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Cinchocaine / Prednisolone hexanoate
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To increase or not?
We finally had a sunny, warm day on Sunday, I went and overdid in the garden, now suffering the consequences with siftness, soreness and achiness in all the places that us PMR suffers are prone to and of course some DOMS as well. I was woken at 02:30 today with pain, siftness and the feeling that
We finally had a sunny, warm day on Sunday, I went and overdid in the garden, now suffering the consequences with siftness, soreness and achiness in all the places that us PMR suffers are prone to and of course some DOMS as well. I was woken at 02:30 today with pain, siftness and the feeling that
Orangecakes
in
PMRGCAuk
2 months ago
meniscus pain or PMR?
I’m waiting for an operation on torn meniscus which MRI confirmed. The pain in my knees has got a lot worse over the last few months and a week ago it was almost unbearable. I started a slow taper from 5mg to 4.5 mg prednisolone last week and suddenly wondered if the knee pain might be more PMR than
I’m waiting for an operation on torn meniscus which MRI confirmed. The pain in my knees has got a lot worse over the last few months and a week ago it was almost unbearable. I started a slow taper from 5mg to 4.5 mg prednisolone last week and suddenly wondered if the knee pain might be more PMR than
Mfaepink1973
in
PMRGCAuk
2 months ago
Sudden fall in platelets was tooth related
Two months ago I had a sudden fall in platelets, out of the blue I thought. My since long ITP trombocytopenia had been quite stable in platelets for quite a time, treated with low dose prednisolone and eltrombopag( Revolade). Easter came with terrible toothache, preliminary fixed acute by dentist.
Two months ago I had a sudden fall in platelets, out of the blue I thought. My since long ITP trombocytopenia had been quite stable in platelets for quite a time, treated with low dose prednisolone and eltrombopag( Revolade). Easter came with terrible toothache, preliminary fixed acute by dentist.
Accordion
in
CLL Support
2 months ago
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reaction to Spikevax XBB 1.5Moderna
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Larks0ng
in
LUPUS UK
2 months ago
Polymyalgia
Hi Friends Just a update since being in remission in Dec 2023.I have continued to struggle with Arthritis all over and muscle pain. Over the last 3 months . GP has been montiring the levels of my RF to confirmed the Arthritis & Polymyalgia. Even my Jaw has been effected . I am still having to
Hi Friends Just a update since being in remission in Dec 2023.I have continued to struggle with Arthritis all over and muscle pain. Over the last 3 months . GP has been montiring the levels of my RF to confirmed the Arthritis & Polymyalgia. Even my Jaw has been effected . I am still having to
Stavrou1
in
CLL Support
2 months ago
Paul Tube implant for Glaucoma
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Rainyday2024
in
Glaucoma UK
3 months ago
tapering, optimistic or impatient?
a cautionary tale! Having got various things out the way, from fractured vertebrae (healing well) to big birthday, I thought it time to start tapering towards my holy grail of 10mg prednisolone. So started 5 week taper from 15 to 12.5. I still had some pain and difficulty walking but put that down to
a cautionary tale! Having got various things out the way, from fractured vertebrae (healing well) to big birthday, I thought it time to start tapering towards my holy grail of 10mg prednisolone. So started 5 week taper from 15 to 12.5. I still had some pain and difficulty walking but put that down to
Japsquar
in
PMRGCAuk
3 months ago
gca/pmr
I did manage to get a Rheumy appt, but no help whatsoever. Wherever I have pain, stiffness etc & how bad it’s not PMR or GCA related. They only really bother about CRP & its 1 not interested at all that ESR has gone from 7 to 19 in last week or 2. Told to finish my 2 year Prednisolone taper, it’s
I did manage to get a Rheumy appt, but no help whatsoever. Wherever I have pain, stiffness etc & how bad it’s not PMR or GCA related. They only really bother about CRP & its 1 not interested at all that ESR has gone from 7 to 19 in last week or 2. Told to finish my 2 year Prednisolone taper, it’s
CavalierKC3
in
PMRGCAuk
3 months ago
Morning cortisol test results have arrived.
For background I should say that I finished with prednisolone at the end of January this year. I’ve had no return of PMR symptoms but have been irritable and tired with my ‘get up and go’ non-existent 😠. I saw my rheumatologist a month ago and she requested a morning cortisol test along with my usual
For background I should say that I finished with prednisolone at the end of January this year. I’ve had no return of PMR symptoms but have been irritable and tired with my ‘get up and go’ non-existent 😠. I saw my rheumatologist a month ago and she requested a morning cortisol test along with my usual
123-go
in
PMRGCAuk
3 months ago
Lansoprazole & Prednisolone
My question may have been asked before but here goes…….. When diagnosed with PMR eighteen months ago I was prescribed pred plus Lansoprazole as a “stomach liner”. My pred tablets are gastroresistant apart from the 1mg ones and my understanding was this was to make sure the drug was not attacked by
My question may have been asked before but here goes…….. When diagnosed with PMR eighteen months ago I was prescribed pred plus Lansoprazole as a “stomach liner”. My pred tablets are gastroresistant apart from the 1mg ones and my understanding was this was to make sure the drug was not attacked by
Bayleaf1
in
PMRGCAuk
3 months ago
is this a flare
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
Mumdadlove
in
PMRGCAuk
3 months ago
Prednisolone and skin thinning
I think I’ve heard that long term use of steroids can cause the skin to get thinner - is this a thing? I’m wondering if it’s a cause of my difficulty shaking off the cellulitis that’s been bugging me over the past few weeks. Has anyone else had this? The skin is always damaged after an attack, which
I think I’ve heard that long term use of steroids can cause the skin to get thinner - is this a thing? I’m wondering if it’s a cause of my difficulty shaking off the cellulitis that’s been bugging me over the past few weeks. Has anyone else had this? The skin is always damaged after an attack, which
calibriel
in
PMRGCAuk
3 months ago
Swollen red cheek andslight jaw pain on one side.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
BleatingsheepMAA
in
PMRGCAuk
3 months ago
Tooth infection - increase prednisolone?
