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Cinchocaine / Prednisolone hexanoate
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Prednisone weaning period after stopping Zytiga
I stopped taking Zytiga after 2 years. I am on 5mg once per day of prednisone. What is the weaning period for prednisone?
I stopped taking Zytiga after 2 years. I am on 5mg once per day of prednisone. What is the weaning period for prednisone?
Gatodd
in
Advanced Prostate Cancer
8 months ago
Swollen ankles after periodontal surgery
Had some minor gum & bone surgery to prepare tooth for a crown & subsequently have swollen ankles, making it difficult to walk. Asked the periodontal surgeon if inflammation from procedure is causing RA ankle swelling/flare & he says, "Coincidental". Rheum says any injury, infection, stress
Had some minor gum & bone surgery to prepare tooth for a crown & subsequently have swollen ankles, making it difficult to walk. Asked the periodontal surgeon if inflammation from procedure is causing RA ankle swelling/flare & he says, "Coincidental". Rheum says any injury, infection, stress
Hisue
in
NRAS
8 months ago
Progress report
Oh what a fun week I have had. Those of you that followed the tooth saga will be pleased to hear I am nearly at the finishing line and had the fitting for the implant, another 2 weeks and I will have the new tooth. It wasn’t particularly pleasant but it’s done. My next exiting trip was to have a scan
Oh what a fun week I have had. Those of you that followed the tooth saga will be pleased to hear I am nearly at the finishing line and had the fitting for the implant, another 2 weeks and I will have the new tooth. It wasn’t particularly pleasant but it’s done. My next exiting trip was to have a scan
EdithWales
in
PMRGCAuk
11 months ago
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Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
AussieNeil
Partner
in
CLL Support
8 months ago
alcohol
hi has anyone has a couple of alcoholic beverages while on Prednisolone. I am down to 3mg and have been off alcohol since I started my PMR journey. Just wondering if it’s best not to have any alcohol until down to zero, or if a couple of pints would do a lot of harm.
hi has anyone has a couple of alcoholic beverages while on Prednisolone. I am down to 3mg and have been off alcohol since I started my PMR journey. Just wondering if it’s best not to have any alcohol until down to zero, or if a couple of pints would do a lot of harm.
pmrdays
in
PMRGCAuk
11 months ago
Methotrexate or Prednisone which is more damaging?(also update on eyes)
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
potterylady
in
PMRGCAuk
8 months ago
Very tired & can’t walk in straight line.
I was diagnosed in Jan 2023 with PMR & put on 15mg Prednisolone. I am now tapering 1mg per month and am down to 8mg. I am exhausted most of the time, can’t walk in a straight line and stagger quite a bit if very tired. I also have a very annoying sensation under my scalp on the top of my head, which
I was diagnosed in Jan 2023 with PMR & put on 15mg Prednisolone. I am now tapering 1mg per month and am down to 8mg. I am exhausted most of the time, can’t walk in a straight line and stagger quite a bit if very tired. I also have a very annoying sensation under my scalp on the top of my head, which
Claremont2023
in
PMRGCAuk
11 months ago
SHOULD I GO UP
I started my 20mg of prednisone 2days ago. I’m still quite achy. Although I can get by during the day. . Should I try going up a little or just be patient and see if I need a couple more days? To get in touch with my doctor who doesn’t seem to know as much as I do because I’ve had this before a few
I started my 20mg of prednisone 2days ago. I’m still quite achy. Although I can get by during the day. . Should I try going up a little or just be patient and see if I need a couple more days? To get in touch with my doctor who doesn’t seem to know as much as I do because I’ve had this before a few
Jampel
in
PMRGCAuk
8 months ago
Moved from Abi to Nubeqa and saw a PSA increase
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
Steel67
in
Advanced Prostate Cancer
8 months ago
Behcet and very bad mouth ulcers in throat and esopshagus
Hello everyone. Couple of months ago I was diagnosed with Behcet. It all started with problems with nose and and very big mouth ulcers. Then it started to go on throath and esopshagus. These were really hurting that I couldnt eat anything. I lost 10-12 kg from march till now. Before I was professional
Hello everyone. Couple of months ago I was diagnosed with Behcet. It all started with problems with nose and and very big mouth ulcers. Then it started to go on throath and esopshagus. These were really hurting that I couldnt eat anything. I lost 10-12 kg from march till now. Before I was professional
Enyce
in
Behçet's UK
11 months ago
Pain everywhere.
