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cold virus and CLL
I have just finished my first month taking Imbruvica. It has been a bit bumpy, but I am okay. My husband has been away for a week and is coming home today. He just let me know that he has caught a pretty bad cold. I plan to mask and will ask him to mask, I’ll sleep in a separate room, and I won
I have just finished my first month taking Imbruvica. It has been a bit bumpy, but I am okay. My husband has been away for a week and is coming home today. He just let me know that he has caught a pretty bad cold. I plan to mask and will ask him to mask, I’ll sleep in a separate room, and I won
DogmomLM
in
CLL Support
2 years ago
My happiness does not last long...
I gave in to test two days ago (9dp5et) after I experienced pink discharge and it was a clear positive and I was on the moon. Today was my OTD- it came much fainter and my HCG is 84. I was advised to repeat in 2 days. Any success with this HCG level? Im worried about the trend on urine blood test, for
I gave in to test two days ago (9dp5et) after I experienced pink discharge and it was a clear positive and I was on the moon. Today was my OTD- it came much fainter and my HCG is 84. I was advised to repeat in 2 days. Any success with this HCG level? Im worried about the trend on urine blood test, for
Blueberry211
in
Fertility Network UK
2 years ago
Nervous mammy
Hi everyone, any advice or thoughts is welcome So my 3 year old has just got over tonsillitis and it wasn’t a nice experience atall god love him it took a little longer then usual to get over, but now that he’s better my younger son (19months old) has a slight temperature of 37.6 and I’m nervous incase
Hi everyone, any advice or thoughts is welcome So my 3 year old has just got over tonsillitis and it wasn’t a nice experience atall god love him it took a little longer then usual to get over, but now that he’s better my younger son (19months old) has a slight temperature of 37.6 and I’m nervous incase
Khark96
in
Pregnancy and Parenting Support
2 years ago
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VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
CLLerinOz
Administrator
in
CLL Support
2 years ago
Is it possible to have a flare up of PMR without a change in predisolone dosage?
I have had PMR for over 2 years & I'm currently on 12mg of Pred. I have seen a Rheumatologist & started Methotrexate on 15th September10mg once a week but I have not started reducing the Pred yet. For the last 4-5 days I have been feeling cold, tired & aching all over & feel like I've got the flu.
I have had PMR for over 2 years & I'm currently on 12mg of Pred. I have seen a Rheumatologist & started Methotrexate on 15th September10mg once a week but I have not started reducing the Pred yet. For the last 4-5 days I have been feeling cold, tired & aching all over & feel like I've got the flu.
Springer2210
in
PMRGCAuk
2 years ago
low and slow rising HCG
Hi everyone, I have my HCG test on on my 9dp5dt which is 50 and the 2nd test is 3 days later on 12dp which is 78. the nurse said it didn’t look good and ask me to go off medication and wait for my period ( kinda of wait for miscarriage). i am going to hv another test tmr to double confirm. i don’
Hi everyone, I have my HCG test on on my 9dp5dt which is 50 and the 2nd test is 3 days later on 12dp which is 78. the nurse said it didn’t look good and ask me to go off medication and wait for my period ( kinda of wait for miscarriage). i am going to hv another test tmr to double confirm. i don’
Jtjo
in
Fertility Network UK
2 years ago
Hcg rising but still low- going mad!
So after the slow rise last week and a non eventful scan yesterday I was fully preparing myself for my hcg to have gone down today… but low and behold it’s still going up. Was 2800 on Friday and yesterday has jumped up to 5100 (exactly 68 hours later) which is a doubling time of 78 hours and from what
So after the slow rise last week and a non eventful scan yesterday I was fully preparing myself for my hcg to have gone down today… but low and behold it’s still going up. Was 2800 on Friday and yesterday has jumped up to 5100 (exactly 68 hours later) which is a doubling time of 78 hours and from what
Kimbob82
in
Fertility Network UK
2 years ago
Thoughts - fatigue, slow recovery from illness, IBS links?
My adorable grandson, aka the germ gremlin, keeps giving me his bugs; coughs, colds, hand foot and mouth and most recently strep throat. The thing is im struggling to recover every time. I understand im not 21 any more but I'm only 47. I'm on a modified FODMAP diet, everything cooked from scratch and
My adorable grandson, aka the germ gremlin, keeps giving me his bugs; coughs, colds, hand foot and mouth and most recently strep throat. The thing is im struggling to recover every time. I understand im not 21 any more but I'm only 47. I'm on a modified FODMAP diet, everything cooked from scratch and
BlackIsleGirl
in
IBS Network
2 years ago
Pain worse when ill (cold/flu)
hello! I am on the waiting list for a diagnostic lap to check for endometriosis which I do have a lot of the symptoms for. I’m currently under the weather with a pretty bad cold. But my endo symptoms seem to be worse while I’m ill. I’m in so much pain which is radiating around my back and into my legs
hello! I am on the waiting list for a diagnostic lap to check for endometriosis which I do have a lot of the symptoms for. I’m currently under the weather with a pretty bad cold. But my endo symptoms seem to be worse while I’m ill. I’m in so much pain which is radiating around my back and into my legs
PBGV24
in
Endometriosis UK
2 years ago
Evosheld
I joined the Evosheld UK Facebook page where there is a strong campaign for the government to authorise Evusheld. We were asked to write to our MPs and ask for the question to raised on the House of Commons. I have written several letters to my MP and generally get a stock reply. Here is the latest
I joined the Evosheld UK Facebook page where there is a strong campaign for the government to authorise Evusheld. We were asked to write to our MPs and ask for the question to raised on the House of Commons. I have written several letters to my MP and generally get a stock reply. Here is the latest
kitchengardener2
in
CLL Support
2 years ago
CLL highly correlated to other cancers?
