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Coagulation factor IX
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Blood Test Results
Hi all š My Endocrinologist team has started an initiative of putting our care Records online so we can view test results. I was seen last January but not seen again till July because of lockdown. Iāve done several Medichecks blood tests and my Endo has seen these. At the July appointment, he took
Hi all š My Endocrinologist team has started an initiative of putting our care Records online so we can view test results. I was seen last January but not seen again till July because of lockdown. Iāve done several Medichecks blood tests and my Endo has seen these. At the July appointment, he took
Aslangal
in
Thyroid UK
4 years ago
Why is this? Sleep related.
Since starting my three loading doses in September my biggest problem has been insomnia and it has been a real struggle. I'm now waiting for the three monthly maintenance dose at the end of January and in sheer desperation I started taking oral B 12 supplements ten days ago. To my astonishment my
Since starting my three loading doses in September my biggest problem has been insomnia and it has been a real struggle. I'm now waiting for the three monthly maintenance dose at the end of January and in sheer desperation I started taking oral B 12 supplements ten days ago. To my astonishment my
firee
in
Pernicious Anaemia Society
4 years ago
Managing endo pain
Hi āŗļø Just wondering if anyone has found a miracle cure for managing endometriosis pain whilst on period š I get weekly acupuncture, use castor oil packs, take my pain killers days before period is due but nothing seems to be helping manage the pain š„. Contraception isn't an option at the moment,
Hi āŗļø Just wondering if anyone has found a miracle cure for managing endometriosis pain whilst on period š I get weekly acupuncture, use castor oil packs, take my pain killers days before period is due but nothing seems to be helping manage the pain š„. Contraception isn't an option at the moment,
Dolly51
in
Endometriosis UK
4 years ago
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Treatment for dry, peeling lips
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
roxanne67
in
The Australian Sjƶgren's Syndrome Association
4 years ago
B12 deficiency light
Hi all. I have had pernicious anaemia for many years and like many people here, I have struggled with the frequency of injections. To begin with 12 weeks seemed OK, but over the years this was failing to last. My GP put it down to 10 weeks which helped but I was still struggling towards the end so I
Hi all. I have had pernicious anaemia for many years and like many people here, I have struggled with the frequency of injections. To begin with 12 weeks seemed OK, but over the years this was failing to last. My GP put it down to 10 weeks which helped but I was still struggling towards the end so I
Beanydog
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor test
Hey guys, I am getting the intrinsic factor test tomorrow which my doctor highlighted as an unreliable test but managed to convince him to let me have it regardless ! Anyway, I have taken a single b12 supplement yesterday evening. This is probably a dumb question, but will this impact the test? Thank
Hey guys, I am getting the intrinsic factor test tomorrow which my doctor highlighted as an unreliable test but managed to convince him to let me have it regardless ! Anyway, I have taken a single b12 supplement yesterday evening. This is probably a dumb question, but will this impact the test? Thank
Job387
in
Pernicious Anaemia Society
4 years ago
Help convincing doctor to trial b12 injections
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Muddywinter1
in
Pernicious Anaemia Society
4 years ago
Advice please
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body canāt make the b12 I need then I usually get asked whyās that or how does that work and I really struggle to answer,Iām not completely thick I just donāt feel
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body canāt make the b12 I need then I usually get asked whyās that or how does that work and I really struggle to answer,Iām not completely thick I just donāt feel
Hidden
in
Pernicious Anaemia Society
4 years ago
B12 levels pa
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If Iām not absorbing from foods which isnāt to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If Iām not absorbing from foods which isnāt to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
Milley2
in
Pernicious Anaemia Society
4 years ago
Just wondering if this process sounds familiar?
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
BJC1980
in
NRAS
4 years ago
How long before symptoms return
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
wendyhoney
in
Pernicious Anaemia Society
4 years ago
B12 supplements with intrinsic factor
Has anyone tried b12 supplements with intrinsic factor ? Iām wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gpās to find
Has anyone tried b12 supplements with intrinsic factor ? Iām wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gpās to find
Samsungtracy
in
Pernicious Anaemia Society
4 years ago
IF test
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
BluebellPettle
in
Pernicious Anaemia Society
4 years ago
Hello long time no post!
