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Chronic kidney disease (CKD)
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just diagnosed with CKD stage 3.
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
Willowdene
in
Early CKD Support
1 year ago
Positive results after five months
I finally went to the hospital to a nephrologist - 6 months after realizing I had
CKD
stage 3.. my eGFR was about 50-53. No other symptoms..
I finally went to the hospital to a nephrologist - 6 months after realizing I had
CKD
stage 3.. my eGFR was about 50-53. No other symptoms..
Pisces101
in
Early CKD Support
7 months ago
FATIGUE
Has anyone with stage 4
ckd
been so fatigued that they could hardly put one foot in front of the other? Granted, I had some surgeries and other problems that rendered me quite sedentary, and being almost 77, I wonder if I haven’t acquired Sarcopenia, or if I’m just totally out of shape?
Has anyone with stage 4
ckd
been so fatigued that they could hardly put one foot in front of the other? Granted, I had some surgeries and other problems that rendered me quite sedentary, and being almost 77, I wonder if I haven’t acquired Sarcopenia, or if I’m just totally out of shape?
CuriousCKD
in
Kidney Disease
11 months ago
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Growth Hormone
Hi, has anyone with a child/teen with
CKD
decided to give growth hormones to their child? How did you make that decision and at what age did you begin? Or did you decide against it? We are being pressured to do so for the happiness of our child but have time to decide.
Hi, has anyone with a child/teen with
CKD
decided to give growth hormones to their child? How did you make that decision and at what age did you begin? Or did you decide against it? We are being pressured to do so for the happiness of our child but have time to decide.
MatrixMatriarch
in
Parents of Children with Kidney Disease
1 year ago
lisinopril
My GP, supported by my consultant has prescribed an Ace inhibitor Lisinopril as it is great benefit for
CKD
, even if you don’t have hypertension or diabetes. When I started on 10mg, 12 days ago, I felt so much better and had more energy, obviously due to better blood flow I believe.
My GP, supported by my consultant has prescribed an Ace inhibitor Lisinopril as it is great benefit for
CKD
, even if you don’t have hypertension or diabetes. When I started on 10mg, 12 days ago, I felt so much better and had more energy, obviously due to better blood flow I believe.
Miss-guineapig
in
Kidney Disease
11 months ago
BP Meds
I'm type 2D,
CKD
, IBS and been having mini strokes. Had all the medical intervention possible and still no answer. I certainly know what I don't have now, but I only want to know what I do have! Still taking blood thinners and Omeprazole with prescription multi vitamins. I'm low in B12 and D3.
I'm type 2D,
CKD
, IBS and been having mini strokes. Had all the medical intervention possible and still no answer. I certainly know what I don't have now, but I only want to know what I do have! Still taking blood thinners and Omeprazole with prescription multi vitamins. I'm low in B12 and D3.
Hidden
in
High Blood Pressure Support
11 months ago
A1C decent with CKD 3A/B
went in for my quarterly 3 month appt last week. I requested the labs be drawn prior to the visit, eGFR came back as 38 with an A1C of 6.4 (down from 6.8 3 months ago). eGFR was down from 55 3 months ago. Dr had me retest and eGFR came back as 49. due to my potassium results 5.7 they had to take
went in for my quarterly 3 month appt last week. I requested the labs be drawn prior to the visit, eGFR came back as 38 with an A1C of 6.4 (down from 6.8 3 months ago). eGFR was down from 55 3 months ago. Dr had me retest and eGFR came back as 49. due to my potassium results 5.7 they had to take
Alexie90
in
Kidney Disease
1 year ago
Disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’
I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and
CKD
stage 3.
I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and
CKD
stage 3.
DollyDutchGirl_1946
in
Pain Concern
11 months ago
Can I improve or stop progression of CKD
I regularly see my nephrologist every 6 months for
CKD
and my Hematologist every 4 months for MGUS. And my primary about every 4 months. They all order blood and urine testing to monitor my progress and status. I watch YouTube videos of Nephrologists and Renal Dieticians.
I regularly see my nephrologist every 6 months for
CKD
and my Hematologist every 4 months for MGUS. And my primary about every 4 months. They all order blood and urine testing to monitor my progress and status. I watch YouTube videos of Nephrologists and Renal Dieticians.
