Search
Search
About
Log in
Join
Experiences with
Cogan's syndrome
Posts
Communities
3,296 public posts
Filter results
Magnesium and Lavender
I take Magnesium capsules at night to sleep and since starting, I rarely feel RLS. If I'm particularly exhausted, I do feel it, in which case, I use Feather and Down Sleep butter. It stops it in seconds. It is lavender-based. There is a version that also has a dose of Magnesium in it. I'd surmise that
I take Magnesium capsules at night to sleep and since starting, I rarely feel RLS. If I'm particularly exhausted, I do feel it, in which case, I use Feather and Down Sleep butter. It stops it in seconds. It is lavender-based. There is a version that also has a dose of Magnesium in it. I'd surmise that
27yrsncounting
in
Restless Legs Syndrome
6 months ago
Advise on taking Mirtazapine
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
Hidden
in
Restless Legs Syndrome
6 months ago
RLS sufferer
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
Farmboy1
in
Restless Legs Syndrome
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
concerned
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
6236
in
Restless Legs Syndrome
6 months ago
Ropinerole
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
Marzipana
in
Restless Legs Syndrome
6 months ago
Carbomer eye gel
Good morning. I was at the ophthalmologist yesterday getting umpteen scans and things due to taking hydroxychloroquine. I have very dry eyes once the UV starts to increase (usually February so bang on time). The ophthalmologist gave me carbomer eye gel to use before I go to bed and told me to continue
Good morning. I was at the ophthalmologist yesterday getting umpteen scans and things due to taking hydroxychloroquine. I have very dry eyes once the UV starts to increase (usually February so bang on time). The ophthalmologist gave me carbomer eye gel to use before I go to bed and told me to continue
Whippet_lady
in
LUPUS UK
6 months ago
Update after stopping sertraline
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
Petru
in
Restless Legs Syndrome
6 months ago
Bruxism, botulinum toxin, Hashimoto, anxiety, tension
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
Margimet
in
Thyroid UK
9 months ago
Buprenorphine triggers RLS (briefly)?
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
707twitcher
in
Restless Legs Syndrome
6 months ago
Buprenorphine/Naloxone (Suboxone)
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Cashews
in
Restless Legs Syndrome
6 months ago
Hi all
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Glenr78
in
Restless Legs Syndrome
6 months ago
vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
2 months ago
Pramipexole - update
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
Lineker
in
Restless Legs Syndrome
6 months ago
What am I doing wrong!
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Shopnow1
in
IBS Network
2 months ago
Checking medication
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
restlessstoz
in
Restless Legs Syndrome
6 months ago
Belbuca vs. Suboxone
I’m in the US (CA). I’ve been on Suboxone for two months and it handles my RLS quite well. I’m currently taking about .4 mg (1/5 of a 2mg strip) nightly. I’ve gotten over the tiredness that arose for the first month or so, but the constipation is no fun. I’ve read one study that says buccal applications
I’m in the US (CA). I’ve been on Suboxone for two months and it handles my RLS quite well. I’m currently taking about .4 mg (1/5 of a 2mg strip) nightly. I’ve gotten over the tiredness that arose for the first month or so, but the constipation is no fun. I’ve read one study that says buccal applications
707twitcher
in
Restless Legs Syndrome
6 months ago
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Opioids for refractory RLS-Dr Berkowski
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
Joolsg
in
Restless Legs Syndrome
6 months ago
Covid restless leg
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
Ciciskinner
in
Restless Legs Syndrome
6 months ago
newly diagnosed
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Pink_piglet
in
Fibromyalgia Action UK
6 months ago
1
...
9
10
11
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1453 results
Fertility Network UK
360 results
PMRGCAuk
135 results
View top 10 communities
Sort by
Most Relevant
Newest