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Pegasys - to start or not
It has been now 3 years with ET diagnosis. Lot of reading about MPN’s behind me, especially through this network of wonderful people. I am now seriously considering starting Pegasys and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of
It has been now 3 years with ET diagnosis. Lot of reading about MPN’s behind me, especially through this network of wonderful people. I am now seriously considering starting Pegasys and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of
Bigcheat
in
MPN Voice
1 year ago
pred and tetanus shot??
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
agingfeminist
in
PMRGCAuk
1 year ago
Covid vaccine and rituximab
Hi All Can someone tell me please what is the time frame after having a covid jab that rituximab can be given? Many thanks
Hi All Can someone tell me please what is the time frame after having a covid jab that rituximab can be given? Many thanks
Galaxy2
in
Vasculitis UK
1 year ago
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Rash -off topic
hello Has anyone ever developed a hives style itchy rash? This started last evening and three times now it’s come on and eased. I rang 111 and went to the pharmacist last night. When I was having covid at New Year - it triggered a horrible 6 week flare. Now this covid is easing I wonder if the rash
hello Has anyone ever developed a hives style itchy rash? This started last evening and three times now it’s come on and eased. I rang 111 and went to the pharmacist last night. When I was having covid at New Year - it triggered a horrible 6 week flare. Now this covid is easing I wonder if the rash
TheBoys
in
NRAS
1 year ago
Panicking over blood results
Hi. I have a kidney infection at the moment, im just finished an antibiotic for a bladder infection but back pain was still there so I went back to GP and turns out bladder infection progressed into kidney infection-another course of antibiotics. I got my blood tests done 4 weeks ago and just happened
Hi. I have a kidney infection at the moment, im just finished an antibiotic for a bladder infection but back pain was still there so I went back to GP and turns out bladder infection progressed into kidney infection-another course of antibiotics. I got my blood tests done 4 weeks ago and just happened
lolokeane
in
Early CKD Support
1 year ago
Enerzair Inhaler
Has anyone come across this inhaler? I’ve gone from Fostair to Relvar and now to this. Haven’t started it yet but does this suggest I’m now on triple therapy? It’s a bit disconcerting to be on what appears to be a pretty strong inhaler a year into chronic bronchitis. I feel it leaves little room to up
Has anyone come across this inhaler? I’ve gone from Fostair to Relvar and now to this. Haven’t started it yet but does this suggest I’m now on triple therapy? It’s a bit disconcerting to be on what appears to be a pretty strong inhaler a year into chronic bronchitis. I feel it leaves little room to up
PW_R
in
Lung Conditions Community Forum
1 year ago
Bronchiectasis and Covid
I have Bronchiectasis and have been ill since beginning December. Just feeling better beginning March and got Covid. How many weeks should I wait for Spring jab? Feeling ‘my normal’ now.
I have Bronchiectasis and have been ill since beginning December. Just feeling better beginning March and got Covid. How many weeks should I wait for Spring jab? Feeling ‘my normal’ now.
kenta
in
Lung Conditions Community Forum
1 year ago
Navage?
Many of us (most?) suffer from sinus issues and we have our own tools to deal with these issues. My weapons of choice are Saline spray followed by Flonase before I go to bed. Works pretty well except for right now during allergy season. However, I've been hearing many advertisements for the Navage
Many of us (most?) suffer from sinus issues and we have our own tools to deal with these issues. My weapons of choice are Saline spray followed by Flonase before I go to bed. Works pretty well except for right now during allergy season. However, I've been hearing many advertisements for the Navage
hhk50
in
CLL Support
1 year ago
COVID-19 antiviral treatments
So it’s happened I have tested positive for covid for the second time. This time I feel unwell a lot more than the first time. something else that is different this time is that I have been approved for COVID-19 antiviral treatment at home. This was not approved last time. has anybody else been
So it’s happened I have tested positive for covid for the second time. This time I feel unwell a lot more than the first time. something else that is different this time is that I have been approved for COVID-19 antiviral treatment at home. This was not approved last time. has anybody else been
MikeMaxi
in
Asthma Community Forum
1 year ago
Dr Yusuf (YP) Saleeby gives an update on COVID, Long COVID and LDN https://vimeo.com/799076388
https://vimeo.com/799076388
https://vimeo.com/799076388
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Shingles vaccine
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
Gilliancheche
in
NRAS
1 year ago
Xstich
my husband has pulmonary fibrosis, since having pneumonia last November the coughing has got worse and he is bringing up phlegm. He’s now having trouble swallowing food mainly his dinner, he chews & chews the food but can’t swallow it, he recently had a gastroendoscopy with polyps found in the stomach
