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Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hikingman
in
ICUsteps
10 months ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
A COLD AND VENETOCLAX
Hi all….has anyone had a cold and paused Venetoclax? Still waiting to hear back from my Oncologist. Thanks…Diana
Hi all….has anyone had a cold and paused Venetoclax? Still waiting to hear back from my Oncologist. Thanks…Diana
difor29
in
CLL Support
6 months ago
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Preventing COVID-19 & Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
lankisterguy
Volunteer
in
CLL Support
9 months ago
another random question
another random question - is it common to feel cold in early pregnancy or is this another miscarriage sign? do live in a cold country but I feel colder than usual and have been walking around looking like an advertisement for a blanket.
another random question - is it common to feel cold in early pregnancy or is this another miscarriage sign? do live in a cold country but I feel colder than usual and have been walking around looking like an advertisement for a blanket.
Catwind
in
Fertility Network UK
6 months ago
HDR Brachytherapy after initial RT
Anyone has a success story to share on using HDR Brachytherapy 2-3 years after initial Radiation of the prostate gland in case of recurrence of cancer? Thank you for sharing your story.
Anyone has a success story to share on using HDR Brachytherapy 2-3 years after initial Radiation of the prostate gland in case of recurrence of cancer? Thank you for sharing your story.
Simonapo
in
Advanced Prostate Cancer
4 months ago
Covid and platelets
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
EdwinaJ
in
MPN Voice
9 months ago
New to PMR
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Charlotteab
in
PMRGCAuk
9 months ago
Flare up after ear infection
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
Bue2
in
Fibromyalgia Action UK
10 months ago
managing anxiety
I’ve tested COVID positive. Feeling pretty crap but not as badly as the first couple times. Strangely no one else in the house has caught it. Just me. Initially I was feeling quite panicky about it but I’m managing pretty well. I just hope being quarantined won’t make me slip back into a place of comfort
I’ve tested COVID positive. Feeling pretty crap but not as badly as the first couple times. Strangely no one else in the house has caught it. Just me. Initially I was feeling quite panicky about it but I’m managing pretty well. I just hope being quarantined won’t make me slip back into a place of comfort
MindfulMoment
in
Anxiety and Depression Support
9 months ago
Shingles.
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
mlp3434
in
AF Association
6 months ago
chest infection
I was diagnosed with COPD March last year after several years of chesty cold and finally Covid. I have inhaler that seem to have helped. I developed an achy chest pain. GP diagnosed a chest infection but I have had no cough is it normal not to have a cough.
I was diagnosed with COPD March last year after several years of chesty cold and finally Covid. I have inhaler that seem to have helped. I developed an achy chest pain. GP diagnosed a chest infection but I have had no cough is it normal not to have a cough.
Shar63
in
Lung Conditions Community Forum
6 months ago
Covid advice
Has anybody got any advice on how to deal with Covid when on combination therapy? I've just gone down with it for the first time and I'm wondering if I should just continue as normal. Have a pretty high fever and heart rate...wd the T3 exacerbate this?
Has anybody got any advice on how to deal with Covid when on combination therapy? I've just gone down with it for the first time and I'm wondering if I should just continue as normal. Have a pretty high fever and heart rate...wd the T3 exacerbate this?
SilverSavvy
in
Thyroid UK
9 months ago
Colds and flu…🧐🥹?
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
Suvi8901
in
LUPUS UK
9 months ago
Finished Venetoclax, then Covid
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
Healmenow
in
CLL Support
8 months ago
covid booster causing PMR flare?
I’d welcome any thoughts/advice please. Had covid booster, 4th, last Friday. Modena same as last year but under its new name, Spikway. Sore arm, very, very tired…done virtually nothing for last two and a half days. Yesterday and today all PMR pains very sore. Bilateral hips, shoulders, neck and biceps
I’d welcome any thoughts/advice please. Had covid booster, 4th, last Friday. Modena same as last year but under its new name, Spikway. Sore arm, very, very tired…done virtually nothing for last two and a half days. Yesterday and today all PMR pains very sore. Bilateral hips, shoulders, neck and biceps
Hulotsholiday
in
PMRGCAuk
9 months ago
well another drug fail.
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
J1707-
in
NRAS
9 months ago
tinnitus after covid
Hi, Has anyone suffered tinnitus for a long time after covid or did it eventually go? If so, how long before it cleared up? Thanks
Hi, Has anyone suffered tinnitus for a long time after covid or did it eventually go? If so, how long before it cleared up? Thanks
Rabb5
in
Tinnitus UK
9 months ago
Isn’t this so true?
In today’s newspaper…….Not getting better During the pandemic, virtually every GP surgery in the land closed its doors as people were told to stay away from the NHS. The reason was purportedly to stop the hospitals overflowing but it effectively put the entire system out of reach for those who did not
In today’s newspaper…….Not getting better During the pandemic, virtually every GP surgery in the land closed its doors as people were told to stay away from the NHS. The reason was purportedly to stop the hospitals overflowing but it effectively put the entire system out of reach for those who did not
AgedCrone
in
NRAS
9 months ago
Covid and under active thyroid
I have just had covid for first time, and it hit me pretty badly, like a bad flu. My glands felt really swollen during it, particularly before, and still do. I'm also so tired. Sleeping a lot. Feel sluggish. Fat for no reason and constipated. This is all the feeling for me that my thyroid is under
I have just had covid for first time, and it hit me pretty badly, like a bad flu. My glands felt really swollen during it, particularly before, and still do. I'm also so tired. Sleeping a lot. Feel sluggish. Fat for no reason and constipated. This is all the feeling for me that my thyroid is under
Billy2023
in
Thyroid UK
9 months ago
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