Search
Search
About
Log in
Join
Experiences with
Coagulation factor IX
Posts
Communities
1,617 public posts
Filter results
Newly diagnosed...and about time too!!
I had my appointment today with the rheumatologist and have come away with a positive diagnosis of rheumatoid arthritis. It's not come as a shock as you probably all diagnosed me long ago lol, I know I did. I already knew I had positive rheumatoid factor and raised esr however today I found out my anti
I had my appointment today with the rheumatologist and have come away with a positive diagnosis of rheumatoid arthritis. It's not come as a shock as you probably all diagnosed me long ago lol, I know I did. I already knew I had positive rheumatoid factor and raised esr however today I found out my anti
Hidden
in
NRAS
12 years ago
Please see question below. Sorry i wasnt sur ehow to enter this
Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss due to the Hughes. My hemotologist wants to put me on DDAVP because my Factor VIII is too low due to the vonWillebrands disease, however Im scared
Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss due to the Hughes. My hemotologist wants to put me on DDAVP because my Factor VIII is too low due to the vonWillebrands disease, however Im scared
lovemyheart
in
Hughes Syndrome APS Forum
12 years ago
Saw my GP today and I could scream!
I wrote a question a little while ago about how long a first rheumatology appointment should last as mine was very short and sweet with a negative diagnosis. The rheumatologist diagnosed carpal tunnel linked to my thyroid condition and discharged me. When I went back to my GP to ask about the carpal
I wrote a question a little while ago about how long a first rheumatology appointment should last as mine was very short and sweet with a negative diagnosis. The rheumatologist diagnosed carpal tunnel linked to my thyroid condition and discharged me. When I went back to my GP to ask about the carpal
Hidden
in
NRAS
12 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
How long should a first visit to a rheumatologist last?
My GP ran blood tests as I have been experiencing excruciating pain in my wrists, fingers and hands since July 2011. I have several swollen fingers on both hands, mostly the index and ring fingers. I also have occasional pain in my ankles, knees and hips, especially around menstruation. My blood tests
My GP ran blood tests as I have been experiencing excruciating pain in my wrists, fingers and hands since July 2011. I have several swollen fingers on both hands, mostly the index and ring fingers. I also have occasional pain in my ankles, knees and hips, especially around menstruation. My blood tests
Hidden
in
NRAS
13 years ago
Why low B12 is associated with autoimmune thyroiditis
Many people with autoimmune thyroiditis also have antibodies against the parietal cells that make up part of their stomachs. The effects of having these antibodies can include a reduction in the ability to absorb vitamin B12 from food. (The parietal cells produce intrinsic factor which is crucial to
Many people with autoimmune thyroiditis also have antibodies against the parietal cells that make up part of their stomachs. The effects of having these antibodies can include a reduction in the ability to absorb vitamin B12 from food. (The parietal cells produce intrinsic factor which is crucial to
helvella
Thyroid UK
in
Thyroid UK
14 years ago
Anaemia
Whilst I understand the B12 deficiency and auto immune attack on intrinsic factor, what I'm not clear about is the word anaemia in Pernicious Anaemia. I'm currently taking an iron supplement but want to know whether, besides the B12 deficiency this condition means I will always have an iron (anaemia
Whilst I understand the B12 deficiency and auto immune attack on intrinsic factor, what I'm not clear about is the word anaemia in Pernicious Anaemia. I'm currently taking an iron supplement but want to know whether, besides the B12 deficiency this condition means I will always have an iron (anaemia
Irene
in
Pernicious Anaemia Society
13 years ago
Histamines and Histaminosis
Could you ongoing problems post strict GF diet be caused by something non CD? We've had a number of recent questions on histamines and sulphites on the question board and there's been lots on our facebook page about: - painful joints - fatigue - rashes (after wine) - bloating - wheezing (tight chest
Could you ongoing problems post strict GF diet be caused by something non CD? We've had a number of recent questions on histamines and sulphites on the question board and there's been lots on our facebook page about: - painful joints - fatigue - rashes (after wine) - bloating - wheezing (tight chest
FionaGFG
Administrator
in
Gluten Free Guerrillas
13 years ago
First and with a bit of luck my last blog - 50/50!