Honeylover
in
Kidney Disease
1 year ago
New Clinical Trial for Non-diabetic CKD
In this trial, the researchers want to learn if finerenone helps to slow down the worsening of the participants’ non-diabetic
CKD
compared to a placebo. For more information https://bit.ly/FIND-
CKD
In this trial, the researchers want to learn if finerenone helps to slow down the worsening of the participants’ non-diabetic
CKD
compared to a placebo. For more information https://bit.ly/FIND-
CKD
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
pain relief
has anyone on here tried CBD for flare ups mine pain is really bad where I’m in tears with pain my doctors are reviewing my meds but I’m willing to try any pain relief
has anyone on here tried CBD for flare ups mine pain is really bad where I’m in tears with pain my doctors are reviewing my meds but I’m willing to try any pain relief
Kimmie88
in
Fibro Friends WSM
9 days ago
CBD Gummy Bears
Has anyone used the CBD Gummy Bears 10mg for sleep, mild pain relief etc. I am trying to find out any interactions with medication. They seem to be ok with Flecainide but cannot find anything to do with Apixaban. Found a slight caution with warfarin but not anything to do with the newer anticoagulants
Has anyone used the CBD Gummy Bears 10mg for sleep, mild pain relief etc. I am trying to find out any interactions with medication. They seem to be ok with Flecainide but cannot find anything to do with Apixaban. Found a slight caution with warfarin but not anything to do with the newer anticoagulants
Frances123
in
Atrial Fibrillation Support
11 days ago
Seizures
My husband had CBD he had three seizures last Tuesday in the early hours two at home one in resus. On Saturday he had two more in hospital. The Drs prescribed Keppra. He had been on clonazepam for years fours times a day tablets. He has been unwell vomiting and we couldn't get the meds in him. So he
My husband had CBD he had three seizures last Tuesday in the early hours two at home one in resus. On Saturday he had two more in hospital. The Drs prescribed Keppra. He had been on clonazepam for years fours times a day tablets. He has been unwell vomiting and we couldn't get the meds in him. So he
Northstar1
in
PSP Association
13 days ago
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Wendy39
in
LUPUS UK
18 days ago
cannabis oil
hi all, I know there has been some discussion in the past regarding the use of cannabis oil: helpful for us?? unfortunately I can t find it back. Any opinions?? I have started CBD oil now for about 4 weeks, and feel subjectively that it is helpful. Calms me down, somewhat. Thanks for comments
hi all, I know there has been some discussion in the past regarding the use of cannabis oil: helpful for us?? unfortunately I can t find it back. Any opinions?? I have started CBD oil now for about 4 weeks, and feel subjectively that it is helpful. Calms me down, somewhat. Thanks for comments
Kaaswinkel
in
PMRGCAuk
19 days ago
Wheelchair funding UK
Hello, My mum who is 79yo and in advanced stages of CBD and has been in nursing home for last 7 months needs a new wheelchair. It's been advised that she needs a much more comprehensive wheelchair than the basic one she has and that the cost will be over £3k and will need to be privately funded.
Hello, My mum who is 79yo and in advanced stages of CBD and has been in nursing home for last 7 months needs a new wheelchair. It's been advised that she needs a much more comprehensive wheelchair than the basic one she has and that the cost will be over £3k and will need to be privately funded.
joshwr
in
PSP Association
22 days ago
Genetic Testing
My husband has been genetic tested and the results take about 9 months to come back I am worried sick as we have a daughter. I haven't discussed it really as I feel I need to wait for results. Has anyone else experienced this. He has CBD and FTD as well as PSP. I worry because the little that I
My husband has been genetic tested and the results take about 9 months to come back I am worried sick as we have a daughter. I haven't discussed it really as I feel I need to wait for results. Has anyone else experienced this. He has CBD and FTD as well as PSP. I worry because the little that I
Hidden
in
PSP Association
22 days ago
Help please
Hi I had to come off pregabalin 3 weeks ago because of the horrendous weight gain I have to say it was working well apart from the weight gain, I've had terrible nights ever since and I've tried cbd oil and a massage mat in bed, needless to say none have worked, im waiting to get blood results from the
Hi I had to come off pregabalin 3 weeks ago because of the horrendous weight gain I have to say it was working well apart from the weight gain, I've had terrible nights ever since and I've tried cbd oil and a massage mat in bed, needless to say none have worked, im waiting to get blood results from the
Rangers52
in
Restless Legs Syndrome
27 days ago
Cbd oil
Can you take cbd oil with heart medication. ,I'm on avrostatin 80mg,bisoprolol 2.5mg,asprin 75mg, pantoprazole 15mg and allopurinol 300mg ,also has anyone taking cbd oil ,and what strength I have 1500mg and some gummies but haven't try yet to help with anxiety and sleep Thanks for taking time to read
Can you take cbd oil with heart medication. ,I'm on avrostatin 80mg,bisoprolol 2.5mg,asprin 75mg, pantoprazole 15mg and allopurinol 300mg ,also has anyone taking cbd oil ,and what strength I have 1500mg and some gummies but haven't try yet to help with anxiety and sleep Thanks for taking time to read
Charl70
in
British Heart Foundation
28 days ago
Sorry to go slightly off topic....
I know I should probably seek out an arthritis HealthUnlocked group, but I know there are a lot of RLS sufferers who also have other conditions. My mum (the reason I am on this group) is suffering with a lot of arthritic pain and I wondered if there were anything she could supplement the pain relief
I know I should probably seek out an arthritis HealthUnlocked group, but I know there are a lot of RLS sufferers who also have other conditions. My mum (the reason I am on this group) is suffering with a lot of arthritic pain and I wondered if there were anything she could supplement the pain relief
Boldgirl45
in
Restless Legs Syndrome
29 days ago
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