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Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Injections
I can not say enough about how helpful injections are. Here is and example: I went to bed ( around 10:30pm) with a migraine that on pain scale was about a 3 or 4 out of 10. I slept and woke up at 4 am with the same pain level so I took 2 over the counter migraine medication. I fell back to sleep and
I can not say enough about how helpful injections are. Here is and example: I went to bed ( around 10:30pm) with a migraine that on pain scale was about a 3 or 4 out of 10. I slept and woke up at 4 am with the same pain level so I took 2 over the counter migraine medication. I fell back to sleep and
Onthemove1971
in
National Migraine Centre
2 years ago
COVID-19 UPDATES - The latest experimental therapies - not CLL specific, but potential treatment for COVID-19 in many cancer patients
COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer Patients In our third and final interview with , experimental therapies for COVID-19 are discussed. While not CLL specific, Dr. Leyfman does present potential options for treating COVID-19 in cancer patients broadly.
COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer Patients In our third and final interview with , experimental therapies for COVID-19 are discussed. While not CLL specific, Dr. Leyfman does present potential options for treating COVID-19 in cancer patients broadly.
lankisterguy
Volunteer
in
CLL Support
2 years ago
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Roof insulation quandry
This is indirectly a concern for those of us with breathing issues , plus your future option for equity release if you own your home. And can inpact on the value of your home. People were told that foam insulation in the loft was the bees knees , it was backed by the government and now it comes to light
This is indirectly a concern for those of us with breathing issues , plus your future option for equity release if you own your home. And can inpact on the value of your home. People were told that foam insulation in the loft was the bees knees , it was backed by the government and now it comes to light
katieoxo60
in
Lung Conditions Community Forum
2 years ago
Chronic Fatigue Syndrome
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
does-the-NHS-work
in
Fibromyalgia Action UK
2 years ago
Slow rising HCG positive stories/outcomes?
Hi again, Sorry for stalking this forum this week, as you can tell I’m an anxious wreck! Had my betas back this morning and although they’re positive, the nurse has worried me as they’ve only risen by 60%. She told me it’s nothing to worry about but at 5 weeks I know it’s so early. Did anyone else
Hi again, Sorry for stalking this forum this week, as you can tell I’m an anxious wreck! Had my betas back this morning and although they’re positive, the nurse has worried me as they’ve only risen by 60%. She told me it’s nothing to worry about but at 5 weeks I know it’s so early. Did anyone else
Catlady12345
in
Fertility Network UK
2 years ago
Introduction: I'm new here
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Kanjee18
in
Vasculitis UK
2 years ago
Night sweat relief?
I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until recently experiencing night sweats. I am wondering if there is any treatment for this and also wonder if it means my condition is advancing quickly. I have an appt with the hematologist/ oncologist in May. He said I am on a watch
I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until recently experiencing night sweats. I am wondering if there is any treatment for this and also wonder if it means my condition is advancing quickly. I have an appt with the hematologist/ oncologist in May. He said I am on a watch
9RGBZ
in
CLL Support
2 years ago
Working with CLL!
Hello all, I'm new to this site but have already gained a vast amount of knowledge and feel a sense of support from reading the posts and engaging with your stories. I received all my test results, genetic/bloods etc and confirmation of CLL back in Dec 2021. I'm on the Watch and Wait journey! I work
Hello all, I'm new to this site but have already gained a vast amount of knowledge and feel a sense of support from reading the posts and engaging with your stories. I received all my test results, genetic/bloods etc and confirmation of CLL back in Dec 2021. I'm on the Watch and Wait journey! I work
MDcard
in
CLL Support
2 years ago
What does curing CLL mean?
This is a question I often wonder about but have never asked my doctor. When we hear about a cure for CLL what we really mean is a way to live with it, correct? The existing treatments and treatments on the horizon won't necessarily eliminate CLL altogether or the associated risks of secondary cancers
This is a question I often wonder about but have never asked my doctor. When we hear about a cure for CLL what we really mean is a way to live with it, correct? The existing treatments and treatments on the horizon won't necessarily eliminate CLL altogether or the associated risks of secondary cancers
CoCoLuna11
in
CLL Support
2 years ago
7th time unlucky ❤️
Hey my sweet lovely people hope you are all doing well ❤️ So I had my scan and doctor confirmed what I've already knew in my heart. I wish I didn't know my body so well! Doc was so shocked and disappointed I felt like he was going to cry, the nurse too bless their hearts ❤️ Looking at the bright side
Hey my sweet lovely people hope you are all doing well ❤️ So I had my scan and doctor confirmed what I've already knew in my heart. I wish I didn't know my body so well! Doc was so shocked and disappointed I felt like he was going to cry, the nurse too bless their hearts ❤️ Looking at the bright side
Klndmr
in
Fertility Network UK
2 years ago
"Sailing with CLL" - a sense of humor may help....