my husband has pulmonary fibrosis, since having pneumonia last November the coughing has got worse and he is bringing up phlegm. He’s now having trouble swallowing food mainly his dinner, he chews & chews the food but can’t swallow it, he recently had a gastroendoscopy with polyps found in the stomach
Xrossstich
in
Lung Conditions Community Forum
1 year ago
MSA and Covid
I was wondering if anyone else had the experience of their loved one deteriorating significantly post-Covid infection? My dad was walking around still and fairly able to take care of basic things, but then he got Covid and that essentially put him in bed and weakened him significantly. And that was 6
I was wondering if anyone else had the experience of their loved one deteriorating significantly post-Covid infection? My dad was walking around still and fairly able to take care of basic things, but then he got Covid and that essentially put him in bed and weakened him significantly. And that was 6
MSADaughter
in
Multiple System Atrophy Trust
1 year ago
Spring 2023 Covid Booster
Hi all, Many of you will know that the spring round of Covid boosters is nigh. I have posted this link for information. Hope everyone stays well xxx❤️ https://www.thesun.co.uk/health/21904660/next-round-covid-booster-jabs/ JJ P.S. This is not an April Fools' joke ;)
Hi all, Many of you will know that the spring round of Covid boosters is nigh. I have posted this link for information. Hope everyone stays well xxx❤️ https://www.thesun.co.uk/health/21904660/next-round-covid-booster-jabs/ JJ P.S. This is not an April Fools' joke ;)
JJ_7
in
Lung Conditions Community Forum
1 year ago
going to Italy
I am going to Italy early May. Here in NZ I can’t get the new booster shot before I go because it’s been 2weeks short of 6 months since I had Covid. So of course feeling pretty nervous. I have well controlled CLL on ibrutinib. When planning the trip it seemed likely I’d get the booster but there’s
I am going to Italy early May. Here in NZ I can’t get the new booster shot before I go because it’s been 2weeks short of 6 months since I had Covid. So of course feeling pretty nervous. I have well controlled CLL on ibrutinib. When planning the trip it seemed likely I’d get the booster but there’s
Zoethedog
in
NRAS
1 year ago
Bad few weeks with chest
Hi everyone. I joined 3 months ago been in the back ground reading and learning from this wonderful group.Last few weeks I've had a flare up chest infection with bronchiectasis i found out by CT scan i had this plus peribronchial fibrosis after catching covid19 March 2020. Long covid has change my fun
Hi everyone. I joined 3 months ago been in the back ground reading and learning from this wonderful group.Last few weeks I've had a flare up chest infection with bronchiectasis i found out by CT scan i had this plus peribronchial fibrosis after catching covid19 March 2020. Long covid has change my fun
Musicalways
in
Bronchiectasis Support
1 year ago
Worried about hand
I'd like some advice please. I have had RA damaging my hands and wrists for a long time, but I've never experienced anything like this before. My 2nd and 3rd fingers hang down, they won't straighten. My hands been like this for months. It feels like something's snapped, torn or disintegrated on the back
I'd like some advice please. I have had RA damaging my hands and wrists for a long time, but I've never experienced anything like this before. My 2nd and 3rd fingers hang down, they won't straighten. My hands been like this for months. It feels like something's snapped, torn or disintegrated on the back
Createsomething
in
NRAS
1 year ago
just checking in
Guys hope your all good not been on here much as not been great methotrexate lifted my liver count and so was stopped had to wait for funding for biologists which I’m now on but I haven’t had a great run as do an infection then catch something. Two steroid injections down and hoping all will be
Guys hope your all good not been on here much as not been great methotrexate lifted my liver count and so was stopped had to wait for funding for biologists which I’m now on but I haven’t had a great run as do an infection then catch something. Two steroid injections down and hoping all will be
Gottaloveastaffy
in
NRAS
1 year ago
oocyte activation
Evening all, hope you’re all well. We had our final planning consultation today for round 3, and we’ve decided to go ahead with oocyte activation following total fertilisation failure on our last icsi round. Has anyone got any success stories? Hopefully we’ll have more mature eggs/better quality
Evening all, hope you’re all well. We had our final planning consultation today for round 3, and we’ve decided to go ahead with oocyte activation following total fertilisation failure on our last icsi round. Has anyone got any success stories? Hopefully we’ll have more mature eggs/better quality
Hidden
in
Fertility Network UK
9 months ago
More long Covid
Another article on long Covid. Nothing new, but still it's striking to see the similarities with B12 with neurological symptoms. Especially the problems with doctors. https://www.hcplive.com/view/no-one-left-behind-the-long-covid-crisis-2023
Another article on long Covid. Nothing new, but still it's striking to see the similarities with B12 with neurological symptoms. Especially the problems with doctors. https://www.hcplive.com/view/no-one-left-behind-the-long-covid-crisis-2023
WiscGuy
in
Pernicious Anaemia Society
1 year ago
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