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Cinchocaine / Prednisolone hexanoate
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I am down to 2mg prednisone. Not noticing typical PMR symptoms
After I got on Methotrexate and Hydroxychloroquine, the right hand wrist and finger swelling went away, and I was able to start dropping pred from 5 to 4 to 3 to 2 now. While I am glad for this, I am mad that only a rheumy was smart-experienced enough to think of it, I likely could have saved months
After I got on Methotrexate and Hydroxychloroquine, the right hand wrist and finger swelling went away, and I was able to start dropping pred from 5 to 4 to 3 to 2 now. While I am glad for this, I am mad that only a rheumy was smart-experienced enough to think of it, I likely could have saved months
sdowney717
in
PMRGCAuk
10 months ago
moving pain
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
Nanatoo
in
PMRGCAuk
1 year ago
Lung x ray scare
I had covid in April so I was sent to specialist to have breathing tests.Now I had another lung x ray and got a call from my family dr for a dye x ray.Could the prednisone caused lung damage?Scared to death now.
I had covid in April so I was sent to specialist to have breathing tests.Now I had another lung x ray and got a call from my family dr for a dye x ray.Could the prednisone caused lung damage?Scared to death now.
Hunter134
in
PMRGCAuk
10 months ago
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Is this PMR?
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Evie1977
in
PMRGCAuk
1 year ago
Need help understanding Enzalutamide
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
Hidden
in
Advanced Prostate Cancer
10 months ago
PMR and chronic fatigue syndrome- is there a link?
Hi everyone, I haven’t posted before but read all posts and comments daily and find the information very helpful Here’s my story…sorry if it’s too long… - PMR started in February 2023 - diagnosed PMR April 2023 after a week in hospital with a specialist and put on 25 mg of prednisone - appointment
Hi everyone, I haven’t posted before but read all posts and comments daily and find the information very helpful Here’s my story…sorry if it’s too long… - PMR started in February 2023 - diagnosed PMR April 2023 after a week in hospital with a specialist and put on 25 mg of prednisone - appointment
MegfromOz
in
PMRGCAuk
10 months ago
A positive move
I saw a rheumatologist yesterday and thanks to all the information gained from this site I am now taking prednisolone. I wanted a two week trial and he wanted a blood test showing positive markers first but I pointed out that many people don’t have that. He mentioned RA but I showed him that none of
I saw a rheumatologist yesterday and thanks to all the information gained from this site I am now taking prednisolone. I wanted a two week trial and he wanted a blood test showing positive markers first but I pointed out that many people don’t have that. He mentioned RA but I showed him that none of
Nanatoo
in
PMRGCAuk
1 year ago
Does or Has Anyone heard or read that PCA can Morp into Neuroendocrine Cancer while on Lupron or Orgovyx, Nubeqa or any other medication?
I’m on Firmagon every 28 days, Zytiga, ( Abiraterone) and Prednisone since 07/2022. I have concerns if Anyone had their PCA Morp into Neuroendocrine Cancer or Small Cell Carcinoma while on Lupron or Orgovyx, Nubeqa etc, or any other medication prescribed.
I’m on Firmagon every 28 days, Zytiga, ( Abiraterone) and Prednisone since 07/2022. I have concerns if Anyone had their PCA Morp into Neuroendocrine Cancer or Small Cell Carcinoma while on Lupron or Orgovyx, Nubeqa etc, or any other medication prescribed.
