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Coats plus syndrome
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Pbc and joint pain
My last gastroenterology my liver function was normal due to urso I possibly have sjogren's, but not diagnosed as I won't have lip biopsy Any way, yesterday I wake up with pain in the hip joint, walking is OK but stairs cause alot of pain I ve been told pcb causes joint pain but not really explained
My last gastroenterology my liver function was normal due to urso I possibly have sjogren's, but not diagnosed as I won't have lip biopsy Any way, yesterday I wake up with pain in the hip joint, walking is OK but stairs cause alot of pain I ve been told pcb causes joint pain but not really explained
Pinkcrush
in
PBC Foundation
6 years ago
daliresp
Was on daliresp for five days. Had to discontinue taking it as psychiatric symptoms were intolerable. Hope another medicine is available. Heard of Symbicort, is this helpful to anyone? I have stage 3 C.O.P.D. Thanks
Was on daliresp for five days. Had to discontinue taking it as psychiatric symptoms were intolerable. Hope another medicine is available. Heard of Symbicort, is this helpful to anyone? I have stage 3 C.O.P.D. Thanks
samferro
in
Lung Conditions Community Forum
6 years ago
Hepatic Encepalopathy medications (Lactulose and Rifamixin OR L-ornithine and L-aspartate)
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Dagmara
in
British Liver Trust
6 years ago
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PLMD ?
Hi everyone, My Rls has been much better in the evening but now I can't sleep at night because my leg, first my right and then my left, start jerking up from the bed and sometimes my whole body jerks, I don't know if this is RLS or PLMD but whichever it is, its making me exhausted. I stopped pramipexole
Hi everyone, My Rls has been much better in the evening but now I can't sleep at night because my leg, first my right and then my left, start jerking up from the bed and sometimes my whole body jerks, I don't know if this is RLS or PLMD but whichever it is, its making me exhausted. I stopped pramipexole
gobojo
in
Restless Legs Syndrome
6 years ago
Period after withdrawal bleed???
So I had failed ivf in April, had my withdrawal bleed, which lasted 12 days, then my "normal" period came on Sunday, usually it's 5 days and done, yesterday which was day 5 there was nothing at all, then today I'm bleeding again. Anyone else had ne thing similar?? Xx
So I had failed ivf in April, had my withdrawal bleed, which lasted 12 days, then my "normal" period came on Sunday, usually it's 5 days and done, yesterday which was day 5 there was nothing at all, then today I'm bleeding again. Anyone else had ne thing similar?? Xx
Jojo1812
in
Fertility Network UK
6 years ago
Coccyx pain..?
Hi everyone, I hope you’re all doing as ok as possible. I’m not yet diagnosed but have most of the symptoms, I’m awaiting test results etc from the GP. So, this last 4 days my coccyx has been really hurting! This is a totally new pain/symptom to me and was just wandering if it’s something anyone else
Hi everyone, I hope you’re all doing as ok as possible. I’m not yet diagnosed but have most of the symptoms, I’m awaiting test results etc from the GP. So, this last 4 days my coccyx has been really hurting! This is a totally new pain/symptom to me and was just wandering if it’s something anyone else
Lynzhoppy1
in
Fibromyalgia Action UK
6 years ago
Restless Legs
Hi I am new, have had RLS for 19 years and was on pramipexole which gave me augmentation, I am now on Madopar and only 1 week into it, still not getting a lot of sleep. Any Ideas?
Hi I am new, have had RLS for 19 years and was on pramipexole which gave me augmentation, I am now on Madopar and only 1 week into it, still not getting a lot of sleep. Any Ideas?
fishodave
in
Restless Legs Syndrome
6 years ago
Duloxetine no no....!
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Blackwitch
in
Fibromyalgia Action UK
6 years ago
Should I mentally prepare for the possibility..?
Hello all. I’ve had elevated liver enzymes for some time together with some numb pain on my right side. When hungry especially. Since I’ve never had a family doctor, doctors just seem to raise their eyebrows at my results but then move right along to whatever reason I was there for (I’ve never gone for
Hello all. I’ve had elevated liver enzymes for some time together with some numb pain on my right side. When hungry especially. Since I’ve never had a family doctor, doctors just seem to raise their eyebrows at my results but then move right along to whatever reason I was there for (I’ve never gone for
MeN18
in
PBC Foundation
6 years ago
Leg jerks
Has anybody experienced leg jerks or torso jerks while being on lyrica? I have constant almost unstoppable jerks which make me mad!It feels like an electrode is hitting me!These jerks give me pain at my lower left leg.I could also describe them as tics.
Has anybody experienced leg jerks or torso jerks while being on lyrica? I have constant almost unstoppable jerks which make me mad!It feels like an electrode is hitting me!These jerks give me pain at my lower left leg.I could also describe them as tics.
