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Cogan's syndrome
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Paper on meds that help DA withdrawal
Hello, can anyone please point me to a paper that details the drugs that can assist with dopamine agonist withdrawal, so that I can share with my doctor? I am stepping down from ropinirole now (due to augmentation, of course) and it is horrible. My doctor, who doesn’t know a lot about RLS (but is open
Hello, can anyone please point me to a paper that details the drugs that can assist with dopamine agonist withdrawal, so that I can share with my doctor? I am stepping down from ropinirole now (due to augmentation, of course) and it is horrible. My doctor, who doesn’t know a lot about RLS (but is open
Frustrated-RLS
in
Restless Legs Syndrome
3 years ago
Plaquenil
Hi. I am AMA positive, pbc diagnosis. Chronic sinusitis and autoimmunehypothyroidism. Recent arthralgia and myalgia and raised crp, esr, and platelets for last 4 months. Rheumatologist feels it may be lupus, wegeners or sirgons. ANA , ANCA negative. On vimovo then arcoxia. They helped for a short
Hi. I am AMA positive, pbc diagnosis. Chronic sinusitis and autoimmunehypothyroidism. Recent arthralgia and myalgia and raised crp, esr, and platelets for last 4 months. Rheumatologist feels it may be lupus, wegeners or sirgons. ANA , ANCA negative. On vimovo then arcoxia. They helped for a short
Nellies47
in
Vasculitis UK
3 years ago
When to take Questran or Colestid powder
I am taking one sachet of Questran or Colestid powder (containing colestyramine or colestipol hydrochloride respectively) per day to control suspected bile acid malabsorption (I have a cooperative doctor - but I haven't been tested for BAM) and therefore IBS D - and with some success. My question is,
I am taking one sachet of Questran or Colestid powder (containing colestyramine or colestipol hydrochloride respectively) per day to control suspected bile acid malabsorption (I have a cooperative doctor - but I haven't been tested for BAM) and therefore IBS D - and with some success. My question is,
merve1
in
IBS Network
3 years ago
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Post dental extraction
I had a molar removed yesterday afternoon due to severe pain and swelling. In my ignorant bliss I thought tooth out, pain and facial swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
I had a molar removed yesterday afternoon due to severe pain and swelling. In my ignorant bliss I thought tooth out, pain and facial swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
ParsnipSoup
in
PMRGCAuk
3 years ago
Supplement to restore joint health
I’ve been buying this for my dog for quite a while for his joints and the webpage says it is for humans too so I thought I would try it. https://wedeliver.nz/products/efac I have been taking it at 3 per day for a while and I swear it is helping. So if you have sore achy body it might be worth a try
I’ve been buying this for my dog for quite a while for his joints and the webpage says it is for humans too so I thought I would try it. https://wedeliver.nz/products/efac I have been taking it at 3 per day for a while and I swear it is helping. So if you have sore achy body it might be worth a try
LAJ12345
in
Cure Parkinson's
3 years ago
Hyperreflexia
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
Bellmore2089
in
Pernicious Anaemia Society
3 years ago
Meds and rls
Was on pramipexole for over 15 years was up to 3mg. Have slowly tapered off of it and switched to a lower dose of requip hopefully don't have to deal with as many side effects mostly hypersexuality. My rls symptoms seem to be starting earlier in the day by 3 in the afternoon. Is it worth it to start
Was on pramipexole for over 15 years was up to 3mg. Have slowly tapered off of it and switched to a lower dose of requip hopefully don't have to deal with as many side effects mostly hypersexuality. My rls symptoms seem to be starting earlier in the day by 3 in the afternoon. Is it worth it to start
Usedtocook
in
Restless Legs Syndrome
3 years ago
Systemic sclerosis and vein
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Gabapentin not working as yet
Hi Ive been on gabapentin for 5 weeks now. I previously posted saying my doctor had prescribed 100mgs 3 times daily. I was advised on forum as I thought, that this dose was useless, and I'd be better taking at night and upping dose gradually. So I'm now to to 900mgs at night but still not seeing
Hi Ive been on gabapentin for 5 weeks now. I previously posted saying my doctor had prescribed 100mgs 3 times daily. I was advised on forum as I thought, that this dose was useless, and I'd be better taking at night and upping dose gradually. So I'm now to to 900mgs at night but still not seeing
Lizzybuz27
in
Restless Legs Syndrome
3 years ago
Transvaginal ultrasound scan
Hello, I had a transvaginal ultrasound scan today to look at my lining, general health and follicles today in preparation for my next ivf cycle. I had the scan on day 2, when the report has come back the report states multiple follicles! The ivf Centre want to know the amount and cannot believe it wasn
Hello, I had a transvaginal ultrasound scan today to look at my lining, general health and follicles today in preparation for my next ivf cycle. I had the scan on day 2, when the report has come back the report states multiple follicles! The ivf Centre want to know the amount and cannot believe it wasn
Tilly8135
in
Fertility Network UK
3 years ago
Moving from lyrica/clonazapam to methadone
I have had RLS for 25 years. In a couple weeks I will be transitioning from 400mg lyrica (at 4pm) and .5mg clonazapam (night time) to 5mg methadone. It took me over 6 months to get off 6mg er after 7 years of usage (2 years of this period I had nightly augmentation). Lyrica/clonazapam makes me walk like
I have had RLS for 25 years. In a couple weeks I will be transitioning from 400mg lyrica (at 4pm) and .5mg clonazapam (night time) to 5mg methadone. It took me over 6 months to get off 6mg er after 7 years of usage (2 years of this period I had nightly augmentation). Lyrica/clonazapam makes me walk like
Steino
in
Restless Legs Syndrome
3 years ago
Buprenorphine Tablets
Regarding the request about knowledge of Buprenorphine tablets in India, I cannot help with that since I’m in the USA; however, I have two or three years of experience with Buprenorphine pain patches in the strengths of 5 mcg and 7.5 mcg per hour. Unfortunately, I have not found it useful in reducing
Regarding the request about knowledge of Buprenorphine tablets in India, I cannot help with that since I’m in the USA; however, I have two or three years of experience with Buprenorphine pain patches in the strengths of 5 mcg and 7.5 mcg per hour. Unfortunately, I have not found it useful in reducing
Pepper2012
in
Restless Legs Syndrome
3 years ago
Beta Hcg slow?
