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for a pre winter information giving session? You are always so incredibly helpful. Our local service is thinking of offering a pre winter information drop in day and have asked me what I think it might be helpful for respiratory patients to know before winter sets in ! This is designed to help us
for a pre winter information giving session? You are always so incredibly helpful. Our local service is thinking of offering a pre winter information drop in day and have asked me what I think it might be helpful for respiratory patients to know before winter sets in ! This is designed to help us
PaulineHM
in
Lung Conditions Community Forum
15 days ago
This may be of interest to people here who have Long Covid.
Research Review: Long COVID Is Not a Functional Neurologic Disorder - UK co-authors include Sarah Tyson and Nicola Clague Baker "We conclude that considering long COVID as FND is inappropriate based on differentiating pathophysiologic mechanisms and distinguishing clinical findings." Read more here
Research Review: Long COVID Is Not a Functional Neurologic Disorder - UK co-authors include Sarah Tyson and Nicola Clague Baker "We conclude that considering long COVID as FND is inappropriate based on differentiating pathophysiologic mechanisms and distinguishing clinical findings." Read more here
210272
in
Functional Neurological Disorder - FND Hope
16 days ago
Covid
Hi all. I have regular injections of Eyelea. Last one mid july. One week later I contracted covid. First time for me. Still testing positive on a lateral flow test. Next injection due in a few weeks. My question is are you ok to have injections whilst recovering from covid? Have read you can still test
Hi all. I have regular injections of Eyelea. Last one mid july. One week later I contracted covid. First time for me. Still testing positive on a lateral flow test. Next injection due in a few weeks. My question is are you ok to have injections whilst recovering from covid? Have read you can still test
Lupin1587
in
Macular Society
16 days ago
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Summer COVID free tests ET JAK 2
Thank you so much to everyone for their replies, you are wonderful and I hope you know this. I have been to my local pharmacy and picked up my box of 5 free tests which hopefully I won't need but at least I am prepared. Thank you so much, I hope everyone stays well and COVID free! Thank you again
Thank you so much to everyone for their replies, you are wonderful and I hope you know this. I have been to my local pharmacy and picked up my box of 5 free tests which hopefully I won't need but at least I am prepared. Thank you so much, I hope everyone stays well and COVID free! Thank you again
Cassandra61
in
MPN Voice
16 days ago
To be or not to be Immuno-suppressed? That is the Question!
Since the covid vaccination program began, I've very deliberately had every single booster offered....7 in total. I've always felt that protecting myself from catching covid is both sensible and responsible. However, I've not been able to have this years spring booster yet as I cannot have the Moderna
Since the covid vaccination program began, I've very deliberately had every single booster offered....7 in total. I've always felt that protecting myself from catching covid is both sensible and responsible. However, I've not been able to have this years spring booster yet as I cannot have the Moderna
Kendrew
in
PMRGCAuk
17 days ago
Covid/MCAS experiences?
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS/ low vitamins and hashis? I am still very much trying to dig myself out of the hole but unsure how to even begin to fix all this. GP
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS/ low vitamins and hashis? I am still very much trying to dig myself out of the hole but unsure how to even begin to fix all this. GP
Littledancingtiger
in
Thyroid UK
17 days ago
Covid crash, dropping vitamin levels, MCAS?
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS, low vitamins and PA? I am still trying to dig myself out of the hole but unsure how to even begin to fix all this. GP has mentioned
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS, low vitamins and PA? I am still trying to dig myself out of the hole but unsure how to even begin to fix all this. GP has mentioned
Littledancingtiger
in
Pernicious Anaemia Society
17 days ago
Anyone recent experience Carlisle NHS endos?
As a continuation of post the other day re high HR with Long Covid: Gp wants an endo involved to give blessing to his desire to reduce my levo. My private endo who I have seen by zoom during covid is rather expensive and needs paying to get an advisory letter from ( now use Roseway Labs prescriber scheme
As a continuation of post the other day re high HR with Long Covid: Gp wants an endo involved to give blessing to his desire to reduce my levo. My private endo who I have seen by zoom during covid is rather expensive and needs paying to get an advisory letter from ( now use Roseway Labs prescriber scheme
Judithdalston
in
Thyroid UK
18 days ago
W1R1 again!
Here I go again. After another dose of Covid decided to start again. Determined Long Covid won’t hit again after a 21 month battle with it before. Going to take it really slowly this time. 68 in 2 weeks and would love to get back to 10k again by the time I’m 70! Any tips?
Here I go again. After another dose of Covid decided to start again. Determined Long Covid won’t hit again after a 21 month battle with it before. Going to take it really slowly this time. 68 in 2 weeks and would love to get back to 10k again by the time I’m 70! Any tips?
Phdgranny
Graduate
in
Couch to 5K
18 days ago
antiviral meds covid
I rang haematology and they referred me to covid response team . I had a phone call from them and a courier delivered antivirals within one hour . Excellent service .
