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Chronic pain
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bungi61
as I had 2 as it got stuck and that was the only way I could get any relief from it and I was sat on the toilet trying 2 force it out 4 a good 15/20 minutes and once again SORRY about such a sensitive matter and just hope you are not trying 2 eat and I was in
chronic
pain
before and now I've made myself
as I had 2 as it got stuck and that was the only way I could get any relief from it and I was sat on the toilet trying 2 force it out 4 a good 15/20 minutes and once again SORRY about such a sensitive matter and just hope you are not trying 2 eat and I was in
chronic
pain
before and now I've made myself
bungi1961
in
IBS Network
7 months ago
watch and wait.
Hi all, I haven’t posted in a while. I am after some thoughts on results really.. I am based in the UK. Diagnosed in Oct 2022 after a chance blood test for something else. A familiar story from what I have read. A specialist at the time said I was a bit early for the disease! I’m now nearly 50. I
Hi all, I haven’t posted in a while. I am after some thoughts on results really.. I am based in the UK. Diagnosed in Oct 2022 after a chance blood test for something else. A familiar story from what I have read. A specialist at the time said I was a bit early for the disease! I’m now nearly 50. I
T7374
in
CLL Support
3 months ago
Beta 2 Microglobulin
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
ColSte
in
CLL Support
3 months ago
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Chronic pain affecting marriage
I've been suffering from
chronic
pain
for 15 years now. My wife whom I care for immensely tells me that I'm too critical of people in social situations and I'm not any good at them anymore. And I don't really know what to do. People cannot understand my pain.
I've been suffering from
chronic
pain
for 15 years now. My wife whom I care for immensely tells me that I'm too critical of people in social situations and I'm not any good at them anymore. And I don't really know what to do. People cannot understand my pain.
Resqc
in
Pain Concern
1 year ago
Dipipanone and Cyclizine
Thank you.Best wishes to all of you who are in
chronic
pain
. I sympathise so much.
Thank you.Best wishes to all of you who are in
chronic
pain
. I sympathise so much.
Danni54
in
Pain Concern
11 months ago
A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
bennevisplace
in
CLL Support
3 months ago
CLL diagnosis
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Tonightweride
in
CLL Support
3 months ago
Hematocrit and CLL
Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis. I see oncologist each 4 months. It's the longest interval she permits. My last appointment I had: WBC 15.0 HCT 51% My MD has suggested possibly (about a year ago but nothing since then) taking hydroxyurea
Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis. I see oncologist each 4 months. It's the longest interval she permits. My last appointment I had: WBC 15.0 HCT 51% My MD has suggested possibly (about a year ago but nothing since then) taking hydroxyurea
Jessielab
in
CLL Support
3 months ago
Support: Anxiety about having a baby
Hello everyone, I've been suffering from
chronic
pain
for about fifteen years now (half of my life) and it's really taken its toll.
Hello everyone, I've been suffering from
chronic
pain
for about fifteen years now (half of my life) and it's really taken its toll.
Resqc
in
Pain Concern
8 months ago
Cll back after 4yrs
Hospital found lymph nodes in neck and think my leukaemia is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Hospital found lymph nodes in neck and think my leukaemia is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Daisy1993
in
CLL Support
3 months ago
Does anyone have CLL and MDS?
I was diagnosed with CLL in 2010. They started treatment with B R in 2011. Went into remission for a year but then lymph nodes started to return Imbruvica was just approved by FDA was on imbruvica for 5 year. Went into remission again for two years. I was testing with low dose again with imbruvica
I was diagnosed with CLL in 2010. They started treatment with B R in 2011. Went into remission for a year but then lymph nodes started to return Imbruvica was just approved by FDA was on imbruvica for 5 year. Went into remission again for two years. I was testing with low dose again with imbruvica
DaveCll
in
CLL Support
3 months ago
Focusing on 1 thing physically hurts
And years of bad case of ADHD + very heavy multitasking as i couldn't do anything 8 years
chronic
pain
... When i try to focus on breath e.g. when trying to fall asleep, it gets physically painful in 10 seconds. Like visceral pain in my head and on chest!
And years of bad case of ADHD + very heavy multitasking as i couldn't do anything 8 years
chronic
pain
... When i try to focus on breath e.g. when trying to fall asleep, it gets physically painful in 10 seconds. Like visceral pain in my head and on chest!
empleat
in
CHADD's Adult ADHD Support
7 months ago
To Trial or not to Trial?
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
SunnyCA
in
CLL Support
4 months ago
Immune system changes during BTKi treatment
Hi, as a relative newbie here, please forgive me if this is a really naive question. I am soon to begin treatment with a BTKi drug. I know that having (a mutated form) of CLL means that my immune system is significantly suppressed and that BTKi treatment will further inhibit the immune system. My haematologist
Hi, as a relative newbie here, please forgive me if this is a really naive question. I am soon to begin treatment with a BTKi drug. I know that having (a mutated form) of CLL means that my immune system is significantly suppressed and that BTKi treatment will further inhibit the immune system. My haematologist
Fogey
in
CLL Support
4 months ago
gobsmacked
I can't believe they won't prescribe Subutex to a suffering
chronic
pain
sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me.
I can't believe they won't prescribe Subutex to a suffering
chronic
pain
sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me.
Hidden
in
Restless Legs Syndrome
8 months ago
Yellowish skin,
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Okki49
in
British Liver Trust
5 months ago
MRD Results
My hubby's CLL Dr called today and gave us the good news. My hubby's blood has zero CLL, and his bone marrow dropped 25% to .12%. His Dr wants him to keep taking his venetoclax and acalabrutinib so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year
My hubby's CLL Dr called today and gave us the good news. My hubby's blood has zero CLL, and his bone marrow dropped 25% to .12%. His Dr wants him to keep taking his venetoclax and acalabrutinib so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year
spi3
in
CLL Support
4 months ago
Pain and hypnotherapy
Hello - I'm a podcast producer and I'm looking for someone who has successfully managed their
chronic
pain
with hypnosis/hypnotherapy to be interviewed for an upcoming podcast series.
Hello - I'm a podcast producer and I'm looking for someone who has successfully managed their
chronic
pain
with hypnosis/hypnotherapy to be interviewed for an upcoming podcast series.
podproducer
in
Pain Concern
10 months ago
Headaches 2 weeks still after falls - should I be worried
Son suffers from
Chronic
pain
and FND, described his head pain like his brain is loose in his skull and moving quickly side to side hitting walls of skull (concussion symptoms I believe).
Son suffers from
Chronic
pain
and FND, described his head pain like his brain is loose in his skull and moving quickly side to side hitting walls of skull (concussion symptoms I believe).
Lady4
in
Functional Neurological Disorder - FND Hope
7 months ago
Venetoclax
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
JoeMcDote
in
CLL Support
4 months ago
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