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
CountryGirl9636
in
Partners for Behcet's
8 months ago
I was fine till doctor claimed I’m in remission
I need your advice again. I have been doing great on only Actemra for the last 2 years. 8 months ago rheumatologist cut my dose in half. I was still doing great til he wanted me to get my infusions every 8 weeks instead of 4. I lasted 6 weeks before my symptoms came back. I called and because my inflammation
I need your advice again. I have been doing great on only Actemra for the last 2 years. 8 months ago rheumatologist cut my dose in half. I was still doing great til he wanted me to get my infusions every 8 weeks instead of 4. I lasted 6 weeks before my symptoms came back. I called and because my inflammation
nallufl24
in
PMRGCAuk
8 months ago
Fibromyalgia or PMR
Hi, advice please! I had a PMR diagnosis so put on prednisone then rheumatologist diagnosis of not PMR but fibromyalgia so tapered off prednisone. Finished prednisone in Sept. Pains returned referred to physio which worsened Pains so was discharged. Got a appt with Dr finally but had a 6 week wait.
Hi, advice please! I had a PMR diagnosis so put on prednisone then rheumatologist diagnosis of not PMR but fibromyalgia so tapered off prednisone. Finished prednisone in Sept. Pains returned referred to physio which worsened Pains so was discharged. Got a appt with Dr finally but had a 6 week wait.
Monkey321
in
PMRGCAuk
8 months ago
Update on skin lesions
Hi everyone, just thought I would give update on the serious skin lesions I developed that were unlike the normal prednisone related ones. Sheffield Jane mentioned it could be urticaria vasculitis and my GP thought that the symptoms and duration of the lesions indicated that this is what it is. He did
Hi everyone, just thought I would give update on the serious skin lesions I developed that were unlike the normal prednisone related ones. Sheffield Jane mentioned it could be urticaria vasculitis and my GP thought that the symptoms and duration of the lesions indicated that this is what it is. He did
Kt1943
in
PMRGCAuk
8 months ago
Hypertension and prednisolone
Hi I have just had another hypertensive episode.Settled down now.I am reducing off prednisolone for temporal arteritis.I am having an operation for prednisolone induced cataracts and glaucoma in 3 weeks.My vision is dreadful.I am on 4.5mg .I fluctuate between 5 and 4.I am concerned because my blood pressure
Hi I have just had another hypertensive episode.Settled down now.I am reducing off prednisolone for temporal arteritis.I am having an operation for prednisolone induced cataracts and glaucoma in 3 weeks.My vision is dreadful.I am on 4.5mg .I fluctuate between 5 and 4.I am concerned because my blood pressure
Raewynne
in
PMRGCAuk
11 months ago
From RA to Lupus. High dose pred questions.
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Chickenkeeper2015
in
LUPUS UK
11 months ago
Asthma without infection
Brief history. Moved north to West Yorkshire in 1974 (aged 29). Started with beathing difficulties. Had allergy tests and a course of desensitisation injections, which worked, but whenever I caught a cold, it morphed into a sore throat and chest infection leading to gasping for breath. Major attack
Brief history. Moved north to West Yorkshire in 1974 (aged 29). Started with beathing difficulties. Had allergy tests and a course of desensitisation injections, which worked, but whenever I caught a cold, it morphed into a sore throat and chest infection leading to gasping for breath. Major attack
Thomas45
in
Asthma Community Forum
11 months ago
8 months on pred - Update from recent bloods
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
Gimme
in
PMRGCAuk
11 months ago
Progression of SCLE to SLE
Hello, I've had SCLE for many years now and I have several over autoimmune issues. But, more recently I had been feeling really odd (more than usual), very difficult to describe, but I felt like my inner core was shaking, lightheadedness and nausea. I was sort of just putting up with it until about a
Hello, I've had SCLE for many years now and I have several over autoimmune issues. But, more recently I had been feeling really odd (more than usual), very difficult to describe, but I felt like my inner core was shaking, lightheadedness and nausea. I was sort of just putting up with it until about a
Purple-hedgehog
in
LUPUS UK
11 months ago
Dizziness from Zytiga/prednisone?
my MO tried something out of the ordinary - let me have a 'vacation' from ADT for a short while, even though i am Castrate -resistant. he was hoping we coudl keep PSA down while my Testosterone recovered, to see if that woudl make me feel better. to use his words, i have 'complained bitterly of the
my MO tried something out of the ordinary - let me have a 'vacation' from ADT for a short while, even though i am Castrate -resistant. he was hoping we coudl keep PSA down while my Testosterone recovered, to see if that woudl make me feel better. to use his words, i have 'complained bitterly of the
Tonwantonga
in
Advanced Prostate Cancer
8 months ago
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