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Improvement in fatigue
I'm what the sleep doctors call, "a long sleeper," sleeping on average 11 hours a night. A year ago my kidneys failed due to an allergic reaction to medicine and I've been in stage 4 CKD since. One of the worst side effects for me was the added fatigue. My primary care physician suggested that
I'm what the sleep doctors call, "a long sleeper," sleeping on average 11 hours a night. A year ago my kidneys failed due to an allergic reaction to medicine and I've been in stage 4 CKD since. One of the worst side effects for me was the added fatigue. My primary care physician suggested that
Kidneybetter
in
Kidney Disease
2 years ago
hello this is my first post just diagnosed with sleep apnea
just starting with cpap machine and in second week … had basal mask which struggled with the seal so changed to face mask which I struggled more with… uncomfortable and seal leaking … can’t seem to settle apart from 2 ok nights. Still feeling so fatigued during the day. Added a humidifier but used
just starting with cpap machine and in second week … had basal mask which struggled with the seal so changed to face mask which I struggled more with… uncomfortable and seal leaking … can’t seem to settle apart from 2 ok nights. Still feeling so fatigued during the day. Added a humidifier but used
Delilahmy
in
Sleep Matters
2 years ago
ICU and teeth/dental hygiene gums
Hello, this might seem a strange one, given all the other major after-effects of intensive care, but I got a bit of a shock yesterday to be told I have gum disease. Given my regular daily brushing it was a bit of a shock When I thought about it I realised I did not brush my teeth for nearly three
Hello, this might seem a strange one, given all the other major after-effects of intensive care, but I got a bit of a shock yesterday to be told I have gum disease. Given my regular daily brushing it was a bit of a shock When I thought about it I realised I did not brush my teeth for nearly three
Gooddaysunshine
in
ICUsteps
2 years ago
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Cisplatin based chemotherapy and neck irradiation for cancer has caused Parkinsonism/MSA symptoms in my husband and no diagnosis yet. Help.
My husband received treatment for head and neck cancer 10 years ago. He’s in remission but the long term effects have caused problems. Now, he struggles with severe orthostatic hypotension; dizziness when standing up and labile blood pressure when sleeping. It’s hard to determine why his swallowing
My husband received treatment for head and neck cancer 10 years ago. He’s in remission but the long term effects have caused problems. Now, he struggles with severe orthostatic hypotension; dizziness when standing up and labile blood pressure when sleeping. It’s hard to determine why his swallowing
Jillian100
in
Multiple System Atrophy Trust
2 years ago
Did anyone here know that Sleep Apnea can cause AF?
hubby has had AF for 3years.not really doing well. Originally it was off and on. Didn't see a consultant for 2years as he had left for Machester(UK)Cardiology. Finally it all came to ahead and has had 1 ablation (failed) in May 2022. Put on amiadarone till next ablation August (2022). That failed
hubby has had AF for 3years.not really doing well. Originally it was off and on. Didn't see a consultant for 2years as he had left for Machester(UK)Cardiology. Finally it all came to ahead and has had 1 ablation (failed) in May 2022. Put on amiadarone till next ablation August (2022). That failed
Billybobjo1234
in
AF Association
2 years ago
Traveling to France and Germany
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
kdr112
in
Asthma Community Forum
2 years ago
IS HE GOING TO SLIDE OUT OF THIS ONE?!
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
Hidden
in
Lung Conditions Community Forum
2 years ago
Can You Damage Your Ablation Work By Over-Exertion After 5 Months?
I had a Cyro Ablation on March 16 of this year so it has been 5 months. (Today is August 19.) On April 13, I was taken off Flecainide and then put on a two-week Zio monitor on June 30 to see how effective the ablation was at least at that point. On June 23 I had one Afib episode lasting about 4 hours
I had a Cyro Ablation on March 16 of this year so it has been 5 months. (Today is August 19.) On April 13, I was taken off Flecainide and then put on a two-week Zio monitor on June 30 to see how effective the ablation was at least at that point. On June 23 I had one Afib episode lasting about 4 hours
willec49
in
Arrhythmia Alliance
2 years ago
Sleep Apnoea!
Some will remember that I have posted a few times about my trouble with sleeping, especially withdrawing from Amitriptyline when that wasn’t helping the sleep any more. Well, it appears that I have moderate sleep apnoea. My sleep is disturbed over 19 times per hour! This has led to me having to get
Some will remember that I have posted a few times about my trouble with sleeping, especially withdrawing from Amitriptyline when that wasn’t helping the sleep any more. Well, it appears that I have moderate sleep apnoea. My sleep is disturbed over 19 times per hour! This has led to me having to get
suzy1959
in
PMRGCAuk
2 years ago
Possible Electricity Black Outs this Winter in the UK
Good afternoon everyone, As well as all the rising fuel cost can I please ask what people have in place that need to use cpap and Nivi machines everyday/night? Just in the worst case event that there possibly may need to be Electricity Black-Outs anytime this winter? I am already listed with my electric
Good afternoon everyone, As well as all the rising fuel cost can I please ask what people have in place that need to use cpap and Nivi machines everyday/night? Just in the worst case event that there possibly may need to be Electricity Black-Outs anytime this winter? I am already listed with my electric
Joseph260268
in
Lung Conditions Community Forum
2 years ago
Besremi - CBC after the 11th dose kept at 175mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Lung reduction.
