CLL/CML treatment update

[tedrog]

Hi All,

Thank you for your passed and continuing help and support.

Been taking dasatsnib since 2018 or 2019; with 1 incidence of Pleural effusion/thoracenticis, etc., in 2021. —that’s when I switched to Dr Cortes. zwent from 100mg to 20. For last 2-3 years.

Dx’d in 2014. I have CLL and CML simultaneously.

CLL has moving my up wbc since then.

Dr says it isn’t necessarily how high but how fast/ rate.

last march I was 89, not 194.

He just did reassess, bmb,

Results not in. It was just yesterday.

He said it was likely we would start also treating the CLL.

I asked: with another TKI?

He said: no. maybe 2 new or newer drugs.

I go back in 4 weeks.

Dr said he will look for any gene changes, if recall correctly.

Thanks, All the Best,

Tedro

[LeoPa]

Did they give you Gleevec for the CML? It is supposedly curable with Gleevec. I was hoping to have CML when I already knew something was wrong but did not yet know which one of the two it was going to be. Sounds like a joke that one could be hoping to have CML but it wasn't, in my case 🙂

[tedrog in reply to LeoPa]

No. Gleevec can cause heart failure (no, I haven’t heart problems — I have an as ending aortic aneurism, but who knows when I got that; not operable in size, i hope never.— I started and am still on Sprycel (dasatinib), which is rather notorious for pleural effusion (which I did have after about 5 or 6 years of 100mg; now on 20mg. About 50cc remains, lost a bit of right lung function. Two thoracenticis a few months apart. During that time, about 8 months, dasatinib was suspended (by me, dr was uniformed… that’s when I got Dr Cortes… I’m VA…. before then I was MR4… but the CML soon went up like a hockey stick.)

Btw, I know of no cure, for either.

Best,

LeoPa