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Coagulation factor IX
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Lack of Intrinsic Factor
So after a wait of 2 & a half yrs I finally got my marker test, along with my regular thyroid, cholesterol & general tests. I’ve been told Ive lack of intrinsic factor and i’m to have 3monthly B12 injections for life. I previously had a course of 6 injections in February this year, and the same 2yrs
So after a wait of 2 & a half yrs I finally got my marker test, along with my regular thyroid, cholesterol & general tests. I’ve been told Ive lack of intrinsic factor and i’m to have 3monthly B12 injections for life. I previously had a course of 6 injections in February this year, and the same 2yrs
MrsSAcky
in
Pernicious Anaemia Society
4 years ago
Lining finally got to 8mm. Transfer booked for next week. Advice on caster oil and raspberry leaf tea
Hi Ladies.. I went for my scan this morning and I my lining was 8mm this time (woohoo so happy as it has taken us so long to get this far) so we are good to go with our 2nd FET next Friday! (6 day blastocyst 4bb). I was wondering though when should I stop taking raspberry leaf tablets and drinking the
Hi Ladies.. I went for my scan this morning and I my lining was 8mm this time (woohoo so happy as it has taken us so long to get this far) so we are good to go with our 2nd FET next Friday! (6 day blastocyst 4bb). I was wondering though when should I stop taking raspberry leaf tablets and drinking the
Hope_1234
in
Fertility Network UK
4 years ago
Post-treatment lab results -- interpretation help appreciated!
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
still_elsewhere
in
Pernicious Anaemia Society
4 years ago
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Tests to prove B12 injection need to my doctor: Schillings, Active B12 MMA (are they the same?)
I’m asking because I’ve convinced her to prescribe injections for once a week, but am always concerned that my extra supply from Germany might run out. I’ve never had the Schilling’s Test or Intrinsic Factor (are they different?) Nor have I had an MMA ( which I would assume would be normal now) My
I’m asking because I’ve convinced her to prescribe injections for once a week, but am always concerned that my extra supply from Germany might run out. I’ve never had the Schilling’s Test or Intrinsic Factor (are they different?) Nor have I had an MMA ( which I would assume would be normal now) My
KEFNB
in
Pernicious Anaemia Society
4 years ago
Anybody had a embryo transfer with a lining measuring 6mm?
Just wondering if there are any ladies on the forum that have had transfers with a lining measuring around 6mm? I’ve been trying to have a frozen transfer for over a year now and have just had my 5th FET attempt cancelled. My clinic wants my lining to be over 7mm but it averages around 6mm (6.4mm is
Just wondering if there are any ladies on the forum that have had transfers with a lining measuring around 6mm? I’ve been trying to have a frozen transfer for over a year now and have just had my 5th FET attempt cancelled. My clinic wants my lining to be over 7mm but it averages around 6mm (6.4mm is
Lavender96
in
Fertility Network UK
4 years ago
Anyone had mild cramping before FET
I am on 6mg progynova and suprecur nasal spray 4 times a day, I have started getting mild cramping, i had a scan on Tuesday and they said my lining wasn’t thick enough so I have been trying other natural things to thicken it up like POM juice, Brazil nuts, raspberry leaf tea and I have got castor oil
I am on 6mg progynova and suprecur nasal spray 4 times a day, I have started getting mild cramping, i had a scan on Tuesday and they said my lining wasn’t thick enough so I have been trying other natural things to thicken it up like POM juice, Brazil nuts, raspberry leaf tea and I have got castor oil
Laurens95
in
Fertility Network UK
4 years ago
Blood results
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Wellington1
in
Pernicious Anaemia Society
4 years ago
New, scared and need some advice please
Hello, I am new to this forum but not RA. I was diagnosed in 2016 showing positive for the rheumatoid factor in my blood test. I was treated with hydroxychloroquine but not for long. I think it was stopped because my symptoms went away. Anyway 4 years on and I’m really struggling. I developed a hive
Hello, I am new to this forum but not RA. I was diagnosed in 2016 showing positive for the rheumatoid factor in my blood test. I was treated with hydroxychloroquine but not for long. I think it was stopped because my symptoms went away. Anyway 4 years on and I’m really struggling. I developed a hive
Hazel2020
in
NRAS
4 years ago
Receiving monthly Avastin injections now 5 days past due and I notice a decrease in vision
Being treated for CNV. Somehow, I was given a 5 week follow up form my next injection so instead of receiving my scheduled 4 week injection last week, I will get it this week. My vision was getting better and I was able to read things I couldn't read before. Yesterday my vision wasn't nearly as good
Being treated for CNV. Somehow, I was given a 5 week follow up form my next injection so instead of receiving my scheduled 4 week injection last week, I will get it this week. My vision was getting better and I was able to read things I couldn't read before. Yesterday my vision wasn't nearly as good
Edman777
in
Macular Society
4 years ago
First Rheumy appointment (since PMR diagnosis by GP) totally disappointing! Sorry no question just bringing myself back to reality!
