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Rituximab
Hi, I am soon to be started on Rituximab and wondered if anyone can share their experiences of the infusion process and how they get on with this drug. Many thanks
Hi, I am soon to be started on Rituximab and wondered if anyone can share their experiences of the infusion process and how they get on with this drug. Many thanks
Buntybear
in
NRAS
5 years ago
Another Rituximab post
Hi After some info from others on here that are on Ritux. I've just started my treatment (2 infusions 2 weeks apart) and am now playing the waiting game to see if it helps. I was wondering how long others have had to wait until they started to notice it working. I've been told it could be 8-10 weeks.
Hi After some info from others on here that are on Ritux. I've just started my treatment (2 infusions 2 weeks apart) and am now playing the waiting game to see if it helps. I was wondering how long others have had to wait until they started to notice it working. I've been told it could be 8-10 weeks.
Snippers
in
NRAS
5 years ago
Emotional at 5 months FCR UK
New here Yeah. Thought it would be a breeze. I’m 60. Whoo. My emotions are all over the place. I’m doing well on all “counts” but as a gay man I don’t think my friends quite understand. Everything in the past is coming into my mind like cinema. My first boyfriend died of AIDS so memories are not comfortable.I
New here Yeah. Thought it would be a breeze. I’m 60. Whoo. My emotions are all over the place. I’m doing well on all “counts” but as a gay man I don’t think my friends quite understand. Everything in the past is coming into my mind like cinema. My first boyfriend died of AIDS so memories are not comfortable.I
Gaday
in
CLL Support
5 years ago
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Depression for last 2 years
Hi everyone, as someone who has had RA for last 30 years, was diagnosed at 34, I have tried most meds, the only one that truly changed my life was embrol. I was one of the first patients within our rheumatology dept to go on it. I had about 8 years on it. I had small flares from time to time, and methotrexate
Hi everyone, as someone who has had RA for last 30 years, was diagnosed at 34, I have tried most meds, the only one that truly changed my life was embrol. I was one of the first patients within our rheumatology dept to go on it. I had about 8 years on it. I had small flares from time to time, and methotrexate
Callabag64
in
NRAS
5 years ago
Anyone used Belimumab to suppress their APS?
My new rheumatologist mentioned Rituximab (which I had a bad experience w/ in 2006), Plaquenil, and Belimumab as possible drugs to suppress my Lupus Anticoagulant. Anyone heard of it or tried it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198539/
My new rheumatologist mentioned Rituximab (which I had a bad experience w/ in 2006), Plaquenil, and Belimumab as possible drugs to suppress my Lupus Anticoagulant. Anyone heard of it or tried it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198539/
Holley
in
Hughes Syndrome APS Forum
5 years ago
Mycophenolate Mofetil (MMF) - How is it for you ?
I have been on Mycophenolate Mofetil (MMF) since Feb 2016 at a dosage of 2 times 500 mg's per day, and it has kept my platelet count steady at around 100 to 170. I do not take any other medication. I was diagnosed in 2006 and had previously had good responses from Prednisolone (5 times) and Rituximab
I have been on Mycophenolate Mofetil (MMF) since Feb 2016 at a dosage of 2 times 500 mg's per day, and it has kept my platelet count steady at around 100 to 170. I do not take any other medication. I was diagnosed in 2006 and had previously had good responses from Prednisolone (5 times) and Rituximab
AnthonyHeard
ITP Support Association
in
ITP Support Association
5 years ago
Rituximab 1 month ago
Last year I had my first rituximab infusion and never got to have the second half as I got shingles so had to wait and start over. I finally tried again last month and managed to complete both infusions. Ever since, I've had one bug after another and been in flare (like almost as bad as when first diagnosed
Last year I had my first rituximab infusion and never got to have the second half as I got shingles so had to wait and start over. I finally tried again last month and managed to complete both infusions. Ever since, I've had one bug after another and been in flare (like almost as bad as when first diagnosed
Laura_dilcock
in
NRAS
5 years ago
Good News
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
dandelup
in
CLL Support
5 years ago
FCR or BR?
Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his lymphs are very big so he needs to be treated. His IGHV is unmutated and tp53 also unmutated. We visited two hospitals, one says FCR and the other one says BR. We really don’t know what to do. Any advice is welcome! Thanks
Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his lymphs are very big so he needs to be treated. His IGHV is unmutated and tp53 also unmutated. We visited two hospitals, one says FCR and the other one says BR. We really don’t know what to do. Any advice is welcome! Thanks
TOFK
in
CLL Support
5 years ago
RITUXIMAB infusion
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on RITUXIMAB drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on RITUXIMAB drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
nancyannexo
in
LUPUS UK
5 years ago
RITUXIMAB
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on RITUXIMAB drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on RITUXIMAB drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
nancyannexo
in
NRAS
5 years ago
Need to know about any DSide Effects when on Venetalax/ rituximab
Hi Everyone. Seems I have the P53 gene deletion. I will be commencing on a regime of Venetaclax/ rituximab in late may- will be monitored for 3 days each week for 5 weeks as an inpatient. I would like to hear from people who have been on this medication regime to please tell me about side effects they
Hi Everyone. Seems I have the P53 gene deletion. I will be commencing on a regime of Venetaclax/ rituximab in late may- will be monitored for 3 days each week for 5 weeks as an inpatient. I would like to hear from people who have been on this medication regime to please tell me about side effects they
roszika
in
CLL Support
5 years ago
M scared...!
