New Clinical Trial for Non-diabetic CKD

[Bassetmommer]

Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury and inflammation in the heart and kidney which is known to play a role in CKD. In this trial, the researchers want to learn if finerenone helps to slow down the worsening of the participants’ non-diabetic CKD compared to a placebo. For more information bit.ly/FIND-CKD

[neidrum]

Since my kidneys seem to be better my ekg rapid heart beat the dr decided on metoprolol ER 25mg, I'm not taking I use Heart Calm and she says it messes up your kidneys. I checked the ingredients and it seem better then the prescribe one.

I ween off of Mirtazapine 15mg because healthcare called me and said this is my last precription for 30 days seniors over 65 it isn't good for you. I'm 76 be a young 77 in 6 months. I bought Calmable Stress Aid Plus Sleep in it's place both meds she also says it's bad for my kidneys .

It seems all herb meds the Drs. don't agree with has the same intentions of healing or fixing the problem. yet their med has so many side effects then the herbs. Some herbs help heal the problem and the Dr. med you have to take the rest of your life with side effects.

After these two years or more with my dr. She finally gave me a referral to a cardiogist and nephrologist & I'm going to continue to take the two herbs until they tell me not too.

[userotc in reply to neidrum]

Indeed doctors don't agree with herbs! Despite the fact numerous drugs have been developed from them. I wonder why (sarc!)?And "they" should not tell you to stop, just as Nutritional Therapists should not advise you to stop drugs despite usual side effects

[neidrum in reply to userotc]

Yes, I agree with that and most drs. are hostile towards herbal products after all they make their money giving people medicine from pharmaceutical companies.

[Bassetmommer NKF Ambassador in reply to neidrum]

metoprolol ER maybe giving you insomnia. Look up Beta Blockers and insomnia. I had a terrible bought of insomnia when I was put on Carvedilol ( beta blocker) . I had her take me down to half dose and now I sleep much better.

[Hidden in reply to neidrum]

Heart Calm has magnesium taurate, magnesium malate and magnesium glycinate, potassium, and coenzyme Q10, so check your labs and watch your potassium levels. She is saying it's bad for your kidneys, likely because of the potassium. Not because she's trying to make big bucks for big pharma. Honestly, that trope is getting old; if you aren't an expert or are not consulting with an expert who is also an expert in CKD be careful with herbs and supplements.

Although I agree with your doc and I don't think you should be taking Mirtazapine (I don't think anyone should be!) Bassetmommer is right your sleep aid is nephrotoxic, your doctor is saying it's bad for your kidneys because Ashwagandha, IS bad for your kidneys.

[neidrum in reply to Hidden]

Thanks, I go back in two weeks I hope she'll request blood work then.

[Hidden in reply to neidrum]

Ask for her to run labs to see how your body is responding to the natural remedies you have substituted for prescription drugs. You want to make sure everything on your renal panel is in line and the supplements haven't made any sort of negative impact on your kidneys as she suspected they would.

Good luck to you!

[neidrum in reply to Hidden]

Thank you, I didn't think of that in fact I didn't know they did blood test on natural remedies. God bless you.

[Hidden in reply to neidrum]

Well, the chemicals in the natural remedies will show up in your blood work, and they will have and have an effect on your lab levels on a renal panel; this is how you can find out if they are helpful or if your doctor is correct, and they are bad for your kidneys. It's all science.

[kellyscats1 in reply to Hidden]

Thank you CKD girl for trying to enlighten the risks of herbal and health food supplements that are not at all regulated..but trying to enlighten those who are not interested in facts is sort of like beating yur head aganst the wall..lol

[Hidden in reply to kellyscats1]

Everyone rides the same tired old trope: doctors hate natural remedies because big pharma can't make money on them. It's been the same song so many years😬

Natural remedies are a largely unregulated industry and people can go to a Health Food Store or purchase from a Natural Nutritional Therapist or a Naturopath, something they believe is a "substitute" for their prescribed heart medication or something for "Kidney Health" that is simply a bunch of Chinese herbs (maybe) and some minerals with or without proven abilities to help various heart or kidney conditions and with perhaps a lot of fillers and other junk because no one is regulating what is in those pills or capsules.