A quick update for those here who have advised me in the weeks leading up to my first rheumy appointment this morning. He seemed pretty sharp, although not a great listener and quite impatient. He told me that it's all very inconclusive - which has to be a very good thing for me really although too tired
A quick update for those here who have advised me in the weeks leading up to my first rheumy appointment this morning. He seemed pretty sharp, although not a great listener and quite impatient. He told me that it's all very inconclusive - which has to be a very good thing for me really although too tired
Hidden
in
NRAS
13 years ago
aspirated knee
i have had ra for two and half years, i test negative to the rheumatoid factor, although doc says i do have ra.. iam on methetrexate, and tnf humaira, it hasnt helped alot, my knees sweel up about every 8 weeks, needing to get them aspirated, and steriod injected into. With not being able to have a
i have had ra for two and half years, i test negative to the rheumatoid factor, although doc says i do have ra.. iam on methetrexate, and tnf humaira, it hasnt helped alot, my knees sweel up about every 8 weeks, needing to get them aspirated, and steriod injected into. With not being able to have a
gallini
in
NRAS
13 years ago
Aggressive Targeted B cell Approach to RA
As some of you may know I have been trying to understand why my consultant has deviated from standard NICE prescibing guidelines for RA and missed out Anti TNF and gone straight for Mabthira biologic treatment. Last night I stayed up really late searching the web. ( when my consultant mentioned Mabthira
As some of you may know I have been trying to understand why my consultant has deviated from standard NICE prescibing guidelines for RA and missed out Anti TNF and gone straight for Mabthira biologic treatment. Last night I stayed up really late searching the web. ( when my consultant mentioned Mabthira
Hidden
in
NRAS
13 years ago
Negative to Positive!
Here's an interesting little gem! When you were diagnosed were you told that according to the Rheumatoid Factor you were either sero-negative or sero-positive? The Rheumatoid Factor is an immunoglobulin antibody that is found in the blood of around 80% of people with rheumatoid arthritis and is a
Here's an interesting little gem! When you were diagnosed were you told that according to the Rheumatoid Factor you were either sero-negative or sero-positive? The Rheumatoid Factor is an immunoglobulin antibody that is found in the blood of around 80% of people with rheumatoid arthritis and is a
Hidden
in
NRAS
13 years ago
Today I am absolutely positive!
Well, what a turnround! Not sure whether to be shocked or whether I should actually have seen it coming. I suppose I just accept the inevitable as yet another unexpected change along the path of the Rheumatoid journey. I was diagnosed with sero-negative RA 23 years ago, aged 31; the Rheumatoid Factor
Well, what a turnround! Not sure whether to be shocked or whether I should actually have seen it coming. I suppose I just accept the inevitable as yet another unexpected change along the path of the Rheumatoid journey. I was diagnosed with sero-negative RA 23 years ago, aged 31; the Rheumatoid Factor
Hidden
in
NRAS
13 years ago
Is the Rheumatoid factor ever checked again after the first positive one?
w
w
Gina_K
in
NRAS
13 years ago
late diagnosis
I was diagnosed as having RA 2 weeks ago,and wondered if anyone else had a late in life diagnosis,i am in my sixties i have had painful joints for years feet fingers and elbows ,However i had a blood test for the Rheumatoid factor plus the ESR,this was positive,the surgery rang up to tell me to make
I was diagnosed as having RA 2 weeks ago,and wondered if anyone else had a late in life diagnosis,i am in my sixties i have had painful joints for years feet fingers and elbows ,However i had a blood test for the Rheumatoid factor plus the ESR,this was positive,the surgery rang up to tell me to make
thinkpositive
in
NRAS
13 years ago
What is a blog? I have Severe OA, but am soon to be tested for the Rheumatoid Factor - to see if I'll end up with RA as well?
ValerieBrennan
in
NRAS
13 years ago
Becoming an Expert Patient - article 2: Knowing Your Diagnosis
Knowing Your Diagnosis
Before you can become an expert patient, a patient who is expert in their own condition and how it affects them, you need to know what your condition is. [i]You need to know your diagnosis.[/i] There are essentially 3 parts to knowing your diagnosis with
Knowing Your Diagnosis
Before you can become an expert patient, a patient who is expert in their own condition and how it affects them, you need to know what your condition is. [i]You need to know your diagnosis.[/i] There are essentially 3 parts to knowing your diagnosis with
LindseyMid
in
Fibromyalgia Action UK
12 years ago
bloody doctors
just recived my letter from the rhumy from my last visit in febuary. when i went to the hosp he said i was fine and all my blood test came back fine. well just read the letter and it says i have a postive rheumatoid factor but he wrote it must be a red herring. am serious fed up with him the tests are
just recived my letter from the rhumy from my last visit in febuary. when i went to the hosp he said i was fine and all my blood test came back fine. well just read the letter and it says i have a postive rheumatoid factor but he wrote it must be a red herring. am serious fed up with him the tests are
emma58
in
NRAS
12 years ago
1
...
80
81
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
863 results
Thyroid UK
255 results
NRAS
154 results
View top 10 communities
Sort by
Most Relevant
Newest