Search
Search
About
Log in
Join
Experiences with
Cinchocaine / Prednisolone hexanoate
Posts
Communities
14,961 public posts
Filter results
delaying Prednisolone by a few hours
hello, back again for some advice. I was diagnosed with PMR/GCA three and a half years ago and after a relapse I am now on 4mg. Next week I will have an abdominal and urinary tract ultrasound at 11am. I was instructed not to eat or drink for 6 hours before and to drink one litre of water one hour before
hello, back again for some advice. I was diagnosed with PMR/GCA three and a half years ago and after a relapse I am now on 4mg. Next week I will have an abdominal and urinary tract ultrasound at 11am. I was instructed not to eat or drink for 6 hours before and to drink one litre of water one hour before
Dolcelatte
in
PMRGCAuk
1 year ago
Stuck in the bath
Well fibro folks... today I got stuck in the bath. Got back from urgent Gp appt for an asthma escalation..survived the 'we want you to go to hospital" by having nebuliser, ECG and prescription for yet more prednisolone. I can't shower when I i have asthma flares..steam exacerbates prob. But a warm bath
Well fibro folks... today I got stuck in the bath. Got back from urgent Gp appt for an asthma escalation..survived the 'we want you to go to hospital" by having nebuliser, ECG and prescription for yet more prednisolone. I can't shower when I i have asthma flares..steam exacerbates prob. But a warm bath
Merrrm
in
Fibromyalgia Action UK
1 year ago
Methotrexate Confusion
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
LizMitchell
in
PMRGCAuk
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Could this be the start of neuropathy?
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
CrocodileShoes
in
Advanced Prostate Cancer
10 months ago
prolia and Actemra.
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Charkha
in
PMRGCAuk
10 months ago
update on leg pain with rheumatology nurse
thought I’d update you all. Rheumatology nurse called, and says if prednisolone is helping the pains, it’s not AS. I challenged her saying if AS is flaring it’s due to inflammation, and prednisolone is prescribed specifically to reduce inflammation, and would be expected to improve symptoms. To which
thought I’d update you all. Rheumatology nurse called, and says if prednisolone is helping the pains, it’s not AS. I challenged her saying if AS is flaring it’s due to inflammation, and prednisolone is prescribed specifically to reduce inflammation, and would be expected to improve symptoms. To which
Runrig01
in
NRAS
1 year ago
Neutrophils Crash
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg Leflunomide was added and since then I’ve had several issues. Most recently over a couple of months my WBC and neutrophils has crashed (0.8 for latter) resulting in bad mouth ulcers
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg Leflunomide was added and since then I’ve had several issues. Most recently over a couple of months my WBC and neutrophils has crashed (0.8 for latter) resulting in bad mouth ulcers
Fiona0664
in
NRAS
1 year ago
low Immunoglobulins
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Davidcara
in
CLL Support
10 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
10 months ago
Struggling to accept/deal with pain and decreased range of movement
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
wakinguptolife
in
PMRGCAuk
10 months ago
Prednisolone
Hi all, I have yet again been prescribed a new medication, (Above) this time for 'Bells Palsy' . 12 pills per day for 5 days, then 10,8,6,4,2 daily thereafter. In all a 10 day course. I note that a side effect is being susceptible to infections as it weakens the' Immune System' Given that CLL'ers
Hi all, I have yet again been prescribed a new medication, (Above) this time for 'Bells Palsy' . 12 pills per day for 5 days, then 10,8,6,4,2 daily thereafter. In all a 10 day course. I note that a side effect is being susceptible to infections as it weakens the' Immune System' Given that CLL'ers
Vindicatrix
in
CLL Support
1 year ago
steroid injection
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
bakingD
in
NRAS
1 year ago
severe leg pain with leg buckling
I recently had a lovely holiday in Devon, where I probably pushed myself too much, and ended up with my ankylosing spondylitis flaring. 12 days ago, I started getting moderate pain n my thigh and knee, and the thigh would suddenly feel like jelly and buckle under me. This resulted in me falling in the
I recently had a lovely holiday in Devon, where I probably pushed myself too much, and ended up with my ankylosing spondylitis flaring. 12 days ago, I started getting moderate pain n my thigh and knee, and the thigh would suddenly feel like jelly and buckle under me. This resulted in me falling in the
Runrig01
in
NRAS
1 year ago
PMR 15 Years On
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Pred5
in
PMRGCAuk
1 year ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
10 months ago
Fatigue
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Hightower62
in
NRAS
1 year ago
overheating and PMR
I have had polymyalgia for 18 months, and at the beginning, there was a thought that I was developing GCA. However, the rheumy discounted this and after starting on steroids at 60 mg I quickly reduced to 10. I stayed on this for sometime because of stressful family issues. However, over the last six
I have had polymyalgia for 18 months, and at the beginning, there was a thought that I was developing GCA. However, the rheumy discounted this and after starting on steroids at 60 mg I quickly reduced to 10. I stayed on this for sometime because of stressful family issues. However, over the last six
Stargiver
in
PMRGCAuk
1 year ago
facial hair
Has anybody noticed a lot of “peach fuzz” on their faces since being on Prednisone? I have developed quite a bit!
Has anybody noticed a lot of “peach fuzz” on their faces since being on Prednisone? I have developed quite a bit!
Holycow2
in
PMRGCAuk
10 months ago
Getting Ready to Start Abiraterone
I am getting ready to start abiraterone (1000) mg with 5 mg prednisone once daily. I have been thoroughly instructed on taking the abiraterone with no food two hours before and one hour after as well as taking prednisone with food but was wondering when you guys take yours. Morning before breakfast or
I am getting ready to start abiraterone (1000) mg with 5 mg prednisone once daily. I have been thoroughly instructed on taking the abiraterone with no food two hours before and one hour after as well as taking prednisone with food but was wondering when you guys take yours. Morning before breakfast or
Professorgary
in
Advanced Prostate Cancer
10 months ago
moving pain
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
Nanatoo
in
PMRGCAuk
1 year ago
1
...
74
75
76
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
7378 results
Asthma Community Forum
1195 results
Advanced Prostate Cancer
1161 results
View top 10 communities
Sort by
Most Relevant
Newest