I've seen so many Natural Scammers pop up with the new cure for Kidney disease just in the past 6 odd years since I have been diagnosed. Early on I chased some down, and I bought a book or two, in the end, it was a game to sell unregulated products from some witch doctor who hung a shingle and called himself some kind of natural Doctor, a "specialist" in Kidney health 🙄

I see a Naturopath regularly, and although I trust her, and she has helped me with some health conditions, she knew very little about CKD when I came to her for help. We learned together, I shared with her what I learned from my Nephrologist and Renal Dietician, and she suggested some herbal treatments that upon further investigation I said no to because they were nephrotoxic. In the end, I went with the advice of my medical team, with no hard feelings, I still see her regularly. I have other health conditions she knows more about. But I won't take unregulated supplements or herbal cures because I value my kidney health, I only have so much function and I have other comorbidities that also impact my kidney function. I only have so much function left and I want to take care of it. I follow a renal diet, eat to my labs, exercise a lot, and don't drink or smoke. I do everything in my power to take good care of what I have left. I also take prescribed medication, I'm not a big fan of meds, and I don't need any others yet, but I reluctantly went on one med for proteinuria, (Farxiga) and now I have zero protein last showing 3 labs, my neph is thrilled! Furthermore, I consider it a win.

I'm not sure why someone, a layperson, thinks they can walk into a natural foods store and find a substitute for prescribed medication without a lot of research, especially for things like bp and heart meds! That's so tricky, and I think playing with fire. Grabbing something off the shelf because you think your doctor is trying to con you into taking a prescription drug is simply not a good idea. Or taking the advice of the hipster that works in the store and is and call themselves an "expert", ya, don't do that. 😂

Do your research first. Look up every ingredient in that bottle you are considering purchasing, see what is in there, and see if it is good or bad for kidney health. Don't be enticed by the pretty labels and cool names. Don't accidentally take something that might harm you. And yes, of course, natural remedies will show up on your blood tests, some of them have powerful ingredients and depending on exactly what's in them, you might not be happy with the results.

Please be careful!

The same goes for every prescribed med, but I'll save that particular rant for later.😉

[bettlebug in reply to neidrum]

I, too take Metoporol 25mg and it does not raise my jeart rate much at all. My Nephrologist gave me a diet to follow which has most everything I like to eat but can't.

[Marvin8]

Pharmaceutical companies can't make money off of herbs, so they won't sponsor controlled studies. Herbal product companies make all kinds of silly unfounded claims. It's up to you to do your own research and be your own guinea pig, but I would ask my doctor some probing questions when their immediate reaction is to pan all herbal products. The allopathic vs. naturopathic situation is really quite shameful, and hasn't improved over the past half century.

[neidrum in reply to Marvin8]

Yes, research ALL drs medicine or herbs and seek the dr. in the area (ie: heart or kidney etc.) you're concern in and see what is said. Sometime primary care gives you a bandage for your problem but it doesn't necessary take care of the problem.

[neidrum]

Yes that's so true and so are prescription medications. Sometime it helps not fix a problem and destroys or should I say damage other parts of your body.

[Hidden in reply to neidrum]

Frankly, with many diseases that is the case, with damage comes some healing, maybe not a cure. I had cancer and the trade-off was chemo for kidney disease. I'm alive; was it worth, it, I think so. I have heart damage, radiation burns, and CKD, but I get to see my kids grow up. Good trade.

With CKD I think because there is no cure, everything is just slowing its progression any medical or naturopathic treatment is just a "band aid" of sorts. Just depends on what flavour you would like and what sort of damage, however minor, you are willing to take a chance on. Nothing is totally without any kind of risk. Growing old is a risk, lol

[neidrum in reply to Hidden]

Amen!!!

[PecanSandie]

Too bad the trial is not being conducted in the US.

[Bassetmommer NKF Ambassador in reply to PecanSandie]

It is and there are many centers.

[Hidden]

It is being conducted in several places in the US, scroll down below the map, they are listed there. Clicking on the map doesn't really show the information accurately.

Cute graphic : bad design and user interface, sorry I'm a designer lol

[Bassetmommer NKF Ambassador in reply to Hidden]

I would not disagree with you about the design.

[Hidden in reply to Bassetmommer]

In this case, "form does not follow function"; which always drives me crazy. Functionally always comes first, so many designers jump to the "pretty"and forget about that.😬

[PecanSandie]

Oh wow. I totally missed that. Thanks!