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Chronic kidney disease (CKD)
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Peginterferon and platelets
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
Lyndjs
in
MPN Voice
4 months ago
Decipher this cholesterol reading please
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
IsleofWight1
in
LUPUS UK
4 months ago
Post Cardioversion advice
After 4 ‘failed’ ablations, I yesterday had a cardioversion for atrial tachycardia. I went back into NSR after only one shock on the lowest setting and my EP was pleased with how the procedure went. Does anyone have any advice about how I can try to stay in sinus? I know it’s a bit of a lottery but
After 4 ‘failed’ ablations, I yesterday had a cardioversion for atrial tachycardia. I went back into NSR after only one shock on the lowest setting and my EP was pleased with how the procedure went. Does anyone have any advice about how I can try to stay in sinus? I know it’s a bit of a lottery but
frankiec5
in
Atrial Fibrillation Support
4 months ago
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Vasculitis Awarenes Month
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
zoe69
Vasculitis UK
in
Vasculitis UK
4 months ago
Lopressor
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
farewelltoarms
in
Atrial Fibrillation Support
4 months ago
⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
4 months ago
Another experience proving we are all different
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
Peacefulneedshelp
in
Atrial Fibrillation Support
4 months ago
I Too Have Persistent Afib
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
theluckyone
in
Atrial Fibrillation Support
4 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
4 months ago
Benefit of coherent breathing
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
PhilFreeToAsk
in
PMRGCAuk
4 months ago
HF ongoing issues
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Nomis21
in
Atrial Fibrillation Support
4 months ago
Kidney Disease Clinical Trials: Are They Right for You?
Participating in a clinical trial could help you and future patients with
CKD
, but it is important to know possible risks and benefits involved. Learn more at: https://www.kidney.org/newsletter/kidney-disease-clinical-trials-are-they-right-you
Participating in a clinical trial could help you and future patients with
CKD
, but it is important to know possible risks and benefits involved. Learn more at: https://www.kidney.org/newsletter/kidney-disease-clinical-trials-are-they-right-you
JackieJ_NKF
Partner
in
Kidney Disease
1 year ago
Low BP preventing transplantation
In November 2022 he progressed to Stage 5
CKD
and had to start dialysis. He has low BP and is medicated to keep it up. The transplant team reviewed his case and said they cannot transplant him until his blood pressure is "normal" without medication.
In November 2022 he progressed to Stage 5
CKD
and had to start dialysis. He has low BP and is medicated to keep it up. The transplant team reviewed his case and said they cannot transplant him until his blood pressure is "normal" without medication.
WifeofDialysisMan
in
Dialysis Support
1 year ago
kidney disease and cbd gummies
im so mad right now i could spit nails.dr sanjay gupta showed up on my page promoting cbd gummies as a cure for ckd.they dont tell you the price of said cure until you order and ethe fact that shark tank seeded him the money only makes it worse.grrrr
im so mad right now i could spit nails.dr sanjay gupta showed up on my page promoting cbd gummies as a cure for ckd.they dont tell you the price of said cure until you order and ethe fact that shark tank seeded him the money only makes it worse.grrrr
S_dillow
in
Kidney Disease
7 months ago
I messed up
Hi fellow sufferers. Last year I attempted to rid myself of pramipexole due to augmentation. To do this I used kratom. Meanwhile I discovered that kratom worked wonders for my RLS, totally numbed it and made me sleep like a baby. Something I had not been experiencing using pramipexole, or at least
Hi fellow sufferers. Last year I attempted to rid myself of pramipexole due to augmentation. To do this I used kratom. Meanwhile I discovered that kratom worked wonders for my RLS, totally numbed it and made me sleep like a baby. Something I had not been experiencing using pramipexole, or at least
sigurdur
in
Restless Legs Syndrome
7 months ago
Low BP
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
Fishie1
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Sick from Ozempic
Does anyone know if protein drinks with zero sugar OK to have on
CKD
? I can’t find a lot online. I am not getting protein. I’m existing on soda crackers, scrambled egg, a little toast and small amounts of white rice.
Does anyone know if protein drinks with zero sugar OK to have on
CKD
? I can’t find a lot online. I am not getting protein. I’m existing on soda crackers, scrambled egg, a little toast and small amounts of white rice.
CuriousCKD
in
Kidney Disease
1 year ago
Extreme fatigue. Any solution?
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
jeeves19
in
Cure Parkinson's
4 months ago
CKD at 64
Hi All,At 64 years,, my egfr was 60 last year According to scans, my right kidney is a pile of cysts with 33 percent function and left about 66 with one small cyst. Would like to learn more about my condition! Open to suggestions. Thanks Steve
Hi All,At 64 years,, my egfr was 60 last year According to scans, my right kidney is a pile of cysts with 33 percent function and left about 66 with one small cyst. Would like to learn more about my condition! Open to suggestions. Thanks Steve
Steve507
in
Early CKD Support
1 year ago
⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
4 months ago
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