Hi, I'm new to the forum. I got diagnosed with COPD by my GP last October after a chest x-ray. GP referred me to the lung medicine clinic, luckily got an appointment in January. My fev1 was 19% which explained why I was struggling. I didn't get to see my consultant at the appointment unfortunately. Prescribed
Hi, I'm new to the forum. I got diagnosed with COPD by my GP last October after a chest x-ray. GP referred me to the lung medicine clinic, luckily got an appointment in January. My fev1 was 19% which explained why I was struggling. I didn't get to see my consultant at the appointment unfortunately. Prescribed
jacic64
in
COPD Friends
2 years ago
Uniphyllin Continus 400mg
Hi everyone. Is any one else having trouble getting Uniphyllin Continus 400mg? I'm meant to take one, twice a day, but my chemist says that there are none available. I'm having to take two 200mg twice a day now, which obviously, is more expensive to the NHS. It's not really a big problem but, are they
Hi everyone. Is any one else having trouble getting Uniphyllin Continus 400mg? I'm meant to take one, twice a day, but my chemist says that there are none available. I'm having to take two 200mg twice a day now, which obviously, is more expensive to the NHS. It's not really a big problem but, are they
Dave_H1
in
COPD Friends
2 years ago
moving my cardiology care from Barts to Lincoln. Being tested for Sleep Apnoea.
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
Icenae
in
Atrial Fibrillation Support
2 years ago
Besremi - CBC after the 9th dose at 175 mcg (25mcg lower than previous); no CBC test after the 8th dose
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 9th dose (results of 6/23/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 9th dose (results of 6/23/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Just got CPAP
Just received a CPAP this week after several months wait. Tried it the first night using a full mask. Stopped using after 1 hour because of sore throat, sore nasal lining. Too dry! Will try to use on a Friday night with higher humidity setting. My history: major LAD heart attack with complications 23
Just received a CPAP this week after several months wait. Tried it the first night using a full mask. Stopped using after 1 hour because of sore throat, sore nasal lining. Too dry! Will try to use on a Friday night with higher humidity setting. My history: major LAD heart attack with complications 23
Haresear55
in
Sleep Matters
2 years ago
Any one have experience using CPAP? Please help!
I awoke with a headache yet again. All night I was up and down. I've been diagnosed with obstructive sleep apnea and am awaiting a cpap machine. I attempt to change my sleeping position to help, but it doesn't always work. Sleeping sitting up helps sometimes, but not always. I'm probably just moaning
I awoke with a headache yet again. All night I was up and down. I've been diagnosed with obstructive sleep apnea and am awaiting a cpap machine. I attempt to change my sleeping position to help, but it doesn't always work. Sleeping sitting up helps sometimes, but not always. I'm probably just moaning
ClaireMotley87
in
Sleep Matters
2 years ago
Besremi - CBC and CMP after the 7th dose kept at 200mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 7th dose (results of 5/25/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 7th dose (results of 5/25/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Still tired?
I take 150 mg of Pregabalin for PLMD and with carefully watching food/drink triggers my PLMD is pretty much taken care of (going on 3 years). I thought the reason I still suffered from daytime sedation was the side effect of the Pregabalin (even though the 1/2 life isn't that long and I take it at 7pm
I take 150 mg of Pregabalin for PLMD and with carefully watching food/drink triggers my PLMD is pretty much taken care of (going on 3 years). I thought the reason I still suffered from daytime sedation was the side effect of the Pregabalin (even though the 1/2 life isn't that long and I take it at 7pm
wantokporo
in
Restless Legs Syndrome
2 years ago
Colitis, Terminal iletis or Crohns?
Hi, I had my gallbladder out in June 2021. Straight away I then suffered from urgent severe diarrhoea, bloating, yellow poo, fatigue, excessive flatulence and exhaustion. My GP ordered a calprotectin test in September which came back at 222 and I had a repeat one in December which came back at 430.
Hi, I had my gallbladder out in June 2021. Straight away I then suffered from urgent severe diarrhoea, bloating, yellow poo, fatigue, excessive flatulence and exhaustion. My GP ordered a calprotectin test in September which came back at 222 and I had a repeat one in December which came back at 430.
Sunita77
in
Crohn's and Colitis Support
2 years ago
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