Hello I first posted a few years back and with your help came to the conclusion that I was low in b12. Things Have moved on! But for context I continued to query my b12 with doctors, to no avail. I feel pregnant Oct 2018, again asked for my b12 to checked early in my pregnancy. It was ānormalā
Hello I first posted a few years back and with your help came to the conclusion that I was low in b12. Things Have moved on! But for context I continued to query my b12 with doctors, to no avail. I feel pregnant Oct 2018, again asked for my b12 to checked early in my pregnancy. It was ānormalā
BluebellPettle
in
Pernicious Anaemia Society
4 years ago
Oral b12 or injections
Diagnosed with low b12(130) had loading injections, not heard from gp since. I started self injecting hydroxycobalamin but continued feeling rubbish and have been waiting for neuro results due to weakness strange sensations etc . I donāt think anything has come up in those investigations so am left with
Diagnosed with low b12(130) had loading injections, not heard from gp since. I started self injecting hydroxycobalamin but continued feeling rubbish and have been waiting for neuro results due to weakness strange sensations etc . I donāt think anything has come up in those investigations so am left with
Mag999
in
Pernicious Anaemia Society
4 years ago
BAT, dutasteride, and my search for truth, Part 2 of 2
I believe it was Patrick who said āWhen 5alpha-reductase acts on T to produce DHT, this kicks off production of an enzyme to clear DHT from the cell. DHT has a very narrow window in which to promote growth. One of the metabolites of DHT is an estrogen - 3beta-adiol - which happens to be the natural
I believe it was Patrick who said āWhen 5alpha-reductase acts on T to produce DHT, this kicks off production of an enzyme to clear DHT from the cell. DHT has a very narrow window in which to promote growth. One of the metabolites of DHT is an estrogen - 3beta-adiol - which happens to be the natural
cigafred
in
Advanced Prostate Cancer
4 years ago
Iām not getting better :( advice??
Hi, New here.. Hoping to get some info on how long after loading doses before I should start to feel better Iām 23 years old and have always been very active (running, at the gym all the time). For the last few years I would say Iāve had a generalised level of fatigue (often having naps), but nothing
Hi, New here.. Hoping to get some info on how long after loading doses before I should start to feel better Iām 23 years old and have always been very active (running, at the gym all the time). For the last few years I would say Iāve had a generalised level of fatigue (often having naps), but nothing
Runnerblue7
in
Pernicious Anaemia Society
4 years ago
Feels like Iām on lifeās roundabout again.
Iāve been plodding away in the background trying my best to get answers without going down too many invasive routes as it terrorises me.Everything bad for me started with a severe head jury after one of my many falls and sheer neglect with my injuries and no Investgations as to why it had happened in
Iāve been plodding away in the background trying my best to get answers without going down too many invasive routes as it terrorises me.Everything bad for me started with a severe head jury after one of my many falls and sheer neglect with my injuries and no Investgations as to why it had happened in
Hidden
in
Pernicious Anaemia Society
4 years ago
Haptocorrin and B12 Absorption
I've pasted below an excerpt from a paper which described how low vitamin D levels can cause insomnia. It also discussed why low vitamin D can lead to B12 deficiency. During my many, many hours of online research I've never read anything about this, has anyone else? Why vitamin D deficiency can lead
I've pasted below an excerpt from a paper which described how low vitamin D levels can cause insomnia. It also discussed why low vitamin D can lead to B12 deficiency. During my many, many hours of online research I've never read anything about this, has anyone else? Why vitamin D deficiency can lead
MoKayD
in
Pernicious Anaemia Society
4 years ago
B12 serum level of 52
Hi Iām new here and just looking for advice. 12 years ago I was diagnosed with b12 deficiency with a level of 52 ng/l. At the time my symptoms were brain fog, fatigue, poor memory. My doctor said the b12 wasnāt causing my symptoms because I wasnāt anemic. He said I didnāt need injections and gave me
Hi Iām new here and just looking for advice. 12 years ago I was diagnosed with b12 deficiency with a level of 52 ng/l. At the time my symptoms were brain fog, fatigue, poor memory. My doctor said the b12 wasnāt causing my symptoms because I wasnāt anemic. He said I didnāt need injections and gave me
Inkworks
in
Pernicious Anaemia Society
4 years ago
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