I stupidly went to have 2 blood tests after my positive hcg at A&E and now worried! It was 81 hours between the last 2 and the number doubled in 57.5 hours. Is that slow??? I will not go for more! 05/08 – 23:30 – 8pt (A&E): 181 10/08 – 8:30 – 13pt (private lab): 756 13/08 – 17:30 – 16pt (private lab
I stupidly went to have 2 blood tests after my positive hcg at A&E and now worried! It was 81 hours between the last 2 and the number doubled in 57.5 hours. Is that slow??? I will not go for more! 05/08 – 23:30 – 8pt (A&E): 181 10/08 – 8:30 – 13pt (private lab): 756 13/08 – 17:30 – 16pt (private lab
FrancyItaly
in
Fertility Network UK
3 years ago
pregabalin for RLS and libido
Hi All I'm new here so first post so please forgive if I've not done this right and I hope I can post about this topic. I did try and search but can find limited information about the issue I am experiencing. I've recently started taking pregabalin after I tried ropinirole, for some reason ropinirole
Hi All I'm new here so first post so please forgive if I've not done this right and I hope I can post about this topic. I did try and search but can find limited information about the issue I am experiencing. I've recently started taking pregabalin after I tried ropinirole, for some reason ropinirole
Birdjross
in
Restless Legs Syndrome
3 years ago
Twin pregnancy
Hi everyone, so I found out a week ago that I'm having identical twins. It's looking as though they will be identical and share a placenta and sac. Last night the sickness went up a few levels. Any tips on twin pregnancies? How did you deal with the risks that you get bombarded with?
Hi everyone, so I found out a week ago that I'm having identical twins. It's looking as though they will be identical and share a placenta and sac. Last night the sickness went up a few levels. Any tips on twin pregnancies? How did you deal with the risks that you get bombarded with?
ashcar
in
Fertility Network UK
3 years ago
Beta HCG
Hi lovely people I have a question which answer you guys might have 😋 Iam 4 week 5 days pregnant with ivf frozen cycle I had my Beta HCG done on 14DPO and it came back 241 Second Beta was 18DPO which came back 1622 Iam a first time mom to be 🤞🏻 Was wondering if iam in the safe zone and could it
Hi lovely people I have a question which answer you guys might have 😋 Iam 4 week 5 days pregnant with ivf frozen cycle I had my Beta HCG done on 14DPO and it came back 241 Second Beta was 18DPO which came back 1622 Iam a first time mom to be 🤞🏻 Was wondering if iam in the safe zone and could it
hope_94
in
Pregnancy and Parenting Support
3 years ago
Buprenorphine -Subutex difference from Suboxone
Frequently asked question. Subutex and Suboxone are both Buprenorphine Subutex is singular (pure Buprenorphine) Suboxone has Naloxone added ( the only difference ) Temgesic is pure Buprenorphine only difference is it’s micro dose 0.02 mcg Dr Glen Brooks who is a practicing anesthetiser only recommends
Frequently asked question. Subutex and Suboxone are both Buprenorphine Subutex is singular (pure Buprenorphine) Suboxone has Naloxone added ( the only difference ) Temgesic is pure Buprenorphine only difference is it’s micro dose 0.02 mcg Dr Glen Brooks who is a practicing anesthetiser only recommends
Shumbah
in
Restless Legs Syndrome
3 years ago
Amputation?
Just kidding, new here and been reading a lot so thank you all. Been on ropinirole for 3/4 years now and it's not as effective (augmentation), so decided to come off it. A few weeks ago reduced from 1mg to 0.5mg for 2 weeks. Then I stopped, well I've not slept for 6 nights now and going out my mind.
Just kidding, new here and been reading a lot so thank you all. Been on ropinirole for 3/4 years now and it's not as effective (augmentation), so decided to come off it. A few weeks ago reduced from 1mg to 0.5mg for 2 weeks. Then I stopped, well I've not slept for 6 nights now and going out my mind.
Legs-Eleven
in
Restless Legs Syndrome
3 years ago
Sleep journal/anxiety
Just a suggestion: I keep a sleep journal to try and track triggers, drug response histories, etc. One thing I added in the last year was tracking how good my days were--not just my nights--the day after when I note sleep duration/arousals. An unexpected result was that my anxiety about sleeping went
Just a suggestion: I keep a sleep journal to try and track triggers, drug response histories, etc. One thing I added in the last year was tracking how good my days were--not just my nights--the day after when I note sleep duration/arousals. An unexpected result was that my anxiety about sleeping went
wantokporo
in
Restless Legs Syndrome
3 years ago
Positive rheumatoid factor
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
Kels1974
in
NRAS
3 years ago
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