My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and well. His iron/ ferritin suddenly dropped and a small bowel malignant tumour was diagnosed and successfully removed. The Haematologist who manages the CLL commented that it’s unsurprising that he developed a secondary cancer
My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and well. His iron/ ferritin suddenly dropped and a small bowel malignant tumour was diagnosed and successfully removed. The Haematologist who manages the CLL commented that it’s unsurprising that he developed a secondary cancer
NixRose
in
CLL Support
2 years ago
Relapse Worries? Help, Please!
Hi everyone, I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever. Yay! Today, however, I got the results of another flow blood test, 20 months after treatment ended, and it says "the immunophenotype of these
Hi everyone, I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever. Yay! Today, however, I got the results of another flow blood test, 20 months after treatment ended, and it says "the immunophenotype of these
DRM18
in
CLL Support
2 years ago
Rubella vaccine
Anyone know where to get the rubella only vaccine? I was just about to start down regulation when nurse spotted no detectable rubella antibodies. Now I'm stressed and anxious they've known for 3 months since I had my bloods
Anyone know where to get the rubella only vaccine? I was just about to start down regulation when nurse spotted no detectable rubella antibodies. Now I'm stressed and anxious they've known for 3 months since I had my bloods
HopeNotTooLate46
in
Fertility Network UK
2 years ago
Need suggestion - Advanced age and IVF
Hi ladies, I am 41 , having no health issues and good AMH 3.8. I got 2 embryos out of 11 mature eggs with 7 fertilized , AB and BB and transferred one only but IVF failed with dropping HCG level at week 5 in 48 hrs interval ( 66-69-45). There is no pain, cramps or bleeding so far. Have been
Hi ladies, I am 41 , having no health issues and good AMH 3.8. I got 2 embryos out of 11 mature eggs with 7 fertilized , AB and BB and transferred one only but IVF failed with dropping HCG level at week 5 in 48 hrs interval ( 66-69-45). There is no pain, cramps or bleeding so far. Have been
Mom_Njai
in
Fertility Network UK
2 years ago
Told to stop Progesterone support(ByGreekclinic) at 9 weeks and SCARED is an understatement
I completed a FET transfer at my clinic 2 months ago and have since had a positive pregnancy test and early scan at 6 weeks. I am currently 8weeks, 6 days and with tomorrow being my 9th week, my clinic want me to do the following Immediately stop my Prolutex (progesterone in oil) Ease off my Utrogestan
I completed a FET transfer at my clinic 2 months ago and have since had a positive pregnancy test and early scan at 6 weeks. I am currently 8weeks, 6 days and with tomorrow being my 9th week, my clinic want me to do the following Immediately stop my Prolutex (progesterone in oil) Ease off my Utrogestan
ALM9
in
Fertility Network UK
2 years ago
shingles question
Hi, just wondered how dangerous it would be to if I were to come into contact with someone with shingles? My disabled daughter who lives in supported living has shingles and I’m due to see her soon. I’m now on 6mg prednisone- am I less compromised as it’s a lower dose? Thanks
Hi, just wondered how dangerous it would be to if I were to come into contact with someone with shingles? My disabled daughter who lives in supported living has shingles and I’m due to see her soon. I’m now on 6mg prednisone- am I less compromised as it’s a lower dose? Thanks
Abcd123455
in
PMRGCAuk
2 years ago
Hcg numbers causing me stress…
Hi lovely ladies, So I had 2nd beta done last week and it came back at 180… 9 days later (yesterday) it has come back at 2200. I’ve put it in hcg calculator and apparently that’s a doubling time of 59 hours… should I be concerned or am I stressing about nothing? I’m 6 weeks today and my scan isn’t
Hi lovely ladies, So I had 2nd beta done last week and it came back at 180… 9 days later (yesterday) it has come back at 2200. I’ve put it in hcg calculator and apparently that’s a doubling time of 59 hours… should I be concerned or am I stressing about nothing? I’m 6 weeks today and my scan isn’t
Kimbob82
in
Fertility Network UK - Pregnancy Support
2 years ago
Shingles again , so over this! Thinking of getting the vaccine- do the shingles vaccines work ?
I’m 59 with Sjögrens and a number of chronic conditions. I’m going through a bout of shingles after a bad ear infection (5 sets of antibiotics later). Ended up with shingles in the trigeminal nerve area, which was not picked up in time for antivirals., in spite of me flagging it with gp and then when
I’m 59 with Sjögrens and a number of chronic conditions. I’m going through a bout of shingles after a bad ear infection (5 sets of antibiotics later). Ended up with shingles in the trigeminal nerve area, which was not picked up in time for antivirals., in spite of me flagging it with gp and then when
25clai
in
LUPUS UK
2 years ago
Monoclonal antibodies vs. Paxlovid
I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with CLL in 2009 and began treatment with Ibrutinib in early December 2020. I also received the full recommended doses of Evusheld since antibody tests showed I had an inadequate response to the vaccine. My case of Covid was
I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with CLL in 2009 and began treatment with Ibrutinib in early December 2020. I also received the full recommended doses of Evusheld since antibody tests showed I had an inadequate response to the vaccine. My case of Covid was
AVD92449
in
CLL Support
2 years ago
Sensitive post miscarriage
hey all I wanted to post mainly just to get it all off my chest tbh but also incase anyone else finds themselves in the same situation and trawling forums/google like me for answers. We finally got our BFP after a couple of years of trying and all was going great, we were so excited and shared the
hey all I wanted to post mainly just to get it all off my chest tbh but also incase anyone else finds themselves in the same situation and trawling forums/google like me for answers. We finally got our BFP after a couple of years of trying and all was going great, we were so excited and shared the
HMCW22
in
Fertility Network UK
2 years ago
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