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PSP/CBD Symposium - Saturday, June 29, 10am-3pm Pacific (US time)
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
rriddle
in
PSP Association
1 month ago
CBN for sleep
I wrote previously about my goal to try CBN for sleep. Nothing helped me much with sleep. I had tried pretty much everything recommended including supplements and prescription meds. I bought some gummies with 10 mg each of THC CBD and CBN. I believe that these helped so I was motivated to make my own
I wrote previously about my goal to try CBN for sleep. Nothing helped me much with sleep. I had tried pretty much everything recommended including supplements and prescription meds. I bought some gummies with 10 mg each of THC CBD and CBN. I believe that these helped so I was motivated to make my own
spencoid2
in
Prostate Cancer And Gay Men
1 month ago
PSP and CBD Awareness Week UK Day 2
This is hard work. It's 90+ degrees without humidex, but someone has to do it😆. I call this creation [i]Strawberry Fields Forever. Timtations Berry Bellissimo[/i] - [i]Strawberry Ice cream[/i] with [i]light chocolate malt and ribbons of dark chocolate sauce [/i]is at the forefront. Enjoy. Tim [i]
This is hard work. It's 90+ degrees without humidex, but someone has to do it😆. I call this creation [i]Strawberry Fields Forever. Timtations Berry Bellissimo[/i] - [i]Strawberry Ice cream[/i] with [i]light chocolate malt and ribbons of dark chocolate sauce [/i]is at the forefront. Enjoy. Tim [i]
pspchronicles
in
PSP Association
1 month ago
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Carbocisteine - possible side effect for CBD
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
SunriseLegend
in
PSP Association
1 month ago
Terrible sleep issues
So now I’m 10+ weeks into treatment consisting of Lupron+Abiraterrone and have completed 5 of 20 radiation sessions. In many ways things seem to be going very well. My PSA numbers have gone from 8.4 to .2 and still falling. My side effects have been minimal , only lately have I seen some mild hot
So now I’m 10+ weeks into treatment consisting of Lupron+Abiraterrone and have completed 5 of 20 radiation sessions. In many ways things seem to be going very well. My PSA numbers have gone from 8.4 to .2 and still falling. My side effects have been minimal , only lately have I seen some mild hot
Willie51
in
Prostate Cancer And Gay Men
1 month ago
Stages/Neph
At what stage
CKD
or eGFR were you sent to a Nephrologist? I was at 3a, right on the line 3b with eGFR 45. My GP failed me on all points.
At what stage
CKD
or eGFR were you sent to a Nephrologist? I was at 3a, right on the line 3b with eGFR 45. My GP failed me on all points.
Hily
in
Kidney Disease
1 year ago
Tim Brown's 3rd PSP Chronicles Beyond ..
I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle format but have now ordered it in paperback format too, as I was missing being able to highlight so many of the text that Tim uses, as I did in
I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle format but have now ordered it in paperback format too, as I was missing being able to highlight so many of the text that Tim uses, as I did in
AliBee1
in
PSP Association
1 month ago
cannabidioids in treatment
Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using cannabidioids in the treatment?
Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using cannabidioids in the treatment?
FeemDeus
in
PSP Association
1 month ago
CBD for IBS?
Anyone tried taking CBD for IBS pain. Currently experiencing a flare including pain in both flanks.
Anyone tried taking CBD for IBS pain. Currently experiencing a flare including pain in both flanks.
Prance
in
IBS Network
1 month ago
Late stage cbd information
My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed in 2021 and now lives in a care home (who are brilliant with her. And look after her needs very well) My dad cared for her at home for a few
My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed in 2021 and now lives in a care home (who are brilliant with her. And look after her needs very well) My dad cared for her at home for a few
Jiggyjo
in
PSP Association
1 month ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
1 month ago
Parkinson's Arm Pain Mystery Solved: Overuse Injury Due to Tremor. Update - What is Helping
I've suffered increasing tremor over the last few months and along with that, increasing arm pain. I could find no medical references for Parkinson’s and arm pain, and the diagnostic materials on arm pain did not contain anything that fit. Be all that as it may, this matter is not hard to understand
I've suffered increasing tremor over the last few months and along with that, increasing arm pain. I could find no medical references for Parkinson’s and arm pain, and the diagnostic materials on arm pain did not contain anything that fit. Be all that as it may, this matter is not hard to understand
park_bear
in
Cure Parkinson's
2 months ago
CBD & using them to get off gabapentin
I am so tired of Gabapentin side effects. I was wondering if anyone out there has used CBD to taper down or off Gabapentin.I have tapered down to 100mg of gaapentin and as many of you may know that is the hardest, Any thoughts or ideas will be appreciated
I am so tired of Gabapentin side effects. I was wondering if anyone out there has used CBD to taper down or off Gabapentin.I have tapered down to 100mg of gaapentin and as many of you may know that is the hardest, Any thoughts or ideas will be appreciated
brodytexas
in
Anxiety Support
2 months ago
Anxiety
Im taking ashwagandha for my anxiety and it works,and CBD gummies works well also
Im taking ashwagandha for my anxiety and it works,and CBD gummies works well also
jamaycacat
in
Anxiety and Depression Support
2 months ago
RLS and CBD
As I have mentioned previously, I have been on gabapentin for many years. I am now taking 1800 mg a day as well as 4 mg of requip. I am almost through weaning off requip because of augmentation. But, on the advice of a neurologist that I no longer see, I started CBD gummies and CBD oil. So, I am wondering
As I have mentioned previously, I have been on gabapentin for many years. I am now taking 1800 mg a day as well as 4 mg of requip. I am almost through weaning off requip because of augmentation. But, on the advice of a neurologist that I no longer see, I started CBD gummies and CBD oil. So, I am wondering
Littlegran
in
Restless Legs Syndrome
2 months ago
CBD - do sufferers always end up needing wheelchairs?
I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for the helpful responses. I’m thinking ahead to what other adaptations might be needed, in order to enable wheelchair access in and out of all areas
I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for the helpful responses. I’m thinking ahead to what other adaptations might be needed, in order to enable wheelchair access in and out of all areas
PeterPanandLostBoys
in
PSP Association
2 months ago
Liver Beef Glandular pills for iron?
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
JaggySr
in
Restless Legs Syndrome
2 months ago
CBD (thc free) for pain relief
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was given
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was given
Davewm
in
Pain Concern
2 months ago
2024 PSP & CBD Ice Cream Challenge
My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this year's photos. We are on Day 20 of the PSP & CBD Ice Cream Challenge. Unfortunately, I can only put up one photo, per post. I thought about a collage
My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this year's photos. We are on Day 20 of the PSP & CBD Ice Cream Challenge. Unfortunately, I can only put up one photo, per post. I thought about a collage
pspchronicles
in
PSP Association
2 months ago
THC , CBD
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
Troongolfer
in
Cure Parkinson's
2 months ago
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