, physically, socially etc... to help manage loneliness, self-worth?
This has been a big test of of character I’m sure for all of us. I’ve tried to find ways to stay active mentally and all other ways to beat depression, loneliness and self-worth! What do you do on good days? On bad days? On good days, I try and do the things I love! I listen to music, sing along!
This has been a big test of of character I’m sure for all of us. I’ve tried to find ways to stay active mentally and all other ways to beat depression, loneliness and self-worth! What do you do on good days? On bad days? On good days, I try and do the things I love! I listen to music, sing along!
Rheumagal
in
NRAS
6 years ago
Unable to sleep
Hello friends. Poor sleep quality is getting to me. I go to bed tired but am unable to get off to sleep for hours...Last night I only had about one hour. The quality of sleep is also not the same. It's a very superficial sort of sleep, unsatisfying and restless. I take 13 mg of pred in the morning and
Hello friends. Poor sleep quality is getting to me. I go to bed tired but am unable to get off to sleep for hours...Last night I only had about one hour. The quality of sleep is also not the same. It's a very superficial sort of sleep, unsatisfying and restless. I take 13 mg of pred in the morning and
AliDeJ
in
PMRGCAuk
6 years ago
Horrible Leg pain following Rituxan
Hi everyone I was wondering if anyone has had an issue with increased pain following their Rituxan infusions? I am in excruciating pain from my groin to my toes on the right side and my muscles are stiff. I don’t know what it is. I’ve taken my Tylenol ER, BC Arthritis, Dexamethasone today and nothing
Hi everyone I was wondering if anyone has had an issue with increased pain following their Rituxan infusions? I am in excruciating pain from my groin to my toes on the right side and my muscles are stiff. I don’t know what it is. I’ve taken my Tylenol ER, BC Arthritis, Dexamethasone today and nothing
Maat2002
in
NRAS
6 years ago
Lyrica
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
Yakester
in
Restless Legs Syndrome
6 years ago
Opioids
I have been off pramipexole for close to two weeks. Then my (new) neurologist started me on carbadopa levodopa which caused extreme anxiety so only took for 4 days. I’m totally miserable. I am wondering what opioids are used and how much. I’m trying to gather information for doctors. Also, does
I have been off pramipexole for close to two weeks. Then my (new) neurologist started me on carbadopa levodopa which caused extreme anxiety so only took for 4 days. I’m totally miserable. I am wondering what opioids are used and how much. I’m trying to gather information for doctors. Also, does
Yakester
in
Restless Legs Syndrome
6 years ago
Bumetanide
Following my recent heart surgery which included an ablation I have been prescribed Bumetanide. Is anybody else taking this diaretic . I am left with a very dry mouth, eyes and flaky skin and have noticed that it is affecting my gums. I frightened of losing my teeth! As well as everything else that's
Following my recent heart surgery which included an ablation I have been prescribed Bumetanide. Is anybody else taking this diaretic . I am left with a very dry mouth, eyes and flaky skin and have noticed that it is affecting my gums. I frightened of losing my teeth! As well as everything else that's
Becksagogo
in
AF Association
6 years ago
Sore , dry throat
Hi, I'm hypo, on 100 mg Levo thyroxine, gluten free. I have be having sore, dry sensation in my throat when I've worked too much or am anxious, also brain fog. Is this anything to do with Hashimotos.🌻🌻🌻🌻🌻
Hi, I'm hypo, on 100 mg Levo thyroxine, gluten free. I have be having sore, dry sensation in my throat when I've worked too much or am anxious, also brain fog. Is this anything to do with Hashimotos.🌻🌻🌻🌻🌻
geegee888
in
Thyroid UK
6 years ago
Prostap 3 DCS
How’s everyone doing? Two weeks ago I took my first dose of the Prostap 3 DCS and I was told that my next cycle will come. Anyone experiencing mood swings and really bad pains in the stomach?