A chronic tooth infection in a failed root canal treated tooth has decided to present with a painful flare. (I am generally fortunate and suffer little pain with the tooth). I am awaiting extraction in NHS hospital but its likely to be many more months and I realise I am in no way priority. On my
A chronic tooth infection in a failed root canal treated tooth has decided to present with a painful flare. (I am generally fortunate and suffer little pain with the tooth). I am awaiting extraction in NHS hospital but its likely to be many more months and I realise I am in no way priority. On my
liz6620
in
PMRGCAuk
3 months ago
Baricitinib (Olumiant) side effects - did they improve over time?
I finally took the plunge to have Olumiant on Monday 22nd after getting my blood tests/vaccines etc. It's been a bit of an up-and-down story so am wondering what other people's experiences have been like. This is a draft of what I'm going to email my Rheumatologist but thought it was worth hearing some
I finally took the plunge to have Olumiant on Monday 22nd after getting my blood tests/vaccines etc. It's been a bit of an up-and-down story so am wondering what other people's experiences have been like. This is a draft of what I'm going to email my Rheumatologist but thought it was worth hearing some
thomastheEP
in
NRAS
3 months ago
New to PMR
I just wanted to introduce myself and to say thank you for the wealth of information and advice from those on this forum. I was given a diagnosis of PMR by my GP about 6 weeks ago after hip and groin pain started in December 23 and then moved to my neck shoulders and waist area in January. I started
I just wanted to introduce myself and to say thank you for the wealth of information and advice from those on this forum. I was given a diagnosis of PMR by my GP about 6 weeks ago after hip and groin pain started in December 23 and then moved to my neck shoulders and waist area in January. I started
Trentside
in
PMRGCAuk
3 months ago
Cataract surgery due to steroid medication
Hi all, I have Minimal Change Disease and have been on various doses of prednisolone since Nov 22. I've now got cataracts and my right eye needs surgery. I'm 39 and most of the information online seems targeted at older patients. Can anyone offer advice? For instance I'm used to wearing glasses for short-sightedness
Hi all, I have Minimal Change Disease and have been on various doses of prednisolone since Nov 22. I've now got cataracts and my right eye needs surgery. I'm 39 and most of the information online seems targeted at older patients. Can anyone offer advice? For instance I'm used to wearing glasses for short-sightedness
CagePow
in
Kidney Disease
3 months ago
Stabbing headache..GCA?
I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lots of visitors and it's been difficult to keep to our normal low key routine . I've felt ok, tried not to overdo things and thought all was under control (as much as that is possible).Last night though I experienced a fleeting
I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lots of visitors and it's been difficult to keep to our normal low key routine . I've felt ok, tried not to overdo things and thought all was under control (as much as that is possible).Last night though I experienced a fleeting
Clarbeston
in
PMRGCAuk
3 months ago
NK cells and pcos -steroids or hydroxychloroquine?
Hi all, I’m under Prof Shehata’s NHS clinic (recurrent miscarriage )and my results showed raised NK cells although activation markers were in range. Everything else pretty good too although AMH was very high which is not necessarily a good thing and suggests that my PCOS is back (was diagnosed approx
Hi all, I’m under Prof Shehata’s NHS clinic (recurrent miscarriage )and my results showed raised NK cells although activation markers were in range. Everything else pretty good too although AMH was very high which is not necessarily a good thing and suggests that my PCOS is back (was diagnosed approx
PN85
in
Fertility Network UK
3 months ago
Between a rock and a hard place!!
I was so delighted to report that I took my last Prednisolone on 28th April 2024 and wasn’t totally surprised that I experienced the usual ‘drop’ symptoms that I always got every time I reduced by even 0.5mg. But it has now been 4 and a half weeks and I wake in considerable pain every morning and the
I was so delighted to report that I took my last Prednisolone on 28th April 2024 and wasn’t totally surprised that I experienced the usual ‘drop’ symptoms that I always got every time I reduced by even 0.5mg. But it has now been 4 and a half weeks and I wake in considerable pain every morning and the
Prof99
in
PMRGCAuk
3 months ago
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