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Amitriptyline
Hi all My GP suggested 10mg of Amitriptyline for my neck tension/pain and tension headaches - I took my first dose last night and slept much better but feel pretty dizzy and light headed this morning, annoyingly on top of the cervicogenic dizziness I already have! I’m up for carrying on though - is
Hi all My GP suggested 10mg of Amitriptyline for my neck tension/pain and tension headaches - I took my first dose last night and slept much better but feel pretty dizzy and light headed this morning, annoyingly on top of the cervicogenic dizziness I already have! I’m up for carrying on though - is
Sherah
in
Fibromyalgia Action UK
9 months ago
Painkiller advice for Anagrelide headaches.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Didgeridoo2
in
MPN Voice
9 months ago
Understanding PET Scan Results with CLL
Hello! I was diagnosed with CLL (11Q) in 2013. On Ibrutinib since 2015 and have very thankfully done very well with basically zero problems. CT scans have showed some mild increase in nodes over the last several years. Doctor ordered a PET Scan. I have the results. What would indicated Richter's
Hello! I was diagnosed with CLL (11Q) in 2013. On Ibrutinib since 2015 and have very thankfully done very well with basically zero problems. CT scans have showed some mild increase in nodes over the last several years. Doctor ordered a PET Scan. I have the results. What would indicated Richter's
FlaKeys
in
CLL Support
4 months ago
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Detected with CLL
Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with no symptoms so i was on wait and watch,after few months i got brain hamerroage and i was in hospital for 1 month after that i recovered but still my left side is weak , my wbc increased gradually and after 3 years it has
Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with no symptoms so i was on wait and watch,after few months i got brain hamerroage and i was in hospital for 1 month after that i recovered but still my left side is weak , my wbc increased gradually and after 3 years it has
Kkkaaarrr
in
CLL Support
4 months ago
CRGP injections side effects
Hello, I’ve been having chronic migraines for the last 20 months. I have tried taking Pizotifen, amitriptyline, and am still taking atenolol and venlafaxine. In June, I had a bi-lateral GON block which didn’t work. In August I was given my first dose of Botox. As Botox is given in two doses, 3 months
Hello, I’ve been having chronic migraines for the last 20 months. I have tried taking Pizotifen, amitriptyline, and am still taking atenolol and venlafaxine. In June, I had a bi-lateral GON block which didn’t work. In August I was given my first dose of Botox. As Botox is given in two doses, 3 months
Roonie22
in
National Migraine Centre
9 months ago
Headache/Migraine Ice Cool Cap
Hello all, I was wondering if anyone can recommend an ice cap for headaches that last more than 20 minutes? I’ve tried a couple via Amazon purchases so far, but they the affect does not last very long. I already use use ice cool type patches so I’m open to other suggestions that others have found
Hello all, I was wondering if anyone can recommend an ice cap for headaches that last more than 20 minutes? I’ve tried a couple via Amazon purchases so far, but they the affect does not last very long. I already use use ice cool type patches so I’m open to other suggestions that others have found
HealthStarDust
in
Pain Concern
9 months ago
Quercetin
I am taking Vimerson Health's Tumeric/Quercetin/Bromelain combination. Presently only taking the recommended two capsules per day in the morning. Been on Watch and Wait since 2019. White count is slowly creeping up (now at 30.8 - a year ago I was at 20.9). Other numbers Lymphs at #25, MCV at 96.9
I am taking Vimerson Health's Tumeric/Quercetin/Bromelain combination. Presently only taking the recommended two capsules per day in the morning. Been on Watch and Wait since 2019. White count is slowly creeping up (now at 30.8 - a year ago I was at 20.9). Other numbers Lymphs at #25, MCV at 96.9
CBME
in
CLL Support
4 months ago
The 2024 Global Patient Survey invites CLL patients and caregivers to share their experiences
Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients, including those with CLL, undertakes a
Global Patient Survey
. The 2024 survey gives you
an opportunity to share your experience with CLL
Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients, including those with CLL, undertakes a
Global Patient Survey
. The 2024 survey gives you
an opportunity to share your experience with CLL
CLLerinOz
Administrator
in
CLL Support
4 months ago
Constant daily Migraines
Hi, Please can someone help me? I have APS, Sjogrens & Hashimotos. Has anyone experienced continuous rolling migraines for a week? I don’t usually suffer from migraines, other than the odd visual aura if my INR drops below 2. For the last week I have had frequent daily auras and headaches. The
Hi, Please can someone help me? I have APS, Sjogrens & Hashimotos. Has anyone experienced continuous rolling migraines for a week? I don’t usually suffer from migraines, other than the odd visual aura if my INR drops below 2. For the last week I have had frequent daily auras and headaches. The
Janeh1960
in
Hughes Syndrome APS Forum
9 months ago
is this abdominal migraine?!