I rang haematology and they referred me to covid response team . I had a phone call from them and a courier delivered antivirals within one hour . Excellent service .
HazeBlue
in
MPN Voice
18 days ago
Paxlovid
I've caught covid and the covid clinic recommend I take Pacific has anyone else had this and did you have any side effects
I've caught covid and the covid clinic recommend I take Pacific has anyone else had this and did you have any side effects
Chel1
in
MPN Voice
18 days ago
Covid
Anyone else start having all these issues after the covid vaccine?
Anyone else start having all these issues after the covid vaccine?
FrustratedHuman
in
Functional Neurological Disorder - FND Hope
18 days ago
Summer COVID UK
Hiya, I have ET JAK2 and several of my friends have come down with COVID. I was wondering if anyone knew if we were eligible for free COVID tests in the UK and how to go about it ? Can we also get the anti virals if the worst comes to the worst and I do get it? I looked online and couldn't make much
Hiya, I have ET JAK2 and several of my friends have come down with COVID. I was wondering if anyone knew if we were eligible for free COVID tests in the UK and how to go about it ? Can we also get the anti virals if the worst comes to the worst and I do get it? I looked online and couldn't make much
Cassandra61
in
MPN Voice
18 days ago
Medicare won't cover Paxlovid twice within 6 months
I figured this is worth sharing - as I was shocked to have gone through this, but I found a solution worth sharing that even my pharmacist didn't know about. Yes, I think we all know by now that if you have CLL its important to get Paxlovid if you get COVID (and it really works well). I had COVID in
I figured this is worth sharing - as I was shocked to have gone through this, but I found a solution worth sharing that even my pharmacist didn't know about. Yes, I think we all know by now that if you have CLL its important to get Paxlovid if you get COVID (and it really works well). I had COVID in
xpetes
in
CLL Support
18 days ago
Post lurgy and niggles - update
Well Covid got me and the runs had to take a back seat for a while. I tried a short run the week after and it was such a puffer I had a word with myself and took another week off for recovery. When I next set out for a 20 minute session at a slow plod (I should say, even slower than usual 😀), I started
Well Covid got me and the runs had to take a back seat for a while. I tried a short run the week after and it was such a puffer I had a word with myself and took another week off for recovery. When I next set out for a 20 minute session at a slow plod (I should say, even slower than usual 😀), I started
Fionamags
Graduate10
in
Bridge to 10K
19 days ago
THANK YOU TO ALL RE: Covid Anti Viral Meds.
Thank you for all your helpful replies. As I had telephone appointment already scheduled I spoke to Haematologist about getting Anti viral meds. Apparently things have changed and these Covid meds cannot now be sourced through Haematology. On ringing my GP the receptionist understood right away and went
Thank you for all your helpful replies. As I had telephone appointment already scheduled I spoke to Haematologist about getting Anti viral meds. Apparently things have changed and these Covid meds cannot now be sourced through Haematology. On ringing my GP the receptionist understood right away and went
azaelea
in
MPN Voice
19 days ago
Gut problems with Pavlovid
hiya, never posted before but just seeking advice. I have GPA was diagnosed at the start of COVID. I currently take azathioprine. After avoiding it for all this time COVID finally got me and I’ve finished a course of Paxlovid. Despite some residual symptoms mainly breathing difficulties I have recovered
hiya, never posted before but just seeking advice. I have GPA was diagnosed at the start of COVID. I currently take azathioprine. After avoiding it for all this time COVID finally got me and I’ve finished a course of Paxlovid. Despite some residual symptoms mainly breathing difficulties I have recovered
Sweetpea0508
in
Vasculitis UK
19 days ago
COVID
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
Paulagcl
in
PMRGCAuk
20 days ago
Covid Update
Hi all, a quick update to my previous post. I have had a couple of days of negative tests for Covid so holiday plans are going ahead as planned (as at this time!). It's been an "interesting" few days but I am feeling a huge amount better than I was, not 100% by any means but leaps and bounds better
Hi all, a quick update to my previous post. I have had a couple of days of negative tests for Covid so holiday plans are going ahead as planned (as at this time!). It's been an "interesting" few days but I am feeling a huge amount better than I was, not 100% by any means but leaps and bounds better
Bcol
in
PMRGCAuk
21 days ago
Covid. Do we still have to receive Antiviral medication?
I have just tested positive with Covid after Husband started with symptoms. I went onto NHS website to report it but it informs that this is no longer necessary. I wonder if we still have to request Antiviral treatment through 111 or GP. I have ET JAK2 Pos.
I have just tested positive with Covid after Husband started with symptoms. I went onto NHS website to report it but it informs that this is no longer necessary. I wonder if we still have to request Antiviral treatment through 111 or GP. I have ET JAK2 Pos.
azaelea
in
MPN Voice
21 days ago
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