How’s everyone doing? Two weeks ago I took my first dose of the Prostap 3 DCS and I was told that my next cycle will come. Anyone experiencing mood swings and really bad pains in the stomach?
MeshaW
in
Endometriosis UK
6 years ago
Restless legs after a total knee replacement
2014 I had a right total knee replacement about a year later I developed rls.I have never had rls before. Its been almost 4 years now since the surgery and really wish I would have never had it if I would have known what was to come.Ive read people do get rls after the surgery but it doesn't last 4 years.Is
2014 I had a right total knee replacement about a year later I developed rls.I have never had rls before. Its been almost 4 years now since the surgery and really wish I would have never had it if I would have known what was to come.Ive read people do get rls after the surgery but it doesn't last 4 years.Is
viviansmith
in
Restless Legs Syndrome
6 years ago
One more step closer to our dream.
We had an appointment today with the nurse in our clinic. We have decided to go with the CGT screening and will hopefully have it done in Spain when we go in Sept for my partner to 'deposit' his sample. The nurse thinks it could be cheaper over there 👍 My partner needs his blood tests to have been done
We had an appointment today with the nurse in our clinic. We have decided to go with the CGT screening and will hopefully have it done in Spain when we go in Sept for my partner to 'deposit' his sample. The nurse thinks it could be cheaper over there 👍 My partner needs his blood tests to have been done
Hope4usall
in
Fertility Network UK
6 years ago
Relief at last?
I am a 71 year old woman and have suffered from RLS since my 20s....when I was pregnant..but my mother also had RLS. I have tried everything..recently copper bracelets, giving up caffeine, alcohol-- taking Valerian, magnesium, lying down with legs up, exercises etc..Some days I am ok but others it is
I am a 71 year old woman and have suffered from RLS since my 20s....when I was pregnant..but my mother also had RLS. I have tried everything..recently copper bracelets, giving up caffeine, alcohol-- taking Valerian, magnesium, lying down with legs up, exercises etc..Some days I am ok but others it is
Allyp69
in
Restless Legs Syndrome
6 years ago
Tried EVERYTHING, and now...
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
auntiesioux
in
Restless Legs Syndrome
6 years ago
Need advice
Hi lovely people I just need some advice regarding my ultrasound which was done in end of June this year they found one 10 mm noudle on right side lobe and my thyroid is mildly enlarged radiologist confirmed thyroiditis again this is the 2nd time through ultrasound they said thyroiditis I had an appointment
Hi lovely people I just need some advice regarding my ultrasound which was done in end of June this year they found one 10 mm noudle on right side lobe and my thyroid is mildly enlarged radiologist confirmed thyroiditis again this is the 2nd time through ultrasound they said thyroiditis I had an appointment
Samy3
in
Thyroid UK
6 years ago
Black cohosh - have you tried it?
Wondering if anyone has tried black cohosh to promote ovulation /pregnancy either with or without clomid. I'm hoping to start clomid in a months time but will black cohosh do me any harm /good in trying it this month? I know not to take it after ovulation because its harmful to pregnancy but have read
Wondering if anyone has tried black cohosh to promote ovulation /pregnancy either with or without clomid. I'm hoping to start clomid in a months time but will black cohosh do me any harm /good in trying it this month? I know not to take it after ovulation because its harmful to pregnancy but have read
FakeHappy
in
Fertility Network UK
6 years ago
New medication
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Holiday concerns
Hello All, i am new here and I am after a little adviceplease. I have been eating flaxseed everyday for the last 7 weeks and after suffering years of constipation have finally got my bowels into regular rhythm.... each week just gets better and better! I also eat a good amount of fruits and vegetables
Hello All, i am new here and I am after a little adviceplease. I have been eating flaxseed everyday for the last 7 weeks and after suffering years of constipation have finally got my bowels into regular rhythm.... each week just gets better and better! I also eat a good amount of fruits and vegetables
C316
in
IBS Network
6 years ago
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