"Aboard" and "Port" are two terms which I heard in past days during my medical care: Routinly I am asked by the Cancer Clinic lab technician: "Do you have a port?" I do not. But at this moment I smile and I am tempted to say: "Yes, my port is Santo Domingo!" and I sense a bit euphoria: When I retired
"Aboard" and "Port" are two terms which I heard in past days during my medical care: Routinly I am asked by the Cancer Clinic lab technician: "Do you have a port?" I do not. But at this moment I smile and I am tempted to say: "Yes, my port is Santo Domingo!" and I sense a bit euphoria: When I retired
janvog
in
CLL Support
2 years ago
Confused
Hi everybody,. What can I take too prevent migraine with aura,. I have open angle glaucoma. GP has prescribed amitriptyline,. But I am not happy, as the leaflet says it increases pressure. GP is reluctant to change this until I have tried it. I am worried ,as migraine are getting more frequent.
Hi everybody,. What can I take too prevent migraine with aura,. I have open angle glaucoma. GP has prescribed amitriptyline,. But I am not happy, as the leaflet says it increases pressure. GP is reluctant to change this until I have tried it. I am worried ,as migraine are getting more frequent.
Lancashirelass07
in
National Migraine Centre
2 years ago
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Luv2Craft
in
CLL Support
2 years ago
Migraine Medication and Blood Pressure Medication
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
MightyMay
in
Thyroid UK
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
Tinnitus, vertigo and nausea update
Panicked that I had Ménière’s and then managed to see an ENT and had Audio-vestibular tests at UCLH - which was very thorough - the diagnosis was
chronic
vestibular
migraine
and visual vertigo. The consultant did every test going and said that my symptoms were most consistent with VM.
Panicked that I had Ménière’s and then managed to see an ENT and had Audio-vestibular tests at UCLH - which was very thorough - the diagnosis was
chronic
vestibular
migraine
and visual vertigo. The consultant did every test going and said that my symptoms were most consistent with VM.
ArtyPants46
in
Tinnitus UK
2 years ago
Spotting
Hi ladies! You’re all so wonderful and I’m hoping I can pick your brains please! I have been spotting (light brown - sometimes a bit darker) since Monday afternoon. It’s only occasionally and I know spotting is ‘quite normal’, but it’s scaring me quite a bit. My second beta suggests my hcg has almost
Hi ladies! You’re all so wonderful and I’m hoping I can pick your brains please! I have been spotting (light brown - sometimes a bit darker) since Monday afternoon. It’s only occasionally and I know spotting is ‘quite normal’, but it’s scaring me quite a bit. My second beta suggests my hcg has almost
Hopingforbaby_
in
Fertility Network UK
2 years ago
A little update 😃🌻🙏
Heyy my lovely ladies hope you are all well! I just thought I'll share a little update with you all. So HCG on Monday was 684, Wednesday over 1300 which doctor was happy with. As I'm flying back to UK tomorrow he wanted to see me today and did an early scan just for his peace of mind and mine if course
Heyy my lovely ladies hope you are all well! I just thought I'll share a little update with you all. So HCG on Monday was 684, Wednesday over 1300 which doctor was happy with. As I'm flying back to UK tomorrow he wanted to see me today and did an early scan just for his peace of mind and mine if course
Klndmr
in
Fertility Network UK
2 years ago
Hemiplegic migraines
Hello everyone I am just reaching out to be in touch with others with hemiplegic migraine as I have never met anybody else who has it apart from my daughter. I have suffered from migraines since I was a young teenager with Aura and I developed hemiplegic migraines in my late 20s I'm now in my early 50s
Hello everyone I am just reaching out to be in touch with others with hemiplegic migraine as I have never met anybody else who has it apart from my daughter. I have suffered from migraines since I was a young teenager with Aura and I developed hemiplegic migraines in my late 20s I'm now in my early 50s
Cookingcookie
in
National Migraine Centre
2 years ago
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