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B12 Deficient Newby
Hi All. Having recently been diagnosed with B12 deficiency I have been reading the posts here with interest. I am learning quickly but still have a few questions that my doc can't/won't answer. I have yet to be diagnosed with PA or the reason for my deficiency. It isn't to do with diet as I eat all
Hi All. Having recently been diagnosed with B12 deficiency I have been reading the posts here with interest. I am learning quickly but still have a few questions that my doc can't/won't answer. I have yet to be diagnosed with PA or the reason for my deficiency. It isn't to do with diet as I eat all
Wolf79
in
Pernicious Anaemia Society
5 years ago
Secondary Sjögren’s Syndrome in Lupus Increases with Age
Secondary Sjögren’s Syndrome in Lupus Increases with Age Katie Robinson October 7, 2019 Lupus, Sjögren's Syndrome Sjögren’s syndrome secondary to systemic lupus erythematosus (SLE) rises in frequency with age, affects around one-quarter of all people with systemic lupus, and, despite less internal
Secondary Sjögren’s Syndrome in Lupus Increases with Age Katie Robinson October 7, 2019 Lupus, Sjögren's Syndrome Sjögren’s syndrome secondary to systemic lupus erythematosus (SLE) rises in frequency with age, affects around one-quarter of all people with systemic lupus, and, despite less internal
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Intrinsic factor blood test results...
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I
Sarahlouise1980
in
Pernicious Anaemia Society
5 years ago
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Intrinsic factor blood test results...
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I would
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I would
Sarahlouise1980
in
Thyroid UK
5 years ago
Parietal cell antibody test
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
Nackapan
in
Pernicious Anaemia Society
5 years ago
Very low B12 Levels...
Hi All, I’ve been found to have very low levels of vitamin B12 & folate. I’m having a blood test to check the intrinsic factor tomorrow. If that comes back negative can I supplement myself to get my levels up or do I have to have injections?? My only symptom is hairloss! I’m on loading doses of vitamin
Hi All, I’ve been found to have very low levels of vitamin B12 & folate. I’m having a blood test to check the intrinsic factor tomorrow. If that comes back negative can I supplement myself to get my levels up or do I have to have injections?? My only symptom is hairloss! I’m on loading doses of vitamin
Sarahlouise1980
in
Thyroid UK
5 years ago
New on here and seeking advice
Hi everyone. Until last week, I knew nothing about PBC and I have found out a lot from this forum and from the pbc foundation website. So thank you. I am going to see my GP this week, and I am looking for some advice. First a brief background. Until 4 months ago I was well ... then I started getting
Hi everyone. Until last week, I knew nothing about PBC and I have found out a lot from this forum and from the pbc foundation website. So thank you. I am going to see my GP this week, and I am looking for some advice. First a brief background. Until 4 months ago I was well ... then I started getting
Pootleflump
in
PBC Foundation
5 years ago
Diet during treatment
I'm in the middle of my b12 injection treatment, having completed 7 daily injections and two injections once a week. I'm positive for intrinsic factor blocking antibody, and we're confirming whether I have PA with an endoscopy in the next weeks. My question: What should my diet be at this point? Balanced
I'm in the middle of my b12 injection treatment, having completed 7 daily injections and two injections once a week. I'm positive for intrinsic factor blocking antibody, and we're confirming whether I have PA with an endoscopy in the next weeks. My question: What should my diet be at this point? Balanced
CocoSimon
in
Pernicious Anaemia Society
5 years ago
Success — Short-lived
Drs appointment today following 2 weeks of every other day injections... said he’s stopping them due to neuro symptoms and won’t have another for 2 months!! I explained that in the BNF book states until no further improvement... did not listen at all !! I said I felt really worried and anxious about
Drs appointment today following 2 weeks of every other day injections... said he’s stopping them due to neuro symptoms and won’t have another for 2 months!! I explained that in the BNF book states until no further improvement... did not listen at all !! I said I felt really worried and anxious about
SMXX
in
Pernicious Anaemia Society
5 years ago
Discontinuing B12 injections.
