Prednisolone : Well, after saying I would never go back... - NRAS

NRAS

37,276 members46,139 posts

Prednisolone

Callabag64 profile image
9 Replies

Well, after saying I would never go back to oral steroids, I have had to this week. The pain was so bad, I could not take much more. Rheumy nurse said I could have 5 days supply to tide me over till next Rituximab infusion. The last one ( my first ) had reaction, so only had third of the dose. So pain eased a lot after one 20mg dose of steroid pills, but only 4 hours sleep. That’s what it does to me, insomnia!! Don’t know what will happen after 5 days, infusion not due for another11 days after they end.

Written by
Callabag64 profile image
Callabag64
To view profiles and participate in discussions please or .
Read more about...
9 Replies
oldtimer profile image
oldtimer

It's a dilemma isn't it! I find that steroids impair my sleep too, but think that's usually worth it for the relief of pain and other exhaustion from dealing with pain and inability to function. What have they advised you about reducing the dose? Can you find a balance between pain relief and sleep disturbance with a reduced dose?

Callabag64 profile image
Callabag64 in reply tooldtimer

Just given me 5 days at 20mg, which has helped, but still in pain. Dreading weds, as that will be my 5 days up, don’t know what will happen then

Hi there, sorry to hear about your issues. It’s best to take your Prednisolone in the morning, because insomnia is a known side effect of the generally available variety, cheers Deb :)

Callabag64 profile image
Callabag64 in reply to

Hello, yes I have been on them before asi have said, and I take them at 7 each morning.

in reply toCallabag64

Sorry, that wasn’t in your original post, otherwise I wouldn’t offer needless advice :)

Do you take your steroids at breakfast? I find the earlier I take them (even at 40mg) I sleep better.

Mmrr profile image
Mmrr

I've taken prednisilone in the morning, but did try it around 2am , but it made no difference to me.

steviewonder profile image
steviewonder

It's not good to come straight off a 20mg dose, try tapering the dose, 17.5 tomorrow, 15 the next day etc etc.... that way the tabs you have got will last longer and your tapering your dose as your supposed too.

Callabag64 profile image
Callabag64

Yes have done that before, but the 20mg i am on is not having much of an effect anyway, just taking the edge off.

Not what you're looking for?

You may also like...

Prednisolone Methotrexate MCTD...

Oh where to start. Feet have been bad for a few years. Reached crisis point a few weeks ago....
Brychni profile image

Prednisolone and urge to pee

Edited to add, after contacting the consultant's secretary I have a new appointment in 12...
Gottarelax profile image

Prednisolone & sleep deprivation

Hi everyone, me again 🙄 Hope you’ve all had a lovely mother’s day in whatever capacity you are....
Garnacha profile image

Tocilizumab infusions

Hi everyone, It will be 2 weeks on Tuesday since I had my first infusion and I am feeling really...

Ticilizumab Infusions

Hello to everyone who has been following me in regards to the infusions. I was told last Tuesday...

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.