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need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
3 months ago
Help with intrinsic factor results
hi all i was recently told i tested positive for gastro parietal cells. This is my intrinsic factor results. Im confused is this a positive or negative? And what would the parietal cells with this result mean?
hi all i was recently told i tested positive for gastro parietal cells. This is my intrinsic factor results. Im confused is this a positive or negative? And what would the parietal cells with this result mean?
Confused1806
in
Pernicious Anaemia Society
3 months ago
IFABs Borderline?
Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL Range <1.2 Negative 1.2-1.53 Borderline >1.53 Positive how can this be? surely anything over 1.2 is positive or is my brain too feeble to understand🥴 any thoughts would be appreciated🙃
Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL Range <1.2 Negative 1.2-1.53 Borderline >1.53 Positive how can this be? surely anything over 1.2 is positive or is my brain too feeble to understand🥴 any thoughts would be appreciated🙃
Doeyditdot
in
Pernicious Anaemia Society
3 months ago
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INSECT BITE OVERREACTION Could this trigger lupus or lupus like reaction?
I felt rotten for a couple of days. Then woke up the third day with a really big blistery looking bite on my right thumb. It looked really inflamed and had a sort of paler ring around it and around that there was a rectangle of inflammation spread round thumb and to the base. As the day wore on,more
I felt rotten for a couple of days. Then woke up the third day with a really big blistery looking bite on my right thumb. It looked really inflamed and had a sort of paler ring around it and around that there was a rectangle of inflammation spread round thumb and to the base. As the day wore on,more
Mmef1304
in
LUPUS UK
4 months ago
Can you help me with an advice, please
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Geoegeta
in
Thyroid UK
4 months ago
AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
4 months ago
Bone profile?
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Kayls32
in
Pernicious Anaemia Society
4 months ago
So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
4 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
4 months ago
Thought about Intrinsic factor
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
PaintLadie
in
Pernicious Anaemia Society
4 months ago
Supplement Help Please
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Barley_84
in
Pernicious Anaemia Society
4 months ago
Feeling poorly
Evening everyone, I have continued to feel increasingly unwell. Shoulder and neck pain continues and keeps me awake or wakes me up every night now. I sometimes wake up with sweat around my neck and chest. The steroid injection I had 13 days ago helped a bit to decrease the intensity of pain but it hasn
Evening everyone, I have continued to feel increasingly unwell. Shoulder and neck pain continues and keeps me awake or wakes me up every night now. I sometimes wake up with sweat around my neck and chest. The steroid injection I had 13 days ago helped a bit to decrease the intensity of pain but it hasn
MsWhistledown
in
Thyroid UK
5 months ago
GP appointment and blood tests - will recent steroid injection skew results?
Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. Went through everything that has happened since the summer. She sent me for blood tests today which included CRP, ESR, Rheumatoid factor and various other tests relating to autoimmune conditions. She insisted I call back for
Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. Went through everything that has happened since the summer. She sent me for blood tests today which included CRP, ESR, Rheumatoid factor and various other tests relating to autoimmune conditions. She insisted I call back for
MsWhistledown
in
PMRGCAuk
5 months ago
Daughters repeat bloods , off to Rapid Access this afternoon.
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Polo22
in
Pernicious Anaemia Society
5 months ago
Loading doses
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
Lilian15
in
Pernicious Anaemia Society
5 months ago
Loading doses of B12
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in
Lilian15
in
Diabetes & Hypertension Help Society
5 months ago
What does it mean to have raised Homocysteine but normal MMA?
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
GW1000
in
Pernicious Anaemia Society
5 months ago
copy of letter sent to GP surgery
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
Beadbuddy
in
Pernicious Anaemia Society
5 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
5 months ago
Have I got RA ?
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
5goFlotilla
in
NRAS
5 months ago
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