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Coagulation factor IX
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Tests booked. Do I need to come off medication?
Hello, My tests are booked in, I wanted to know if there is any medication I am on that I should come off before I have these tests done and how long before the tests are done. The tests I am having are the following= HbA1c, Bone Profile, Serum Vitamin B12, ESR, Full Blood Count, Serum Ferritin,
Hello, My tests are booked in, I wanted to know if there is any medication I am on that I should come off before I have these tests done and how long before the tests are done. The tests I am having are the following= HbA1c, Bone Profile, Serum Vitamin B12, ESR, Full Blood Count, Serum Ferritin,
sunflower022
in
Thyroid UK
1 year ago
Recently diagnosed - help request to understand test results
I was diagnosed with hypothyroidism in February and prescribed Levothyroxine 50mg per day. My February blood tests resulted in a diagnosis of Hashimoto's Disease and an increase to 100mg per day. My GP told me that my latest test results (18.04.23) show that my thyroid is normal and I'm negative for
I was diagnosed with hypothyroidism in February and prescribed Levothyroxine 50mg per day. My February blood tests resulted in a diagnosis of Hashimoto's Disease and an increase to 100mg per day. My GP told me that my latest test results (18.04.23) show that my thyroid is normal and I'm negative for
Slowrunner1208
in
Thyroid UK
1 year ago
I believe you.
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
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Tracking your B12 changes after injections? (Please share if so)
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Pante
in
Pernicious Anaemia Society
1 year ago
any advice please
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
Thrones12
in
Pernicious Anaemia Society
1 year ago
Another ignorant GP - "is PA forever?" he asked
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
HKAnne
in
Pernicious Anaemia Society
1 year ago
I’m new to this forum
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
Isla-baby
in
NRAS
1 year ago
Can I eat better to aid stomach acid?
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Mocha23
in
Pernicious Anaemia Society
1 year ago
RF, RA, Rayos & Pain
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
Jojosteeler
in
NRAS
1 year ago
Epigenetics
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
pjoshea13
in
Fight Prostate Cancer
1 year ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Joint pain
Hi Gp tested for Anca, rheumatoid factor, ESR, which is the best place to interpret these results?
Hi Gp tested for Anca, rheumatoid factor, ESR, which is the best place to interpret these results?
Mividauk2
in
Thyroid UK
1 year ago
Getting a diagnosis
Hi I've had symptoms potentially related to a b12 problem just about all my life (I'm 50 now). I became very ill about 3 years ago with a typical list of symptoms along with extreme weight loss and loss of muscle mass. I was anaemic then and also had very low serum ferritin. I saw a neurologist who told
Hi I've had symptoms potentially related to a b12 problem just about all my life (I'm 50 now). I became very ill about 3 years ago with a typical list of symptoms along with extreme weight loss and loss of muscle mass. I was anaemic then and also had very low serum ferritin. I saw a neurologist who told
Uluru72
in
Pernicious Anaemia Society
1 year ago
Blood test results, vitamins and minerals
Hello everyone, I had my next blood test on 7th March, 9:45am, last levo dose was about 8:30am the day before. At the time of the test I was taking 50mcg Accord/Almus, increased from 25mcg on 12th January 2023 (this involved a brand change, in fact I've had 3 different brands so far). [u]Results/
Hello everyone, I had my next blood test on 7th March, 9:45am, last levo dose was about 8:30am the day before. At the time of the test I was taking 50mcg Accord/Almus, increased from 25mcg on 12th January 2023 (this involved a brand change, in fact I've had 3 different brands so far). [u]Results/
Myalikki
in
Thyroid UK
1 year ago
OA in hip and right shoulder
I've tried Voltaren, Duloxetine ( which did not stop the pain) Aleve, Tylenol, shot in the hip. I really don't want surgery, I'm 69. I even tried castor oil poultice.Id like just like to manage pain at night so I can sleep.... During the day when I'm up I can deal but nights are the worst.
I've tried Voltaren, Duloxetine ( which did not stop the pain) Aleve, Tylenol, shot in the hip. I really don't want surgery, I'm 69. I even tried castor oil poultice.Id like just like to manage pain at night so I can sleep.... During the day when I'm up I can deal but nights are the worst.
Que27
in
Osteoarthritis Action
1 year ago
Atropic gastritis? Symptoms of B12 deficiency?
Hi all. I've been having some concerning symptoms for about 3 months. It all started with random abdominal pains and low back pain. It is now radiating down my groin and into the backs and sides of the thighs. I saw my GP last month as the stomach pains are now very bad, horrible burning pain,
Hi all. I've been having some concerning symptoms for about 3 months. It all started with random abdominal pains and low back pain. It is now radiating down my groin and into the backs and sides of the thighs. I saw my GP last month as the stomach pains are now very bad, horrible burning pain,
vetnurse76
in
Pernicious Anaemia Society
1 year ago
What to expect?
Finger pain and swelling ongoing several months. No functional deficit. Rheumatoid factor mildly elevated and anti-CCP off the scale at >340. No rheumatology appointment yet - only just referred. Am I likely to be prescribed Methotrexate?
Finger pain and swelling ongoing several months. No functional deficit. Rheumatoid factor mildly elevated and anti-CCP off the scale at >340. No rheumatology appointment yet - only just referred. Am I likely to be prescribed Methotrexate?
Blahhhnlahh
in
PMRGCAuk
1 year ago
Latest GP diagnosis is... I’m getting old! I'm 55! Help with next steps please… 😠
Hi everyone. So had my GP follow up since my previous posts. My ferritin is 26, which the GP informs me is the highest it’s been since they tested in 2017. She assures me it's fine as it’s ‘in range’ [10 – 180]. She insists I ‘categorically cannot have low B12 symptoms’ with an ‘above range’ B12
Hi everyone. So had my GP follow up since my previous posts. My ferritin is 26, which the GP informs me is the highest it’s been since they tested in 2017. She assures me it's fine as it’s ‘in range’ [10 – 180]. She insists I ‘categorically cannot have low B12 symptoms’ with an ‘above range’ B12
KBird01
in
Pernicious Anaemia Society
1 year ago
neuropathy?
I am still awaiting my first rheumatologist appointment. My labs weren’t awful - ANA & CCP negative, but Rheumatoid factor 191 and slightly elevated Sed Rate and C-reactive protein. I had had very brief (20 seconds or less) bouts of vertigo and 6 falls in 9 months - so my doctor ordered and MRI and
I am still awaiting my first rheumatologist appointment. My labs weren’t awful - ANA & CCP negative, but Rheumatoid factor 191 and slightly elevated Sed Rate and C-reactive protein. I had had very brief (20 seconds or less) bouts of vertigo and 6 falls in 9 months - so my doctor ordered and MRI and
Jojosteeler
in
NRAS
1 year ago
puzzled
I have underactive thyroid and other medical problems have been tested in the past as positive for intrinsic factor antibodies and my mother had pernicious anaemia. I have annual blood tests but always told ‘normal’ I wonder though…. My latest result is Serum vitamin B12 level (XE2pf) 288 ng/L [110
I have underactive thyroid and other medical problems have been tested in the past as positive for intrinsic factor antibodies and my mother had pernicious anaemia. I have annual blood tests but always told ‘normal’ I wonder though…. My latest result is Serum vitamin B12 level (XE2pf) 288 ng/L [110
Sususulio
in
Pernicious Anaemia Society
1 year ago
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