Sooooo.... Long story short after a telehealth visit- according to the rheumatologist I was too young in March 2020 to be diagnosed at 51 years old with PMR. Really! Was I expecting something different? I lived in the hope that maybe my case would have a different outcome to so many others diagnosed
Sooooo.... Long story short after a telehealth visit- according to the rheumatologist I was too young in March 2020 to be diagnosed at 51 years old with PMR. Really! Was I expecting something different? I lived in the hope that maybe my case would have a different outcome to so many others diagnosed
Surami2020
in
PMRGCAuk
4 years ago
2 Cyst on baseline scan
hello all i am after some real help. day i went for my baseline scan to try a round of IUI after i was a poor responder to IVF last month. my period has already been a week later due to all the meds i was taking and i was over the moon to head to the clinic to start IUI. to my horror i was told i have
hello all i am after some real help. day i went for my baseline scan to try a round of IUI after i was a poor responder to IVF last month. my period has already been a week later due to all the meds i was taking and i was over the moon to head to the clinic to start IUI. to my horror i was told i have
Rumi40
in
Fertility Network UK
4 years ago
FERRITEN iron
FERRITEN level 39 Gp says in range I went b12 defiency in March this year had loading doses etc and folic to raise levels I eat meat etc and good food Intrinsic factor was normal It’s now sept still symptomatic mainly ear hiss and humming which is vile I requested h pylori test it was positive ?
FERRITEN level 39 Gp says in range I went b12 defiency in March this year had loading doses etc and folic to raise levels I eat meat etc and good food Intrinsic factor was normal It’s now sept still symptomatic mainly ear hiss and humming which is vile I requested h pylori test it was positive ?
Milley2
in
Pernicious Anaemia Society
4 years ago
Reference for not testing once b12 injections started? Threatening to stop injections due to high b12 levels in blood test.
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
TFH1
in
Pernicious Anaemia Society
4 years ago
No more injections for 3 months
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
katamarang
in
Pernicious Anaemia Society
4 years ago
Bloods and medication ordered by Oral Medicine Consultant ...refused by GP.
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Minnskimoo
in
LUPUS UK
4 years ago
Pernicious Anemia with worsening neuropathy. I'm new here.
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
jimmel196
in
Pernicious Anaemia Society
4 years ago
B12 neuro folic acid
Neuro bad symtoms there’s so much different advice around I’m so confused most are saying b12 injections are useless without folic acid or folate ? Others say you don’t need it if your levels are within range So how on earth do you keep track etc if you b12 every other day and if that uses folate you
Neuro bad symtoms there’s so much different advice around I’m so confused most are saying b12 injections are useless without folic acid or folate ? Others say you don’t need it if your levels are within range So how on earth do you keep track etc if you b12 every other day and if that uses folate you
Milley2
in
Pernicious Anaemia Society
4 years ago
Diagnostic tests
Hi everyone, I was wondering which tests people had to reach their diagnosis? I have many of the symptoms and a raised MCH. However, my intrinsic factor test just came back negative today. My B12 levels tend to be around 250. I also have Hashimotos Thyroiditis. My GP says she thinks I don't have PA and
Hi everyone, I was wondering which tests people had to reach their diagnosis? I have many of the symptoms and a raised MCH. However, my intrinsic factor test just came back negative today. My B12 levels tend to be around 250. I also have Hashimotos Thyroiditis. My GP says she thinks I don't have PA and
Auntbessy
in
Pernicious Anaemia Society
4 years ago
Doctors want to stop injections altogether
Hello all, Following my recent post re. contacting my doctor’s surgery about coming back in for injections (for free as usual) rather than self-injecting at home (for £9.15 (and rising) a pop), I’ve received a letter in the post from my GP... She has used this opportunity to write to me informing me
Hello all, Following my recent post re. contacting my doctor’s surgery about coming back in for injections (for free as usual) rather than self-injecting at home (for £9.15 (and rising) a pop), I’ve received a letter in the post from my GP... She has used this opportunity to write to me informing me
amydemi
in
Pernicious Anaemia Society
4 years ago
Pain
Have had pain in my hands and less so in my elbows and shoulders for several months. My GP has spoken on the phone to me and been given voltarol gel which helps a bit. Blood tests show raised inflammatory markers and rheumatoid factor. Have been referred to rheumatology as GP thinks rheumatoid arthritis
Have had pain in my hands and less so in my elbows and shoulders for several months. My GP has spoken on the phone to me and been given voltarol gel which helps a bit. Blood tests show raised inflammatory markers and rheumatoid factor. Have been referred to rheumatology as GP thinks rheumatoid arthritis
Dismal
in
NRAS
4 years ago
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