Doc said I’ve got abdominal migraines, but I don’t get stomach pain?! I have been prescribed 10mg amytriptiline to try. My symptoms are: A tight, aching neck and kind of prickly/sunburn feeling at the base of the scalp, like someone has pulled my hair really hard. This can creep up the back of the
Doc said I’ve got abdominal migraines, but I don’t get stomach pain?! I have been prescribed 10mg amytriptiline to try. My symptoms are: A tight, aching neck and kind of prickly/sunburn feeling at the base of the scalp, like someone has pulled my hair really hard. This can creep up the back of the
CaptainHowdy
in
National Migraine Centre
9 months ago
Severe pain in little toe
Hi everyone, I’ve been getting really severe pain in my right little toe. It’s pain like I’ve never had before - sharp, intense, not like a pin prick - much stronger. It only lasts for a few seconds at a time but it often goes on for an hour or more. I’ve taken ibuprofen and used some roll on Biofreeze
Hi everyone, I’ve been getting really severe pain in my right little toe. It’s pain like I’ve never had before - sharp, intense, not like a pin prick - much stronger. It only lasts for a few seconds at a time but it often goes on for an hour or more. I’ve taken ibuprofen and used some roll on Biofreeze
Ferret18
in
NRAS
9 months ago
Supplements for fibromyalgia/ chronic migraine
HiI have a h/ o fibromyalgia and recently diagnosed hypothyroid but for the last year I feel permanently migranous. I was having 2 a week last summer but after using magnesium patches they disappeared(!) but they are now back( still using the patches) Thinking of trying co- enzyme q10 and have ordered
HiI have a h/ o fibromyalgia and recently diagnosed hypothyroid but for the last year I feel permanently migranous. I was having 2 a week last summer but after using magnesium patches they disappeared(!) but they are now back( still using the patches) Thinking of trying co- enzyme q10 and have ordered
Rainbowangel
in
Fibromyalgia Action UK
1 year ago
watch and wait.
Hi all, I haven’t posted in a while. I am after some thoughts on results really.. I am based in the UK. Diagnosed in Oct 2022 after a chance blood test for something else. A familiar story from what I have read. A specialist at the time said I was a bit early for the disease! I’m now nearly 50. I
Hi all, I haven’t posted in a while. I am after some thoughts on results really.. I am based in the UK. Diagnosed in Oct 2022 after a chance blood test for something else. A familiar story from what I have read. A specialist at the time said I was a bit early for the disease! I’m now nearly 50. I
T7374
in
CLL Support
4 months ago
Beta 2 Microglobulin
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
ColSte
in
CLL Support
4 months ago
Arginine and Taurine
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
MeganMN
in
AF Association
9 months ago
A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
bennevisplace
in
CLL Support
5 months ago
CLL diagnosis
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Tonightweride
in
CLL Support
5 months ago
aimovig success so far
thanks to all messages regarding aimovig- pleased to say there’s a clear reduction in severity and frequency of migraines after two injections. I’m taking less triptans because the pain and other symptoms often come but then go away on their own or with regular pain relief. I’m hoping this improvement
thanks to all messages regarding aimovig- pleased to say there’s a clear reduction in severity and frequency of migraines after two injections. I’m taking less triptans because the pain and other symptoms often come but then go away on their own or with regular pain relief. I’m hoping this improvement
Discodog
in
National Migraine Centre
10 months ago
Hematocrit and CLL
Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis. I see oncologist each 4 months. It's the longest interval she permits. My last appointment I had: WBC 15.0 HCT 51% My MD has suggested possibly (about a year ago but nothing since then) taking hydroxyurea
Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis. I see oncologist each 4 months. It's the longest interval she permits. My last appointment I had: WBC 15.0 HCT 51% My MD has suggested possibly (about a year ago but nothing since then) taking hydroxyurea
Jessielab
in
CLL Support
5 months ago
Visual disturbances after ablation
1 week post op and everyday I have had vision issues... blurriness, auras, tunnel vision. It happened while I was in the hospital still and they ruled out stroke, but the issue has persisted. Wondering if anyone else has experienced vision issues after an ablation and can provide some insight Thanks!
1 week post op and everyday I have had vision issues... blurriness, auras, tunnel vision. It happened while I was in the hospital still and they ruled out stroke, but the issue has persisted. Wondering if anyone else has experienced vision issues after an ablation and can provide some insight Thanks!
CanadianAfiber
in
AF Association
10 months ago
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