Katerina22
in
Restless Legs Syndrome
6 years ago
Sertraline,Tibilone Decapeptyl
Hi all I’m currently on my 6th month of decapeptyl and have been taking Tibilone alongside it for 3 months. My Dr has agreed to give me it for a year while I’m on the waiting list for surgery (triple discipline bowel,bladder and gynae so long wait list) and my pain is much improved however my mood
Hi all I’m currently on my 6th month of decapeptyl and have been taking Tibilone alongside it for 3 months. My Dr has agreed to give me it for a year while I’m on the waiting list for surgery (triple discipline bowel,bladder and gynae so long wait list) and my pain is much improved however my mood
GemParki
in
Endometriosis UK
6 years ago
Do I have Sjogrens ??
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia (skin), extreme dry eyes, mouth, skin...Been going on now since January. Saw a Rheumatologist, blood work... She's uncertain ! Saw Neurologist...Had EME'S for Peripheral Neuropathy... results are negative ‼️Now back to Rheumatologist on
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia (skin), extreme dry eyes, mouth, skin...Been going on now since January. Saw a Rheumatologist, blood work... She's uncertain ! Saw Neurologist...Had EME'S for Peripheral Neuropathy... results are negative ‼️Now back to Rheumatologist on
Bettyboop71345
in
The Australian Sjögren's Syndrome Association
6 years ago
Desperately needing advice please
Following down reg on buserelin I went for a scan today. It’s day 2 of my period and I was expecting them to say that my lining is nice and thin and I’m ready to start stimulation. Instead I was confronted with a huge black blob on the screen. They have found a cyst on my right side. It was so big that
Following down reg on buserelin I went for a scan today. It’s day 2 of my period and I was expecting them to say that my lining is nice and thin and I’m ready to start stimulation. Instead I was confronted with a huge black blob on the screen. They have found a cyst on my right side. It was so big that
Rainbowhope
in
Fertility Network UK
6 years ago
Throat issues
Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with muscle involvement of the oesophagus. I have had manometry tests which show the muscles of the oesophagus are affected Recently I have been experiencing a feeling of having lump in my throat around the Adams apple area making
Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with muscle involvement of the oesophagus. I have had manometry tests which show the muscles of the oesophagus are affected Recently I have been experiencing a feeling of having lump in my throat around the Adams apple area making
newton
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Spotting during pregnancy
I am currently 7 weeks pregnant and last week I started spotting. The spotting increases after a bowel movement. I went to the doctor thinking a miscarriage, but the baby showed a heartbeat. They put me on bedrest until I return to the doctor this Wednesday. The spotting still continues. It’s a dark
I am currently 7 weeks pregnant and last week I started spotting. The spotting increases after a bowel movement. I went to the doctor thinking a miscarriage, but the baby showed a heartbeat. They put me on bedrest until I return to the doctor this Wednesday. The spotting still continues. It’s a dark
Mandeelee19
in
Pregnancy and Parenting Support
6 years ago
Update on my twin pregnancy
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Bobenhams3
in
Fertility Network UK
6 years ago
Warning - 12 Week Scan - Very Thankful
Hello ladies, We had our 12 week scan on Tuesday but I wanted to wait until our Nifty results were in too before I posted - not wanting to tempt fate and all that! All chromosome conditions have come back as low risk and the scan showed that all is well with the baby. After losing our first baby to
Hello ladies, We had our 12 week scan on Tuesday but I wanted to wait until our Nifty results were in too before I posted - not wanting to tempt fate and all that! All chromosome conditions have come back as low risk and the scan showed that all is well with the baby. After losing our first baby to
precioce
in
Fertility Network UK
6 years ago
Dopamine Agonist doses - the new maximum
From Buchfuhrer, Mark J., Strategies for the Treatment of Restless Legs Syndrome; Neurotherapeutics (2012) 9:776-790 Both of these drugs should be started at their lowest dose (ropinirole at 0.25 mg and pramipexole at 0.125 mg) and increased if necessary every 5 to 7 days by their initial dose until
From Buchfuhrer, Mark J., Strategies for the Treatment of Restless Legs Syndrome; Neurotherapeutics (2012) 9:776-790 Both of these drugs should be started at their lowest dose (ropinirole at 0.25 mg and pramipexole at 0.125 mg) and increased if necessary every 5 to 7 days by their initial dose until
involuntarydancer
in
Restless Legs Syndrome
6 years ago
Anyone else with other painful conditions?
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
lily82
in
Ehlers-Danlos Support UK
6 years ago
Help to find a nottingham rheumatologist with EDS interest
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Daniellak
in
Ehlers-Danlos Support UK
6 years ago
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