Hello..My Mom (48 years) had a stroke on Oct 30- 2018 on the right side of the brain and weakness on her left part of the body. By this time, Aspirin was started for her. On Dec 25-2018, her haemoglobin was dropped down to6 and platelets Wer 33000. She got diagnosed with Deep Vein Thrombosis of right
Hello..My Mom (48 years) had a stroke on Oct 30- 2018 on the right side of the brain and weakness on her left part of the body. By this time, Aspirin was started for her. On Dec 25-2018, her haemoglobin was dropped down to6 and platelets Wer 33000. She got diagnosed with Deep Vein Thrombosis of right
Abc91
in
Hughes Syndrome APS Forum
5 years ago
MS
Hi, I was diagnosed with multiple sclerosis 5 years back. Currently i am facing arthritis symptoms. I am facing issue while walking. I took 2 dosage of Rituximab as prescribed by doctor. In how many days can I expect a result ?
Hi, I was diagnosed with multiple sclerosis 5 years back. Currently i am facing arthritis symptoms. I am facing issue while walking. I took 2 dosage of Rituximab as prescribed by doctor. In how many days can I expect a result ?
Rinku_
in
ITP Support Association
5 years ago
CLL treatment options
I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR chemotherapy because of decrease in Hb. One cycle given. FISH shows Del 13q14.3 30% and 14q32 IGH gene 86% Hypermutated IGVH. Age 62 years also Hypertension and Diabetes. Hb 5.9 TLC 368000 Platelets 68000. Please
I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR chemotherapy because of decrease in Hb. One cycle given. FISH shows Del 13q14.3 30% and 14q32 IGH gene 86% Hypermutated IGVH. Age 62 years also Hypertension and Diabetes. Hb 5.9 TLC 368000 Platelets 68000. Please
drvksethi
in
CLL Support
5 years ago
CLL Rituximab - first Rituxan Hycela Shot went well!
Since I was the first woman to have the shot at OHSU yesterday that replaced my routine Rituxan infusion, I thought I would share. I had pre-treatment fear for the first time after watching the administration video, concerns about more severe reactions and after 50 IV's in the last 3 years somehow a
Since I was the first woman to have the shot at OHSU yesterday that replaced my routine Rituxan infusion, I thought I would share. I had pre-treatment fear for the first time after watching the administration video, concerns about more severe reactions and after 50 IV's in the last 3 years somehow a
ChrisLovesLife
in
CLL Support
5 years ago
Rituximab and B/C Cells
Some time ago - I think it was September last year, I had two Rituximab infusions but unfortunately if anything my symptoms have been getting worse. I have been having regular blood tests and apparently my B cells are still depleted. My neurologist made the comment earlier this week that in one way
Some time ago - I think it was September last year, I had two Rituximab infusions but unfortunately if anything my symptoms have been getting worse. I have been having regular blood tests and apparently my B cells are still depleted. My neurologist made the comment earlier this week that in one way
lesleyg
in
Behçet's UK
5 years ago
FCR?
I'm concerned about whether my husband made the right decision when he was given the FCR arm of the Flair trial as over a number of weeks been mentioned that it is not the best frontline treatment to have. We were both CLL nieve even though he had it for 19yrs and had no problems. Did we make a hasty
I'm concerned about whether my husband made the right decision when he was given the FCR arm of the Flair trial as over a number of weeks been mentioned that it is not the best frontline treatment to have. We were both CLL nieve even though he had it for 19yrs and had no problems. Did we make a hasty
very
in
CLL Support
5 years ago
FCR versus Ibrutinib
Hi everyone. I am new here and have posted a couple of times but have not introduced myself. I am 62, male, diagnosed with CLL in 2011. No deletions and mutated IGVH, so it is a fairly benign form of CLL. My ALC was 8,000 at diagnosis and it has crept up slowly to 18,000 over 8 years. Recently I had
Hi everyone. I am new here and have posted a couple of times but have not introduced myself. I am 62, male, diagnosed with CLL in 2011. No deletions and mutated IGVH, so it is a fairly benign form of CLL. My ALC was 8,000 at diagnosis and it has crept up slowly to 18,000 over 8 years. Recently I had
GrumpyFrog
in
CLL Support
5 years ago
Antisynthetase syndrome and Rituximab
Hello, My mum was diagnosed with antisynthetase syndrome with ILD 2 years ago. She was initially put on corticosteroids and an intravenous immune suppressing drug (which I can't remember the name of but it made her hair fall out). This drug got her out of immediate danger and she was taken off steroids
Hello, My mum was diagnosed with antisynthetase syndrome with ILD 2 years ago. She was initially put on corticosteroids and an intravenous immune suppressing drug (which I can't remember the name of but it made her hair fall out). This drug got her out of immediate danger and she was taken off steroids
antarcticadventurer
in
Myositis UK
5 years ago
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