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Zometa
Insurance denied my Xgeva shot . Was told I had to do Zometa. Looking at the potential side effects ( stomach) Im not inclined. Been dealing with ibs and gerd for years and not really wanting to go with anything that will increase that situation. I've read that Zometa does nothing to prevent SRE events
Insurance denied my Xgeva shot . Was told I had to do Zometa. Looking at the potential side effects ( stomach) Im not inclined. Been dealing with ibs and gerd for years and not really wanting to go with anything that will increase that situation. I've read that Zometa does nothing to prevent SRE events
APK3
in
Advanced Prostate Cancer
4 months ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
4 months ago
life Insurance
I wanted to get opinions regarding my life insurance 800K which will be expiring in a couple of months. I have the option to roll it over to a universal policy but it’s going to cost me 2K a month. I’m still Homone sensitive. And been on ADT and Nubeqa (daroludimide) for the last couple of years. Had
I wanted to get opinions regarding my life insurance 800K which will be expiring in a couple of months. I have the option to roll it over to a universal policy but it’s going to cost me 2K a month. I’m still Homone sensitive. And been on ADT and Nubeqa (daroludimide) for the last couple of years. Had
JDKotter
in
Advanced Prostate Cancer
4 months ago
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a safe antiviral.
Being that I was born with Solitary kidney and started on acyclovir when I started chemo, I’m trying to find an antiviral that doesn’t harm my kidney. Has anyone got some leads for me? Thank you.
Being that I was born with Solitary kidney and started on acyclovir when I started chemo, I’m trying to find an antiviral that doesn’t harm my kidney. Has anyone got some leads for me? Thank you.
Fredismydog
in
Kidney Disease
4 months ago
Clinical Trial PT 112 ?
I’m writing for my husband who is French (I’m English : we live in France ) He’s 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
I’m writing for my husband who is French (I’m English : we live in France ) He’s 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
Enilorac63
in
Advanced Prostate Cancer
4 months ago
Caelyx
I finished 6 cycles of carboplatin/paclitaxel at end Oct and it seemed to have really worked on the cancer that is in my liver and peritoneum so following advice of my oncologist I’ve had a break as I’ve been on chemo of some kind or other since Sept 21. After a scan and in Dec he talked about me having
I finished 6 cycles of carboplatin/paclitaxel at end Oct and it seemed to have really worked on the cancer that is in my liver and peritoneum so following advice of my oncologist I’ve had a break as I’ve been on chemo of some kind or other since Sept 21. After a scan and in Dec he talked about me having
Skyeplus
in
My Ovacome
4 months ago
T + Chemo?
Hi guys, This may be a dumb question but my understanding of chemo is that it is most effective when the cancer is growing rapidly. Would it be of any use to kick up the testosterone way high to get everything cooking, and then hit it hard with chemo? It's in my future of course, but I'm just curious
Hi guys, This may be a dumb question but my understanding of chemo is that it is most effective when the cancer is growing rapidly. Would it be of any use to kick up the testosterone way high to get everything cooking, and then hit it hard with chemo? It's in my future of course, but I'm just curious
Bruce66
in
Advanced Prostate Cancer
4 months ago
Docxtel triple therapy?
Thank you for sharing your thoughts. My dad--81, advanced metastatic castrate resistant Diagnosed at 79 with stage 4 met 8 bones, including skull, no Gleason, never even saw a urologist. Diagnosed in ER and sent straight to the oncologist and palliative care doctor. PSA initially at 137 Lupron
Thank you for sharing your thoughts. My dad--81, advanced metastatic castrate resistant Diagnosed at 79 with stage 4 met 8 bones, including skull, no Gleason, never even saw a urologist. Diagnosed in ER and sent straight to the oncologist and palliative care doctor. PSA initially at 137 Lupron
lgutman
in
Advanced Prostate Cancer
4 months ago
Chemotherapy before surgery.
