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Coagulation factor IX
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What does it mean to have raised Homocysteine but normal MMA?
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
GW1000
in
Pernicious Anaemia Society
5 months ago
copy of letter sent to GP surgery
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
Beadbuddy
in
Pernicious Anaemia Society
6 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
6 months ago
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Have I got RA ?
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
5goFlotilla
in
NRAS
6 months ago
Full-text article from 1969
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
WiscGuy
in
Pernicious Anaemia Society
6 months ago
my story
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
Beadbuddy
in
Pernicious Anaemia Society
6 months ago
Yet another clueless G.P. - I despair!
So, I've been getting symptoms that I'm pretty sure are down to my thyroid being on the fritz. I was recommended a new G.P. at the practice who takes an interest in autoimmune problems. So I sit down, tell her that my hair is falling out, I'm gaining weight, tired, palpitations etc and that I have autoimmune
So, I've been getting symptoms that I'm pretty sure are down to my thyroid being on the fritz. I was recommended a new G.P. at the practice who takes an interest in autoimmune problems. So I sit down, tell her that my hair is falling out, I'm gaining weight, tired, palpitations etc and that I have autoimmune
topazrat
in
Pernicious Anaemia Society
6 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
6 months ago
Latest results and my plan...
Hello I am symptomatic of low B12 and/or Hypothyroidism. GP isn't concerned and advised me to take B12 supplements, but will retest Thyroid in 6 months time. My plan is to raise B12, Ferretin, Foltate, and Vit D to the top 25% of range and then see how I feel and redo TFTs. I am happy to pay
Hello I am symptomatic of low B12 and/or Hypothyroidism. GP isn't concerned and advised me to take B12 supplements, but will retest Thyroid in 6 months time. My plan is to raise B12, Ferretin, Foltate, and Vit D to the top 25% of range and then see how I feel and redo TFTs. I am happy to pay
Spritze
in
Thyroid UK
6 months ago
The saga continues Daughters Bloods
So previously https://healthunlocked.com/pasoc/posts/150272370/daughters-blood-results-advice-please?responses=150276420 had discussion today with the GP who is dealing with daughter, was actually in there with youngest. After youngest was dealt with we discussed where we were up to with older girl
So previously https://healthunlocked.com/pasoc/posts/150272370/daughters-blood-results-advice-please?responses=150276420 had discussion today with the GP who is dealing with daughter, was actually in there with youngest. After youngest was dealt with we discussed where we were up to with older girl
Polo22
in
Pernicious Anaemia Society
6 months ago
Hypothesis II
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Daughters blood results, advice please
15 year old daughter has been having lots of time off school. not ideal in yr 10 and now 11. I feel a bit guilty about it all, think I have dropped the ball on this one. She had digestion problems when small, had an umbilical hernia repaired about 2 1/2- 3 years then several years of issues, vomiting
15 year old daughter has been having lots of time off school. not ideal in yr 10 and now 11. I feel a bit guilty about it all, think I have dropped the ball on this one. She had digestion problems when small, had an umbilical hernia repaired about 2 1/2- 3 years then several years of issues, vomiting
Polo22
in
Pernicious Anaemia Society
6 months ago
How likely is it I have PA
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Sparkleros
in
Pernicious Anaemia Society
6 months ago
Does this sound like osteoarthritis - or something else?
Hi everyone, I wonder if I can please get some help. I’ve been experiencing widespread body pain for c.3 years. I initially put this down to the menopause and earlier this year I started to focus on my under active thyroid - I’m not yet optimally medicated for that (takes a while). In May I decided
Hi everyone, I wonder if I can please get some help. I’ve been experiencing widespread body pain for c.3 years. I initially put this down to the menopause and earlier this year I started to focus on my under active thyroid - I’m not yet optimally medicated for that (takes a while). In May I decided
J972
in
NRAS
6 months ago
Castor Oil Packs
Have any of you tried this? Was recommended to me by a natural therapist, she has a client who it really helped. Below are links to what they do. https://healf.com/blogs/health-journal/what-are-castor-oil-packs-how-do-they-work-and-what-do-they-do https://thewellnessjunction.com/the-benefits-of-using-castor-oil-packs-for-your-thyroid
Have any of you tried this? Was recommended to me by a natural therapist, she has a client who it really helped. Below are links to what they do. https://healf.com/blogs/health-journal/what-are-castor-oil-packs-how-do-they-work-and-what-do-they-do https://thewellnessjunction.com/the-benefits-of-using-castor-oil-packs-for-your-thyroid
Nomad12
in
Thyroid UK
19 days ago
lapararoscopy
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
Ova104
in
My Ovacome
20 days ago
Do those with thin linings have light periods?
Hello,I have unexplained infertility. Have had one failed cycle that produced 3 good quality blasts. 1 x fresh failed and 2 x FET both failed to implant. I had one cycle cancelled due to thin lining of 5.5mm. I now take additional estrogen, Viagra, Aspirin and progesterone which have given me a lining
Hello,I have unexplained infertility. Have had one failed cycle that produced 3 good quality blasts. 1 x fresh failed and 2 x FET both failed to implant. I had one cycle cancelled due to thin lining of 5.5mm. I now take additional estrogen, Viagra, Aspirin and progesterone which have given me a lining
AmyG18
in
Fertility Network UK
20 days ago
Testing for Intrinsic Factor - borderline results
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Discombobulated247
in
Pernicious Anaemia Society
7 months ago
Polymyalgia and Rheumatoid arthritis
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
Deemar
in
PMRGCAuk
7 months ago
High B12 - more tests needed?
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
AnotherEarlyRiser
in
Pernicious Anaemia Society
7 months ago
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