My mother had PA. According to parietal cell and intrinsic factor tests, I don't. My B12 was low but at the time I was taking omeprazole. If I had a blood test now, how long would I need to wait before having another one to determine whether I need injections for life or not? Can high B12 cause paraesthesia
My mother had PA. According to parietal cell and intrinsic factor tests, I don't. My B12 was low but at the time I was taking omeprazole. If I had a blood test now, how long would I need to wait before having another one to determine whether I need injections for life or not? Can high B12 cause paraesthesia
ABC852031
in
Pernicious Anaemia Society
5 years ago
Hairloss - very worried 😧
Hello All, I am regular poster on the thyroid forum but this is my first post here! My question is has anyone experienced hairloss due to very low B12 and folate levels? I’ve had hairloss for five months now and have lost a lot of hair. I’m waiting for the intrinsic factor (?) blood test before I start
Hello All, I am regular poster on the thyroid forum but this is my first post here! My question is has anyone experienced hairloss due to very low B12 and folate levels? I’ve had hairloss for five months now and have lost a lot of hair. I’m waiting for the intrinsic factor (?) blood test before I start
Sarahlouise1980
in
Pernicious Anaemia Society
5 years ago
Consultant letter
It has arrived and says small inflammation but I do not have significant Rheumatoid factor protein but it confirms I have elevated level of CCP so therefore I have RA. So now methx and ulta sound next. 2nd & 8th Oct. I think he did not believe me when I was in there so glad in one way it shows something
It has arrived and says small inflammation but I do not have significant Rheumatoid factor protein but it confirms I have elevated level of CCP so therefore I have RA. So now methx and ulta sound next. 2nd & 8th Oct. I think he did not believe me when I was in there so glad in one way it shows something
Hidden
in
NRAS
5 years ago
What were your symptoms just prior to treatment?
What a great site, so glad I stumbled on to it. A big thank you for all the testimonies on my previous post. I have another question here, but first: My case seems quite unique in that I virtually have to symptoms other than an occasional dull ache in some lymph nodes (groin area) but no swelling. BTW
What a great site, so glad I stumbled on to it. A big thank you for all the testimonies on my previous post. I have another question here, but first: My case seems quite unique in that I virtually have to symptoms other than an occasional dull ache in some lymph nodes (groin area) but no swelling. BTW
12Caine12
in
CLL Support
5 years ago
Biopsy Results
Hi all, You may remember a few months ago I posted about protein in my urine as well as slightly echogenic kidneys. Well I have had my biopsy results and I am finding the results a little confusing. The official results were “immune complex-mediated glomerulonephritis with segmental glomerular scarring
Hi all, You may remember a few months ago I posted about protein in my urine as well as slightly echogenic kidneys. Well I have had my biopsy results and I am finding the results a little confusing. The official results were “immune complex-mediated glomerulonephritis with segmental glomerular scarring
Lihyu
in
Early CKD Support
5 years ago
Intrinsic Factor Reference Ranges
Hi, I wonder if anyone can shed some light on these reference ranges for intrinsic factor. The first one was done 2013, when I was convinced I had PA. The second one was done in June this year by Medichecks. The third one was done by my GP on the 29th of August. I have no idea why she ordered it as
Hi, I wonder if anyone can shed some light on these reference ranges for intrinsic factor. The first one was done 2013, when I was convinced I had PA. The second one was done in June this year by Medichecks. The third one was done by my GP on the 29th of August. I have no idea why she ordered it as
miravet
in
Pernicious Anaemia Society
5 years ago
Ra affecting the cervical spine
Hello all! This seems like such a nice, supportive community I've stumbled upon here in my search for answers. I'm really looking for anyone with experience dealing with cervical spine issues. I'm 4 months into the 6 month wait for my appt. with a rheumatologist. Been dealing primarily with constant
Hello all! This seems like such a nice, supportive community I've stumbled upon here in my search for answers. I'm really looking for anyone with experience dealing with cervical spine issues. I'm 4 months into the 6 month wait for my appt. with a rheumatologist. Been dealing primarily with constant
uponthesun
in
NRAS
5 years ago
False Positive PA Test
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
lownskater52
in
Pernicious Anaemia Society
5 years ago
Anyone had any joy reducing or eliminating presence of parietal cell antibodies?
Has anyone had any help from visiting a gastroenterologist? Interventions (surgical or drugs?) by, or Advice from, a gastroentereologist? Can dietary adjustments help? Or are there known or suspected triggers (foods, toxins, stress etc), for the antibodies, that I can look to remove? (Similar to
Has anyone had any help from visiting a gastroenterologist? Interventions (surgical or drugs?) by, or Advice from, a gastroentereologist? Can dietary adjustments help? Or are there known or suspected triggers (foods, toxins, stress etc), for the antibodies, that I can look to remove? (Similar to
HowCome
in
Pernicious Anaemia Society
5 years ago
Does this sound right? Really confused
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic patient, especially the elderly. Because I have been very fatigued for a very long time (the reason for my clinic visit), my GP started me on
chicolini
in
Pernicious Anaemia Society
5 years ago
How to use castor oil packs
Hi Someone mentioned caster oil packs recently. I'd heard of using them before but I sort of forgot about them. Does anyone have experience of using them? (and just on abdomen or liver as well?) I understand how you use them just not sure when I should start and when to stop? I've just been given the
Hi Someone mentioned caster oil packs recently. I'd heard of using them before but I sort of forgot about them. Does anyone have experience of using them? (and just on abdomen or liver as well?) I understand how you use them just not sure when I should start and when to stop? I've just been given the
SharlyWarly
in
Fertility Network UK
5 years ago
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