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Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in
chronic
pain
. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?!
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in
chronic
pain
. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?!
Cats1311
in
Endometriosis UK
7 months ago
Interview study (1 hour) on chronic pain in small businesses
I am looking for people with
chronic
pain
to share their views and experiences of pain while working at a small or medium-sized enterprise (companies with less than 250 members of staff).
I am looking for people with
chronic
pain
to share their views and experiences of pain while working at a small or medium-sized enterprise (companies with less than 250 members of staff).
DaytonaWhite96
Researcher
in
Pain Concern
8 months ago
Help!
I’m managing
Chronic
pain
and
chronic
kidney disease as well. I’m reaching out to people who may understand my situation and be able to provide some emotional support as well as possibly develop a friendship. Thanks for reading.
I’m managing
Chronic
pain
and
chronic
kidney disease as well. I’m reaching out to people who may understand my situation and be able to provide some emotional support as well as possibly develop a friendship. Thanks for reading.
Downinil
in
Anxiety and Depression Support
10 months ago
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Reoccurrence of endo
I’m awaiting an appointment for the
Chronic
Pain
team, however I know my body so well and I believe the endometriosis is coming back in full force, so I guess my question is what would you do in this situation? Should I contact the consultant again?
I’m awaiting an appointment for the
Chronic
Pain
team, however I know my body so well and I believe the endometriosis is coming back in full force, so I guess my question is what would you do in this situation? Should I contact the consultant again?
Ps-endo
in
Endometriosis UK
23 days ago
Recent Article in the Mail on Sunday
You can find the article below: https://www.dailymail.co.uk/health/article-12552471/NHS-chiefs-cruel-ban-drugs-treat-
chronic
-
pain
-condition.html Des
You can find the article below: https://www.dailymail.co.uk/health/article-12552471/NHS-chiefs-cruel-ban-drugs-treat-
chronic
-
pain
-condition.html Des
desquinn
FMAUK Trustee
in
Fibromyalgia Action UK
8 months ago
Feeling down and belittled by GP
My GP rang me over an hour ago asking why I wanted to talk to her.I pointed out I was in
chronic
pain
and fatigue and that the Gabapentin wasn't working. I've to give it another month🤔🙄 I've struggled walking freely for many years. 1999 was the worst.
My GP rang me over an hour ago asking why I wanted to talk to her.I pointed out I was in
chronic
pain
and fatigue and that the Gabapentin wasn't working. I've to give it another month🤔🙄 I've struggled walking freely for many years. 1999 was the worst.
Smilesalot
in
Fibromyalgia Action UK
1 month ago
Introduction
Hi I decided to join after my wife recommended this truly excellent resource and community. I have recently been diagnosed with CLL and are finding this place a goldmine of advice and support. Not really looking forward to reading more about the condition but need to understand what’s going
Hi I decided to join after my wife recommended this truly excellent resource and community. I have recently been diagnosed with CLL and are finding this place a goldmine of advice and support. Not really looking forward to reading more about the condition but need to understand what’s going
bodgit
in
CLL Support
2 days ago
Introduction
Hi I decided to join after my wife recommended this truly excellent resource and community. I have recently been diagnosed with CLL and are finding this place a goldmine of advice and support. Not really looking forward to reading more about the condition but need to understand what’s going on with
Hi I decided to join after my wife recommended this truly excellent resource and community. I have recently been diagnosed with CLL and are finding this place a goldmine of advice and support. Not really looking forward to reading more about the condition but need to understand what’s going on with
Artycrafter
in
CLL Support
2 days ago
Is it the time for initial treatment?
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
Sagarcanada
in
CLL Support
3 days ago
Stomach heavy is due to a swollen spleen?