Hi I am new to the forum and just about to start my journey with OC. I am having 3 chemo sessions before surgery as they said I might of needed extensive bowel surgery if I had surgery first. Has anyone had some chemo before surgery and how it effected you going in to surgery. I feel very frightened
Hi I am new to the forum and just about to start my journey with OC. I am having 3 chemo sessions before surgery as they said I might of needed extensive bowel surgery if I had surgery first. Has anyone had some chemo before surgery and how it effected you going in to surgery. I feel very frightened
Hidden
in
My Ovacome
1 year ago
Elevated Liver Enzymes
Husband on Triplet Therapy Orgovyx, Nubeqa and Docetaxel for Stage IV GL9 with bone mets. First chemo cycle completed. Second chemo was canceled as his ALT numbers were very high (305). AST also elevated at 94. ALP is within normal range. MO is recommending holding off Nubeqa for a week and retest liver
Husband on Triplet Therapy Orgovyx, Nubeqa and Docetaxel for Stage IV GL9 with bone mets. First chemo cycle completed. Second chemo was canceled as his ALT numbers were very high (305). AST also elevated at 94. ALP is within normal range. MO is recommending holding off Nubeqa for a week and retest liver
Cali3
in
Advanced Prostate Cancer
4 months ago
At the crossroads (again)
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
rsgdmd
in
Advanced Prostate Cancer
4 months ago
SCT starts next week
Had my last meeting yesterday with consultant and sign all the forms etc. All the organ function tests were ok with no problems and my spleen is only just palpable so no need for anything to be done about that. I am to be admitted on Monday 4th March and have Hickman line put in on Tuesday 5th. Then
Had my last meeting yesterday with consultant and sign all the forms etc. All the organ function tests were ok with no problems and my spleen is only just palpable so no need for anything to be done about that. I am to be admitted on Monday 4th March and have Hickman line put in on Tuesday 5th. Then
Flyingsteamer
in
MPN Voice
4 months ago
Extremely bad acid heartburn
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
Holsgram
in
My Ovacome
4 months ago
Niraparib
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
Berryporridgr
in
My Ovacome
4 months ago
Pain Management
Dear All can anyone help. Diagnosed with stage 1V advanced metastatic prostate cancer December 2022. 6 sessions of Chemo, then Firmagon and Nubeqa PSA was 349 now about 1 but has been increasing. Cancer was in most bones but no organs - primarily pelvis and hips - have had radiation treatment but still
Dear All can anyone help. Diagnosed with stage 1V advanced metastatic prostate cancer December 2022. 6 sessions of Chemo, then Firmagon and Nubeqa PSA was 349 now about 1 but has been increasing. Cancer was in most bones but no organs - primarily pelvis and hips - have had radiation treatment but still
Nyon
in
Advanced Prostate Cancer
4 months ago
Triplet and now Radiation?
Hi all - just wanting your thoughts on this. In my profile you would see full details but I will summarize here. 50yr old diagnosed Aug 2nd with PCA with spread to L5 and pubic bone. Original PSA was around 9 and put on Casodex for month, then Lupron every 3 months, plus Darolutamide. Just completed
Hi all - just wanting your thoughts on this. In my profile you would see full details but I will summarize here. 50yr old diagnosed Aug 2nd with PCA with spread to L5 and pubic bone. Original PSA was around 9 and put on Casodex for month, then Lupron every 3 months, plus Darolutamide. Just completed
Yzinger
in
Advanced Prostate Cancer
4 months ago
Carboplatin alternatives
I was diagnosed with Primary Peritoneal high grade serous cancer stage 3C in early 2021. I had 6 cycles of Carboplatin and Paclitaxel, radical surgery, two more chemo cycles then Niraparib for just over a year until it stopped working and my CA125 began to rise rapidly. Surgery was considered and
I was diagnosed with Primary Peritoneal high grade serous cancer stage 3C in early 2021. I had 6 cycles of Carboplatin and Paclitaxel, radical surgery, two more chemo cycles then Niraparib for just over a year until it stopped working and my CA125 began to rise rapidly. Surgery was considered and
Alice77
in
My Ovacome
4 months ago
Break from chemo
I had my pre chemo oncologist appointment today. He wants me to take a break from chemo to give my body a a chance to recover and go back to see him in 6 weeks. I’ve had 3 rounds of chemo gem/carbo but missed 2 of gem on its own. Scan showed some reduction and stable disease. But I’ve been admitted to
I had my pre chemo oncologist appointment today. He wants me to take a break from chemo to give my body a a chance to recover and go back to see him in 6 weeks. I’ve had 3 rounds of chemo gem/carbo but missed 2 of gem on its own. Scan showed some reduction and stable disease. But I’ve been admitted to
Purplerose12
in
My Ovacome
4 months ago
Patricia
I am new to the forum, my daughter has been on. I have 6 rounds of chemo and then operation very large, scar but couldn’t take everything, so nothing was taken. I am now going to take chemo tablets only how is this, very upset and in pain from stomach still. Will go for 2nd opinion at some point. Do
I am new to the forum, my daughter has been on. I have 6 rounds of chemo and then operation very large, scar but couldn’t take everything, so nothing was taken. I am now going to take chemo tablets only how is this, very upset and in pain from stomach still. Will go for 2nd opinion at some point. Do
Balliol15
in
My Ovacome
4 months ago
question about going to Mayo
we have an appointment to see Dr Sartor at Mayo but my husband has read Dr Kwon helps refer patients out of the country for Actinium 225. We saw Dr Sartor when he was at Tulane. Will we be able to discuss Atinium w Dr Sartor or should we also try to see Dr Kwon? What’s the appropriate etiquette?
we have an appointment to see Dr Sartor at Mayo but my husband has read Dr Kwon helps refer patients out of the country for Actinium 225. We saw Dr Sartor when he was at Tulane. Will we be able to discuss Atinium w Dr Sartor or should we also try to see Dr Kwon? What’s the appropriate etiquette?
SuppWife
in
Advanced Prostate Cancer
4 months ago
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