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
Severe Itching
Thank you for all your kind responses. So after 2 days on prednisone and hydroxyzine, the itch is lessening. Herb's oncologist thinks this is a side effect of the Keytruda treatments for cancer that Herb started monthly this year. So now we gave to decide whether to discontinue the treatments or face
Thank you for all your kind responses. So after 2 days on prednisone and hydroxyzine, the itch is lessening. Herb's oncologist thinks this is a side effect of the Keytruda treatments for cancer that Herb started monthly this year. So now we gave to decide whether to discontinue the treatments or face
Trower
in
Kidney Disease
10 months ago
STILL ON THE BED...MOSTLY..10TH WEEK
As some are aware, my back issues have been ongoing, but yesterday morning I woke with what feels like a cracked rib. Left side, bottom rib, tenderest spot being about 3 inches to left of the clavicle. Extremely painful. This rib was broken many years ago. Could also be as spasmed muscle, as it reaches
As some are aware, my back issues have been ongoing, but yesterday morning I woke with what feels like a cracked rib. Left side, bottom rib, tenderest spot being about 3 inches to left of the clavicle. Extremely painful. This rib was broken many years ago. Could also be as spasmed muscle, as it reaches
Missus835
in
PMRGCAuk
10 months ago
Scalp pain
I am getting so frustrated. I have now seen 3 primary care doctors and one rheumatologist. I've had possible diagnoses of either PMR or fibromyalgia None of the 4 can tell me why I have scalp pain, pink scalp and very sore, itchy scalp. None can tell me why I have constant hot flashes. I can't take
I am getting so frustrated. I have now seen 3 primary care doctors and one rheumatologist. I've had possible diagnoses of either PMR or fibromyalgia None of the 4 can tell me why I have scalp pain, pink scalp and very sore, itchy scalp. None can tell me why I have constant hot flashes. I can't take
Dazy2008
in
Fibromyalgia Action UK
10 months ago
Not fair!
I woke up this morning with crushing fatigue and mind-boggling pain. It took me a little bit before I realized that my PMR is back. I put a call into my rheumatologist for a prescription for 20 mg prednisone. Can anyone tell me about how long it took for the pain to subside after starting prednisone.
I woke up this morning with crushing fatigue and mind-boggling pain. It took me a little bit before I realized that my PMR is back. I put a call into my rheumatologist for a prescription for 20 mg prednisone. Can anyone tell me about how long it took for the pain to subside after starting prednisone.
Amkoffee
in
PMRGCAuk
10 months ago
Magnesium supplement - how much per day?
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Pr0jection
in
PMRGCAuk
1 year ago
Chest CT scan/Myositis bloods/MRI - right knee Quadricep Tendon Rupture Report update
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Energy14
in
LUPUS UK
1 year ago
Severe itching
We went to ER today because rash and itching are escalating. They gave him a cortisone shot and a benedryl shot. So far, it has not made a difference. They gave him script for prednisone and hydroxyzine. We have appt to see oncologist tomorrow. Something has to give. He is getting no sleep.
We went to ER today because rash and itching are escalating. They gave him a cortisone shot and a benedryl shot. So far, it has not made a difference. They gave him script for prednisone and hydroxyzine. We have appt to see oncologist tomorrow. Something has to give. He is getting no sleep.
Trower
in
Kidney Disease
10 months ago
good morning
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
Curry_girl
in
PMRGCAuk
10 months ago
Struggling with PMR and Pred
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Gimme
in
PMRGCAuk
1 year ago
Diet and GCA
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
Toolie2
in
PMRGCAuk
1 year ago
Do I have PMR? This is getting ridiculous.
Hi everyone, None of my doctors can give me a definitive diagnosis. I have two rheumatologists and a GP. One of my rheumys is at the Mayo clinic. My diagnosis has changed from myositis to PMR to an "mRNA vaccine-induced myalgia" and then back to myositis, which was ruled out by an MRI. Then it was
Hi everyone, None of my doctors can give me a definitive diagnosis. I have two rheumatologists and a GP. One of my rheumys is at the Mayo clinic. My diagnosis has changed from myositis to PMR to an "mRNA vaccine-induced myalgia" and then back to myositis, which was ruled out by an MRI. Then it was
sferios
in
PMRGCAuk
10 months ago
PMR Update
Visited yet another Rheumatologist this past week. The last Rheumatologist wanted me off the prednisone without taper to see how bad I can get so he can order yet another PET scan. Needless to say, I went to get a second opinion. Yes, this Rheumatologist stated I was to young to have PMR. However,
Visited yet another Rheumatologist this past week. The last Rheumatologist wanted me off the prednisone without taper to see how bad I can get so he can order yet another PET scan. Needless to say, I went to get a second opinion. Yes, this Rheumatologist stated I was to young to have PMR. However,
SMH4CRNA
in
PMRGCAuk
10 months ago
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