My wife has had CLL since 2020 and is still in the W&W stage. For the past few months, she has complained that her stomach is becoming heavy, implying that it is full of food. I take care of my wife. I seek additional posts. I don't find much of it. I suppose that could be related to a swollen spleen
My wife has had CLL since 2020 and is still in the W&W stage. For the past few months, she has complained that her stomach is becoming heavy, implying that it is full of food. I take care of my wife. I seek additional posts. I don't find much of it. I suppose that could be related to a swollen spleen
Sagarcanada
in
CLL Support
6 days ago
Great news from my MDAnderson doctor
I was originally diagnosed in May, 2011 and had a long 9 year watch and wait. Feb,2020 Dr Thompson put me on Calquence as I was become a little anemic and this treatment gave me great results. Feb, 2022 Dr. T and I agreed to add Venetoclax in an attempt to try to reach uMRD and have a drug
I was originally diagnosed in May, 2011 and had a long 9 year watch and wait. Feb,2020 Dr Thompson put me on Calquence as I was become a little anemic and this treatment gave me great results. Feb, 2022 Dr. T and I agreed to add Venetoclax in an attempt to try to reach uMRD and have a drug
DGG1931
in
CLL Support
7 days ago
Bendamustine
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
dickcll
in
CLL Support
8 days ago
Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group
Some very encouraging news for those with unmutated IGHV and/or TP53 aberrations, who are wondering how they will fare with a subsequent treatment. This phase 2 trial of 44 relapsed patients included 34 (75.6%) who had unmutated IGHV and 14/44 (31.8%) who had TP53 aberrations. A Measurable Residual
Some very encouraging news for those with unmutated IGHV and/or TP53 aberrations, who are wondering how they will fare with a subsequent treatment. This phase 2 trial of 44 relapsed patients included 34 (75.6%) who had unmutated IGHV and 14/44 (31.8%) who had TP53 aberrations. A Measurable Residual
AussieNeil
Administrator
in
CLL Support
9 days ago
Prucalopride & Pelvic floor pain
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hopetobewell
in
Pelvic Pain Support Network
4 months ago
Bilateral back thigh and leg pain associated with chronic pelvic pain??
Just had a lumbar MRI to make sure none of my
chronic
pelvic
pain
was coming from my back. Results were negative. I am having severe bilateral back and leg nerve pain. I have been able to control this with 300 mg of pregabalin, but it doesn’t seem to be working now.
Just had a lumbar MRI to make sure none of my
chronic
pelvic
pain
was coming from my back. Results were negative. I am having severe bilateral back and leg nerve pain. I have been able to control this with 300 mg of pregabalin, but it doesn’t seem to be working now.
Rocky68
in
Pelvic Pain Support Network
1 month ago
Lost height
Hello 2 years ago I had to have a shoulder replacement after I had a fall and broke it and it has never really healed and I've been left with
chronic
pain
, but since then I have lost 5 inches in height and its really effected my mental health as its really worrying me and come as a shock, I had a bone
Hello 2 years ago I had to have a shoulder replacement after I had a fall and broke it and it has never really healed and I've been left with
chronic
pain
, but since then I have lost 5 inches in height and its really effected my mental health as its really worrying me and come as a shock, I had a bone
Slotmachine33
in
Bone Health and Osteoporosis UK
2 months ago
Low vitamin d high serum ferritin
Hello My husband has been on watch and wait for 12 years. Due to a constant chronic cough he recently had a blood test which showed low vitamin D levels of 45 and high serum ferritin levels of 936. He has been referred back to haematology but in the meantime just wondering if anyone can tell me if there
Hello My husband has been on watch and wait for 12 years. Due to a constant chronic cough he recently had a blood test which showed low vitamin D levels of 45 and high serum ferritin levels of 936. He has been referred back to haematology but in the meantime just wondering if anyone can tell me if there
Debs4
in
CLL Support
15 days ago
Chronic upper body pain
hi everyone, I’m suffering with
chronic
upper body
pain
and looking for others who have similar symptoms. It’s been on and off for a few years but the last 6 months have been particularly bad.
hi everyone, I’m suffering with
chronic
upper body
pain
and looking for others who have similar symptoms. It’s been on and off for a few years but the last 6 months have been particularly bad.
Polnish841
in
Pain Concern
1 month ago
It wont be long
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
TheFlyer
in
CLL Support
23 days ago
CLL on the spine
UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07. Diagnosed CLL only last week (April 2024)… but very low levels CLL under 15% biopsy/ blood. Biopsy Not taken from spine mass. any one else have CLL on their spine?
UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07. Diagnosed CLL only last week (April 2024)… but very low levels CLL under 15% biopsy/ blood. Biopsy Not taken from spine mass. any one else have CLL on their spine?
BraddyB
in
CLL Support
23 days ago
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